Patient Comments: Total Knee Replacement - Experience

Question:

Please describe your total knee replacement experience. Submit Your Comment

Comment from: Mountainbiker , 55-64 Female (Patient) Published: March 05

I am a 62 year old seriously active women who had a complete knee replacement on both knees at the same time and am into my 8th year with them. The surgery changed my life and I am so grateful to my surgeon for doing such an amazing job. I have recently been experiencing some swelling and soreness in both of my knees. I worry that I’m going to wear them out before I’m 65 years old and I really don’t want to do the surgery again. I’m hoping it’s just that I may have overdone it and irritated them.

Comment from: Active man, 65-74 Male (Patient) Published: January 26

I am a very fit 70 year old male with worn out knees, the right worse than left. I had total knee replacement (TKR) of my left knee in September 2019. I have problems and feeling not right. I have pain behind the knee within 4 weeks of the operation, possibly a Baker’s cyst. My knee has got worse. Good to walk around on but I get severe shooting pain at night turning in bed, the opposite of the situation before surgery. Apart from the night pain, severe with movement, daily are activities easier. I had TKR of the right knee in June 20, similar situation to the above, only 30 percent as bad. It is better.

Comment from: Soleil 819, 45-54 Female (Patient) Published: October 22

I had a total knee replacement (TKR) on my right knee on June 2019 (16 months ago). It was the most excruciating and painful experience ever. It took a lot of aggressive physical therapy, stretching and of course, courage, to overcome the healing process. I was on a walker for almost a month, a crutch for about three months, progressed to a cane, which I forcefully gave up after the year. It aches and stiffens up just about every day, however I am finally walking fine working 2 jobs. I won't do it again though. Good luck.

Comment from: JohnMH, 55-64 Male (Patient) Published: October 13

I had both my knees replaced in 2017. My left knee was bone on bone, right knee had cartilage worn and arthritis. They were done on August 8 and Nov 1 respectively that year. Rehabilitation was for 3 weeks; 3 times each week, at home and then outpatient therapy for 8 weeks. Currently I have the clicking present after 3 to 4 miles of walking/normal activity, especially walking inclines and stairs (which wear me out for a short time after the fact). I run and stretch 4 plus times a week in the Gym's pool.

Comment from: Ray, 65-74 Male (Patient) Published: October 07

Three years after my total knee replacement on both knees, I’m loving it. I ride my bike up to 40 km, walk and play golf. I train my legs at least twice a week. I would highly recommend it.

Comment from: Cheryl, 55-64 Female (Patient) Published: September 14

I am a 56 years old woman, had both my knee replacements done 3 and 3.5 years ago. I am an avid hiker and am going to attempt a through-hike of the Appalachian Trail in 2021. My knees click a lot especially when they are tired from climbing. It was the best thing I ever did, gave me back my life. I will never be the way I was but my quality of living is so great now. It was a hard road but exercise and will power help.

Comment from: Pam56, 55-64 Female (Patient) Published: September 01

I’m 3 years post right total knee replacement and although I don’t have pain in my knee I do have disfiguring fluid around my knee and intermittent thigh pain. Now I’ve torn the meniscus in my left knee. There is no way I am letting anyone touch it, it’s just not worth it! My message is, think very carefully before you have replacement surgery!

Comment from: dusty, 65-74 Female (Patient) Published: September 01

I am a 73 year old female who decided to have total knee replacement as I was bone on bone. I am almost 6 months out. I was walking unassisted a few days after surgery; off the pain medicines in a week, except for physiotherapy days. I walked a lot before my surgery. It hurts worse now when I walk, than before. Feels like a tight band around my knee, and I get sharp periodic pain. I will not do my other knee. I am very disappointed as I take as many OTC medicines as I did before the surgery, with less pain relief!

Comment from: B. W. , 45-54 Female (Patient) Published: August 24

I had my left knee replacement done on June 30th. I’m almost 8 weeks out. Everything was going well until my sciatica started acting up. Now I am resting. I still ride the bike, walk and am doing stretching. I am at 125 for bending and 100 degrees supine. I got there my 4th week in. I knew I had to do it. No matter the pain. The sciatica is going to be my problem I fear. But good knee strength.

