Patient Comments: Usher Syndrome - Treatment

Question:

What kinds of treatment has your child received for Usher syndrome? Submit Your Comment

Comment from: Babylandy1, 35-44 Female (Patient) Published: June 14

I am 43 years old and was born with retinitis pigmentosa and Usher syndrome. I have never received anything other than mobility training and hearing aids; glasses don't help and hearing aids barely help. There is no cure or treatment for these disorders. I wish you the best.

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