Patient Comments: Wolff-Parkinson-White Syndrome - Share Your Experience

Question:

Please share the events that led to a diagnosis of Wolff-Parkinson-White syndrome. Submit Your Comment

Comment from: patol, 65-74 Female (Patient) Published: July 01

I consulted my general physician (GP) many times after feeling very ill with rapid heartbeat and high blood pressure (BP). I had also passed out twice while at a hospital appointment. Both times I was sent home when the symptoms subsided. I was diagnosed with anxiety and palpitations. At 69 I felt as though I was being treated as a silly old woman. Eventually, having had a pre operational assessment at another hospital it was found that I had Wolff-Parkinson-White (WPW) syndrome. My GP still ignored it and I had to pay for a consultant. I was then put on a long waiting list and eventually was treated having been taken ill whilst out shopping. I had an ablation having waited 3 weeks in hospital and then developed stroke like symptoms. I have not really been the same since and still suffer from High BP with slight WPW symptoms on occasions.

Comment from: Dobe, 65-74 Male (Patient) Published: November 06

When I was about 45 years old, I had emergency gall bladder surgery. The day after my surgery while in the hospital my heart took off real fast, 265 beats a minute. My heart kept up that rate for 2 ½ hours, when they finally got a doctor there and used the heart shock paddles to finally get it back to normal rhythm. They kept me in the hospital for a week, just to monitor my heart. I stayed home for a couple weeks, then they sent me to a larger hospital. After a week there, they figured I had Wolff-Parkinson-White (WPW) syndrome. Evan today it's rare to find someone that knows what WPW syndrome is. When I played sports in school I knew something was wrong, because my heart would race, every now and then. I have only had one relapse in the last 20+ years. When I was in the larger hospital they put a wire up into my heart, and they burned part of the tissue. After my heart raced at 265 per minute, the nurses looked at me the next day, all of them said I should not be there, nobody lives after that happens; just was not my time.

Comment from: Grandma, 0-2 Male (Caregiver) Published: October 14

My grandson was diagnosed with Wolff-Parkinson-White syndrome (WPW) in the uterus and he was induced at five weeks early. We have just found out that his dad's first cousin also has WPW so I am skeptical when they say it is not hereditary, as we have been told that it is. He is now 20 months old and like I said he formed and was born with it. He has just been changed to flecainide.

Comment from: Acarper45 , 35-44 Female (Patient) Published: September 17

I was diagnosed with Wolff-Parkinson-White syndrome at 6. I went to every specialist on the east coast. I have recurrent “attacks” but it can be triggered by fear, anxiety, caffeine, and most usually hormones especially for women. There are ways of making it stop without being shocked, splashing cold water on your face or using the muscle in your diaphragm. Like when you bear down to use the bathroom or push out a baby but I have had great success with getting them to stop on my own. I've only had to be hospitalized once.

Comment from: Bruno, 45-54 Male (Patient) Published: July 09

Wolff-Parkinson-White syndrome is hard to work with. Sometimes I can be asleep and it wakes me with the pain be in my arms. Makes me sweat real bad and I have blackouts too. It is just painful.

Comment from: BennyB, 45-54 Male (Caregiver) Published: July 24

My mother, sister, and sister's daughter have Wolff-Parkinson-White syndrome.

Comment from: Kingbandit, 13-18 Female (Caregiver) Published: December 18

My son was 17 when he was diagnosed with Wolff Parkinson-White syndrome. He was told he would have an ablation and he would be fine 2 weeks later. Two days before his hospital appointment he dropped dead, 2 weeks before his 18th birthday.

Comment from: me, 55-64 Female (Patient) Published: August 20

I was diagnosed with WPW. I had an ablation and have not looked back. I have never felt better. I was 55 at the time.

Comment from: PhdMommy, 3-6 Female (Caregiver) Published: July 24

When she was 18 months old, our daughter had circulation issues with her lips and hands turning blue. When we had this examined further, the ER found nothing. However, as it continued to occur, we followed up with a cardiologist who within five minutes looked at the hospital's EKG and saw the WPW indicators. Since she is still so young, we have an event monitor with her at all times to make a quick recording if she appears to be in pain, short of breath, etc.

Comment from: Karen.bryan, 45-54 Female (Patient) Published: May 28

In 2011 I was diagnosed with WPW in the ER. At the time, I was so dizzy and feeling like I was going to pass out, that my sons took me to the ER. It was there that they discovered the WPW. I went to a heart doctor, and they had to do four ablations. Since then, I have not had any problems. I was released this year by the heart doctor. I don't need to go back unless I start having trouble again. I was 50 when they found it. I could never play sports in school because I felt like I couldn't breathe right and it made me extremely tired. Now I know what it was.

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