Comment from: Salva1, 45-54 Female (Patient) Published: August 04

I had total right knee replacement on 6/22/2020. Prior to that I was very active even though I was having pain daily. On top of this, I have osteoarthritis as well and had fallen 3 times before having surgery. I have in-home physiotherapy until 8/20/2020, then on to out-patient physiotherapy. I still experiencing swelling and stiffness, especially in the morning. It’s a work in progress, not as easy as some people say. But I’ll get there in my own time.

SLIDESHOW

OA Knee Replacement: Before and After See Slideshow
Comment from: Josie, 75 or over Female (Patient) Published: July 30

It is 25 days since my total knee replacement. The inside of my knee hurts so much and the only painkiller is ibuprofen which does nothing. I wonder if it is normal to have such pain.

Comment from: LindaW, 65-74 Female (Patient) Published: July 30

I had a total left knee replacement almost three years ago. I do manage to cycle and walk but not without pain. Recently, the pain and swelling around the knee has been getting worse and unbearable, and feels very warm. I’ve done physiotherapy but it is no help. I can’t sleep well at night because of the pain. When the knee is swollen I can’t bend it which causes me to walk badly, which in effect causes pain in my hip replacement!

Comment from: Tkrteresa74, 45-54 Female (Patient) Published: June 30

I am one week and a day out from total knee replacement in my left leg. This is the most painful thing I have ever felt. Any relief at all has been at the expense of lots of painkillers and just passing out from pure exhaustion. I think I was in less pain in the hospital. At least there they could alternate the pain pills with morphine and I actually rested. I got sent home with half the dosage of pain pills I was taking and none of the stuff used to relax my knee to keep me from having knee/leg spasms.

Comment from: Uncomfortable, 55-64 Female (Patient) Published: May 29

I had total knee replacement on November 12th. I am doing my exercises, and they say the more you walk, the better you are, but the more I walk the more I am uncomfortable! My left knee was done. It feels so hard on the left side of my knee.

Comment from: SLIM, 65-74 Male (Patient) Published: May 05

I am 15 months post total knee replacement. I still have pain bending knee and getting up from sitting. I also just discovered the stiches are still under the skin over my knee cap; at least 6 of them. I am uncomfortable and have some pain. Impossible to rest on my knees.

Comment from: Jacqueline, 75 or over Female (Patient) Published: April 21

I had a complete knee replacement 10th January, I’m a 76 year old woman. My knee does not fell right. If I try and bend it, it feels like the knee is too small. Also if I try and bend it, it hardly bends without terrible pain. When I’m sitting it’s okay, but when I try and get up the pain is unbearable. And it’s still very swollen and very warm.

Comment from: Helen , 45-54 Female (Patient) Published: April 21

I had a total knee replacement 2 months ago. I'm 46 years old and young to have it done but needed it. My problem is, my knee feels really heavy. I still can straighten it, no problem, just the bending I'm having problem with. And it still looks swollen and every now and again I get shooting pain and electric shock down my shin. Not sure if this is normal.

Comment from: Moo 1, 55-64 Female (Patient) Published: April 02

I'm 16 weeks post total knee replacement. I'm doing very well, no pain medicines, and walking well. My issue is after sitting when I stand it takes several moments to start walking… my knee is so stiff.

Comment from: Anthony P, 65-74 Male (Patient) Published: March 31

I am 12 weeks post total knee replacement in my right leg. The first 7 days were the pain of my life but I walked as much as possible. I focused on bending, stretching and icing for the next 11 weeks, sometimes icing 10 times per day. I am now free of knee pain, swelling, and off all medicines. I still have tendonitis around the knee, but generally I am good and happy with my knee.

Comment from: Mrs. Darlene, 55-64 Female (Patient) Published: March 30

I had total knee replacement on March 13, and all was going well with pain. I do my rehabilitation. I have a pain in the back muscle and the back of the knee. I’m wondering what I can do to relieve my pain. I put pain cream on it, and now it is moving from the back to the front. Wonder if this is normal.

Comment from: I so tired, 45-54 Female (Patient) Published: March 10

I had left knee total replacement, 3 months today. I was doing great, went to physiotherapy, and they put me on 100 pound leg press last week. I have not been able to walk, bathe, get out bed, I don’t know what’s wrong. Doctor is checking for infection.

SLIDESHOW

Exercises for Knee Osteoarthritis and Joint Pain See Slideshow
Comment from: Sorcha, 65-74 (Patient) Published: March 04

I had a total knee replacement two weeks ago today. I have still got staples in, I’ll get them out today. The pain is terrible in the knee and down the back of my leg, also in the ball off my leg a bit like sciatica. Painkillers do not seem to work.

