Patient Comments: Vasculitis - Treatment

Question:

What kinds of treatment did you receive for your vasculitis? Submit Your Comment

Comment from: RBF, 35-44 Female (Caregiver) Published: December 28

My mother was diagnosed with vasculitis back in the 1970s. She went to every doctor only to be told they could not help her. The disease brought her blood to the surface of the skin. She passed in 1980 when the disease attacked her organs. Yes, the disease was not common in those days but it is really not that long ago. Very sad, she was only 42.

Comment from: Marlena, 65-74 Female (Patient) Published: July 24

I have been to 4 specialist dermatologists, biopsy taken, and cortisone creams. I have some form of dermatitis/vasculitis. I suffered an extremely aggressive form of it the past month, both legs from knees to ankles covered in dreadful, raised rash. It itched 24/7. I had it from time to time before, never to this extent. I started using organic apple cider vinegar to clean it, then rubbed in organic coconut oil. Within 24 hours itch lessened by 50 percent, and 4 days later, 80 percent better. Rash is nearly gone 9 days later.

Comment from: RNDY, 55-64 Female (Patient) Published: December 16

My skin issue started with one raised, red spot about the size of a quarter. It began to itch so I rubbed it. The size increased and the area became very hot. Over the next few days the number of spots increased. My dermatologist obtained biopsies of the most inflamed areas and ran several blood tests. I was diagnosed with leukocytoclastic vasculitis. I was referred to a rheumatologist who prescribed Plaquenil. The itchy, raised, red spots have appeared on almost all body areas. They flare up, settle down, and re-flare. The itch wakes me up at night. The Plaquenil has not had any effect. Fortunately I do not have any other symptoms. I just itch and have red blotches.

Comment from: Worried Sick, 45-54 Male (Patient) Published: July 21

I am 45 years old & was diagnosed with vasculitis in April of 2014. I was originally put on 80 mg of prednisone and 100 mg of Cytoxan (cyclophosphamide) daily. Last month, doctor added Crestor 10 mg daily to my treatment, due to high cholesterol. On July 1st, my doctor lowered the prednisone to 60 mg daily. And that is my current dose. Side effects are insomnia, hand/feet/calf cramps, mood swings, pimples on back of neck/shoulders/chest, loss of hair on outside of both calves (bald), weakness in legs, shortness of breath after very little activity, blurred vision, groin pain, mouth sores, never healing cuts, redness/pain around toe nails, swollen ankles, swollen fat face/neck, anxiety, acid reflux, and burning in kidney area.

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