Patient Comments: Trisomy 18 - Life Expectancy

Question:

What's the life expectancy of your infant with trisomy 18? Submit Your Comment

Comment from: Karen, 19-24 Male (Patient) Published: August 29

My son had full trisomy 18. He was tested many times because he lived so long. He was 19 when he passed. I taught him how to eat off of a spoon and drink from a cup. When he was born the doctors said he would be like a vegetable. I just wouldn’t give up. I fought hard for him. He knew what you were talking about. He called his dada, sissy (sister) and the dog Kee.

Comment from: Chris, 7-12 Female (Caregiver) Published: March 18

Our daughter has full trisomy 18. She just turned 9 and I can't imagine life without her. She has a wonderful smile and is a delight. To put it mildly, after her birth, some medical providers were hesitant to treat but we persisted. Doctors at our hospital had a line on the questionnaire when you check in, asking 'Anything else you would like us to know?' I would answer 'I would like her to receive the same care as a child without trisomy 18 would receive.

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