Comment from: Spirit, 55-64 Female (Patient) Published: March 03

I had a total right total knee replacement on January 21st. My leg afterwards was dark purple and swollen from my ankle to my buttock. I’m still having difficulty walking. My knee swells and tightens when I’m up moving. Not sure if this is normal.

Comment from: Linda, 55-64 Female (Patient) Published: February 25

I had a total knee replacement in November and took every precaution to avoid a clot but 2 weeks out I developed a huge clot, from ankle to groin. I had to stop therapy and ended up with stiff knee. I was back in in January for manipulation and was still stiff, till swollen and hurting. I’ve lost weight and the depression is unreal. I think my doctor is going to go back in and suction the scar tissue out. I am trying to find out about massage therapy.

Comment from: Quicksilver68, 65-74 Male (Patient) Published: February 24

I had a left total knee replacement 6 weeks ago. I stopped using the walker at 2.5 weeks and stopped painkillers at the same time. Ice works wonders! I’m back at work and the discomfort only gets really annoying when I sit for long periods so I get up and walk around, and the pain goes away. Walking is fun now and for the most part the leg feels pretty normal. I do my exercises as directed. Every day gets better. I’m 68 and super happy with the new knee.

Comment from: CWC, 45-54 Female (Patient) Published: January 27

I had total knee replacement on January 2. It went well, I started going to physiotherapy out in town this week. I've started to have a searing pain on the inside of my knee when I stand. It passes fairly quickly, but takes my breath away. Wonder if anyone has experience with this, maybe it is nerve based. I'm doing fairly well... 106 flexion, can ride bike slowly for ten minutes, I am walking with a cane and driving short distances. But this pain is new and really worrisome. Any thoughts are much appreciated!

Comment from: Rambling Rose, 65-74 Female (Patient) Published: January 21

I had my right total knee replacement and didn't have any therapy for 2 weeks afterwards, but now I have been in therapy for a month and everything is going awesome. I have an awesome doctor, an awesome therapist and I would not hesitate to have my left knee done if it had to be, no problems.

Comment from: Mjm, 55-64 Female (Patient) Published: January 20

I am a 62-year-old woman who had total knee replacement surgery on December 3, 2019. I only used the walker for three days and then switched to a cane for a week. I haven’t needed any assistance devices since then. After four weeks my range of motion is 127. I went back to work six days after surgery part time and I’m now back full-time. I started driving after three weeks. All that said, I still can’t sleep. I get pain on the inside of the knee at night which keeps me awake.

Comment from: Strong again , 65-74 Female (Patient) Published: November 19

I am 67 with severe bone on bone arthritis in both knees. I had a difficult time getting referred for surgery for many reasons. I finally found a treatment plan and a great surgeon. My surgery was successful and no complications as of now a week later. Anyone suffering like this do your research and don't take no for an answer. Also get in the best shape you can prior to the day.

Comment from: Diane, 65-74 Female (Patient) Published: November 15

I am 66 years old, and had total right knee replacement on August 26, 2019. I was walking without any assisted devices after 7 weeks. At the present time I am almost pain free, no swelling or redness noted. I continue to exercise, and my surgery and physical therapy were a success. I am doing good.

Comment from: Nana Connie, 55-64 Female (Patient) Published: October 24

I had my left total knee replacement 3 weeks ago. I started physical therapy (PT) on the 3rd day after replacement. Last night, which was 3rd week, my knee was burning and stinging more. I took a picture of the incision and it showed, in the middle of my kneecap a stitch from inside was sticking out. When I awoke this morning the stitch was gone but pain and stiffness was more. There is still swelling also. I have PT scheduled again today and nervous about trying to go. Therapy seems pretty intense, so worried it might open up. It was closed with glue.

Comment from: Big ale, 45-54 Male (Patient) Published: October 21

I'm 6 months post total knee replacement operation. I am 48 years old and can only get a 70 degree bend. My physiotherapist is confused after giving me hands on massaging and hydrotherapy. My ham strings are really tight. I am being referred back to a consultant at the end of the month as now they are saying something about a capsule at the back of my knee. Frustrated to the core.

Comment from: Patient, 65-74 Female (Patient) Published: October 17

I am 66 years, had a knee replacement done on the 13th of September 2019. It is now 5 weeks and I am in lots of pain. The painkiller recommended by the doctor eases the pain and when worn out, the pain returns. I can walk and still use the help of a walker.

