Patient Comments: Wolff-Parkinson-White Syndrome - Treatment

Question:

What treatment did you have for Wolff-Parkinson-White syndrome? Was it successful? Submit Your Comment

Comment from: Tony G., 35-44 Male (Patient) Published: December 11

I was diagnosed with Wolff-Parkinson-White syndrome in 1988 at age 31. I had performed a jump on a snowmobile, and when I landed my heart was racing without letup. The emergency room measured my heart rate at 320. They converted it with paddles. I was on leave from the Navy, and when I returned to my duty station, they sent me back to the states for treatment. I spent almost 3 months in hospital undergoing the EPT testing. Testing reached 440 bpm, which impressed staff. They did the ablation via open heart.

Comment from: Dsisco, 13-18 Male (Caregiver) Published: May 23

My grandson was diagnosed with Wolff-Parkinson-White syndrome (WPW) at approximately age 3. Since he was also born with a genetic disorder, we didn't focus too much on the WPW. He is now 18 and has blacked out 2 times in the past year; we related these to other issues. The day he was able to tell me he didn't feel well was the day he went into full cardiac arrest. He had 5 additional pathways in his heart that were ablated via 2 procedures. Several weeks later, he is home and doing great!

Comment from: Morrison, 55-64 Female (Patient) Published: November 11

I had Wolff-Parkinson-White syndrome for thirty years. My heart would often race into the 300s. Finally at the age of 55 I wanted to go off my beta blocker and enjoy my active lifestyle without fear of an episode. I had the ablation procedure and it was successful. I have been symptom free for nine years. I wish I had done it sooner.

Comment from: KR ablation gone bad, 35-44 Female (Patient) Published: February 26

I recently had an ablation procedure for my WPW (Wolff-Parkinson-White syndrome) that has not given me the results I was hoping for. The channel was behind my heart and difficult to get to. To make it worse, the anesthesia given didn"t work so I had 4 people holding down a 95 lb. woman as they shocked my heart into the irregular arrhythmia 3 different times. I have not had a single day I have felt good since and it"s been 3 months. Since then I have developed high blood pressure (sometimes 195/115 with a pulse of 144). I still have the bouts of a racing heart daily, but have started incurring stroke like symptoms and had 3 small seizures. My emergency physician (EP) says I may have another channel that was missed but decided not to address my blood pressure, so I went to a non EP and took matters into my own hands. Still no one seems to want to address the numbness in my arm and mouth that have happened or the seizures. I don"t want to have another procedure due to my 1st experience and the after effects I am dealing with that may or not be related.

Comment from: Hopeful mom, 13-18 Female (Caregiver) Published: October 22

My 14 year old son just had ablation for the second time. He was diagnosed with WPW (Wolff-Parkinson-White) when he was 7 years old. The first ablation was not successful as the pathway was too close to the aorta which was very dangerous. Now, 5 years later, the pathway has moved laterally so emergency physician was able to ablate. We are hopeful that this treatment is successful. WPW so far has not shown up on EKG (electrocardiography).

Comment from: pego, 45-54 Female (Caregiver) Published: December 12

My son has just had the operation for Wolff-Parkinson-White syndrome. I don't know if there is anything he needs to do after. I hope he can he now live a normal life.

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