Patient Comments: Toxoplasmosis - Symptoms

Question:

What symptoms and signs did you experience with toxoplasmosis? How was it diagnosed? Submit Your Comment

Comment from: J Jackson, 55-64 Female (Patient) Published: October 11

At 12, I went to an eye specialist as I couldn’t see well. He told my mom I had toxoplasmosis. It was from a stray, I contacted when I was 9. I had floaters in both eyes, very bad in my right eye. I was told when they floated to the front of my vision, I need to go as soon as possible. He could put drops in my eye. I’ve had three episodes but never got there in time for medicine, so I have scar tissue covering over half of my right retina. My vision in both eyes are blurred, I wonder if there is more damage now.

Comment from: BHall, 65-74 Female (Patient) Published: January 06

I was not diagnosed with toxoplasmosis until I was 27 years old. I developed black spots in my line of vision. After pictures were taken of the retina, it showed not only the current infection but previous infections and scarring. The doctor said that my mother had an infection during her pregnancy with me. I was given cortisone injections in the eye. For several years, I had additional infections. Each time I had a flare up, my vision was affected. As a result of the scarring, my retina detached. The floaters/dark spots are always with me. But, it has been 20 years since my last infection.

Comment from: Bullet, 7-12 Male (Caregiver) Published: March 01

My son was 7 when he was diagnosed with toxoplasmosis. He had acquired it from a stray cat. Both his retinas are damaged, but we were able to prevent further scarring by treating him with both antibiotics and steroids, including injections into his eyes. Thankfully he's old enough now to alert us when he has a flare up, which he had one year after he was first treated. He's 9 now, and so brave.

Comment from: natalie, 25-34 Female (Patient) Published: February 16

I was giving this diagnosis of toxoplasmosis nearly 20 years ago, I don’t know how I got it but it is the answer I got. My left eye is partially blind, I was just given some antibiotics back then so it wouldn’t go to my right eye. Now I am getting terrible headaches on right side of my head and my vision is very blurred, I wonder if it could have got to my right eye.

Comment from: froggie, 45-54 Female (Patient) Published: June 28

I have congenital ocular toxoplasmosis in the left eye. I am finding out that my depression, hearing loss, adult ADD and other symptoms may all be due to the toxoplasmosis and brain lesions. I have a mild case, and it still has its challenges.

Comment from: Betty, 25-34 Female (Caregiver) Published: October 19

My son was diagnosed with toxoplasmosis of one eye when he was aged 9. I don’t know how you can tell whether he was infected in utero or whether he contracted the disease himself. Although, as far as I am aware, I have never had toxoplasmosis, or at least had symptoms, we had a cat for many years before I became pregnant. I have a vague recollection that I was tested for toxoplasmosis before pregnancy and was antibody positive and was told that meant that I wouldn't pass it on to my children, maybe because you need an active infection to pass it on.

Comment from: Cynthia, 65-74 Female (Patient) Published: August 05

My mother was infected with Toxoplasmosis in first part of pregnancy transmitted to the fetus's. My twin was blind and severely brain damaged. She died at 9mos. I am blind in the left eye and limited vision in my right eye. I had small seizures until adulthood and out grew them. The Toxoplasmosis became active again at 15yrs old. Medication was successful and I retained my same vision. Able to attend normal schools and lead a fairly normal life with challenges.

Comment from: V, Female (Patient) Published: September 12

Optometrist know plenty about toxoplasmosis. I was diagnosed at 10 years old. Both eyes were affected. The parasite damanged my retinas pretty close to my cornea. I have big holes in both eyes but lucky my vision wasn't blocked all the way. I get random paranoia thinking it might reactivate but I know the signs now and can watch for it. The sooner you get treated the better. I am pregnant now and the doctors don't seem too concerned but I sure am. My suggestion is get educated about this because you definitely do not want to deal with this or pass it on to your baby. And don't panic, there is treatment and therefore hope. Not everyone gets it as bad as some of us.

Comment from: ShayWaddle, 19-24 Female (Patient) Published: September 07

I was diagnosed with toxoplasmosis when I was three years old. I got it from a stray cat. When I was diagnosed, I had two lymph nodes under my jaw, and as result I had to have surgery for the removal. One faded away back into my body and the other was removed. I was told to take extra precaution for when I have children so I don't pass it on. It makes me so nervous knowing that' there is a possibility that my innocent child could receive that from me. I haven't had any issues since my surgery in 1995 and I'm hoping my child nor I have to deal with it again. However I don't know if it's possible to reappear.

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Comment from: 25-34 Male Published: June 20

My mother was infected with toxoplasmosis when she was two weeks pregnant with me, and I was infected through the fetus and was born with a ventricular septal defect (VSD) with mirror image. Be careful around cats when pregnant. She is now having signs of the infection again. It’s been 33 years since she was infected, but in the last month the blurry vision with black spots, migraines, and serious confusion at times have been making her life miserable.

Comment from: Jano, Female (Patient) Published: August 15

I am 41 year old fit Aussie female. I was infected with toxoplasmosis at the age of about 17 from either the stray cat, or eating raw steaks my mother would leave on the bench. Back then I was sick for almost 12 months. I have two teenage daughters now. My eyesight is deteriorating to a blurry state. I have had my lenses checked, however I wonder if it is somewhat related. Do optometrists know enough about this disease?

Comment from: rfulop, 45-54 Male (Patient) Published: May 04

I had been scratched by a cat around 4 10 11. Two or three days later I had a fever that lasted for 5 days. About a week later I had a black blind spot in my right eye. After 31 blood tests it was confirmed that I had toxoplasmosis.

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