Comment from: KathyR, 65-74 Female (Patient) Published: October 08

I have had post total knee replacement pain. It has taken 7 months to finally get the treatment I needed. It turns out I had an entrapped saphenous nerve that was finally relieved by a nerve ablation procedure. Prior to that, I had been made to feel that I just wasn’t working hard enough on my rehabilitation, that a manipulation under anesthesia would help (it didn’t), and was prescribed Dynasplint which just made it worse! Of course, no pain killers helped, not even gabapentin. My physiotherapist referred me to a pain/rehab doctor and miracle!

Comment from: Beckysue, 65-74 Female (Patient) Published: September 23

I am 2 years post total knee replacement surgery and just wondering what supportive supplements will help rebuild tissue or help with minor pain I feel occasionally.

Comment from: jean, 65-74 Female (Patient) Published: September 19

I too am one of those who wishes she had never had the knee replaced but the doctor said I was bone-on-bone which I have been for 35 years after I broke my right kneecap. Eighteen months later I have pain behind the knee, and stiffness. My orthopedist never screened me for possible back problems which was 'discovered' after I was making virtually no progress in physiotherapy (PT). Despite going through PT twice, I was not getting my leg strength back. I have a slipped disc, impingement of nerves, and severe spinal stenosis.

Comment from: PRios, 55-64 Female (Patient) Published: September 10

I’m a 62-year old female who had always been active. I had my left total knee replacement on July 1, 2019, so I am about 9.5 weeks post operation. I had only very little pain that was managed very well with OTC medicines. I’m still in physiotherapy, and have returned to work part time 3 weeks ago. I am faithfully doing my exercises, and have great range of motion and extension. I am riding the recumbent bicycle, on the treadmill (not fast) and going to water aerobics 2 times a week. It’s important to keep your weight down and to do your physical therapy.

Comment from: Slim5555, 65-74 Female (Patient) Published: July 30

I too have nerve pain in both my femoral and peroneal nerves since my total knee replacement (June 11, 2019) and discharge June 23. Today is July 23, I also have numbness surrounding the knee, and it's in an eight-inch radius. I experienced neither of these conditions on my left leg, after both a unicompartmental and the eleven months later a total knee joint replacement. Wonder if anyone else has experienced either or both of these conditions. Thank you.

Comment from: John M, 65-74 Male (Patient) Published: July 30

Twelve weeks ago had full knee replacement. Many I see complaining of pain seem to not be exercising daily. Yes, it will hurt but you fighting adhesions. I also got weight off before surgery plus worked out for some months to get good muscle mass. I am 71 and ready now to go back to full top grade cricket umpiring. Only minus is being woken during the night with pain. Should take medicines but every day is a little better. Work hard and you will be rewarded.

Comment from: Vicki, 55-64 Female (Patient) Published: July 09

I had my total knee replacement done 5/23/19. I ended up in the nursing home for 3 weeks, after being in hospital 4 days; therapy was awful. Today 7/7/19 I still have pain every day. Feels like I'm carrying a block of cement around. Pain is awful in my shin and knee.

Comment from: Mountain Girl, 65-74 Female (Patient) Published: June 27

My total knee replacement was 3 1/2 years ago (February 2016). I had pain and problems, and 3 months after surgery I had a manipulation for scar tissue. After 1 year my surgeon gave me up to another doctor in the practice who initially said flexion instability, but x-rays show everything is ok. I have been to 4 additional doctors, chiropractors, Chinese medicine, shock wave technology, metal allergy testing, etc. It feels like a leather belt is pulled tightly around my kneecap. Front and back are swollen and warm to the touch.

Comment from: Steve, 65-74 Male (Patient) Published: June 24

I had total knee replacement 6 months ago. I've been in extreme pain ever since. I have been back to the surgeon three times and for a second opinion one time one month ago. Everyone says to give it more time, and nothing appears to be wrong. There are days that I literally cannot walk. I am very angry and sorry that I ever had the surgery to begin with. The pain is ten times worse now than prior to surgery. Doctor says there is nothing they can do.

Comment from: 3347, 45-54 Male (Caregiver) Published: June 18

My husband had double knee replacement in August 2019. He is still walking with cane, holding tables, loses balance and falls. He has fevers, clicking, major and constant pain. He is going back again to the doctors to see if there is an infection. There are no signs of swelling, just lack of mobility, and strength, also balance.

Comment from: Gigi, 55-64 Female (Patient) Published: June 07

I am a 61 year old woman who had double knee replacement in January of 2019. I did great! I had 90 degree bend in one knee the first day of therapy. I did everything I was told to do and I’m back to playing golf, and gardening! I can walk up and down the stairs one foot in front of the other. I haven’t iced my knees since my therapy ended and am wondering if maybe I should resume that now that I’m active again.

Comment from: Stevo, 55-64 Male (Patient) Published: May 29

I had both knees full replacements, left in 6/2018 and right 12/2018. Painful commitment to start but well worth it. I am 58 years old at 5’ 7” and 155 lb. and got off the narcotics in the first week. I had physiotherapy and exercise including gym daily, and ice is your friend; I used the ice machine! I had not been able to run in 25 years so a little numbness, and stiffness in the morning is no big deal and I can walk and stand in comfort as long as I want. Great results at 6 months, everyone is different I know, but pain is good for healing!

Comment from: Ladybird, 55-64 Female (Patient) Published: May 23

I had total knee replacement on my right knee on May 13. It was my 6th surgery on that same poor knee! This is going to work perfectly! An injected painkiller Exparel kept any discomfort at bay for the first 72 hours. I took two opioids in the few days since surgery but switched on day 4 to Tylenol and ibuprofen. No problem with pain! My surgeon has me wearing full length compression socks on both legs 24/7 for 3 weeks; brilliant. I started physiotherapy yesterday. My physiotherapist said that I should be elevating more and then icing.

Comment from: Barthy, 65-74 Female (Patient) Published: May 20

I had right total knee replacement on March 27, 7 1/2 weeks ago. The first 4 to 5 weeks were very hard. I progressed slowly but probably due to the extended position of my leg during the surgery I developed a sciatic compression which has added more pain and I am getting physiotherapy to try and alleviate it. I had a lot of thigh muscle pain and muscle cramping, and also nerve pain from the severed nerve. Neurontin helped immensely and I stayed on it for a month. Ice machine was a godsend. I am sleeping better at 6 weeks. I have turned the corner!

Comment from: Caremlou, 65-74 Female (Patient) Published: May 15

I had right total knee replacement (TKR) on March 8th, so 9 1/2 weeks ago. At this point I am using Tylenol regularly. I am using cane for longer distances only. I have finished physiotherapy and doing exercises at home. TKR was so much more painful than the hip replacement I had 6 years ago. I am still having to ice and have trouble sleeping at night. Surgeon tells me that is the last to go and to expect another 6 to 8 weeks of that. I am back to driving and doing most pre-operation activities. Patience is a virtue wit TKR, it does slowly get better.

Comment from: Les, 55-64 Male (Patient) Published: May 14

I underwent bi-lateral total knee replacement on January 18, 2019 - that’s right, both at the same time. The hardest and most painful thing I’ve ever done was getting the movement out to 130 degrees. It only took a few days of self torture. Since week 12 I have been walking up to 5k, cycling up to 20k, dead lifting 35 kg, and doing leg press and leg lifting. Not all on the same day of course. Unfortunately I now have severe kneecap pain. I now can’t walk upstairs one foot/step after the other.

Comment from: Fed up, 65-74 Female (Patient) Published: April 30

It is 5 months since my total knee replacement. I’m wearing a brace to center e my patella as it slipped to the side. I also can’t raise my leg. I’m exercising and going to the gym.

Comment from: Theodore , 65-74 Male (Patient) Published: April 23

I am a 71 year old male who had been bow-legged since my youth. I had my total knee replacement right leg on Tuesday. I went home that evening. Pain was mostly at 4/10 level. For pain I declined the offer of opiates and used NYS medical marijuana program. Saturday is the 5th day after surgery and no major pain except when doing physiotherapy.

Comment from: Starr3295, 55-64 Female (Patient) Published: April 22

I had total knee replacement (TKR) of my left knee on April 8, 2019. There is a lot of post-operative pain. More than I’d like to say. My whole leg aches and I’ve had a difficult time doing in-home therapy. I am gaining Improvement in every area except the heel slide where my mobility has reached 85. That’s where I was before leaving the hospital. So discouraged. Prior to the TKR, I had the ACL (anterior cruciate ligament) replaced in the same knee twice over the past 20 years, and the pain is not even comparable. It is much worse with TKR.

Comment from: MatTulKnee, 65-74 Female (Patient) Published: April 17

I am a female 70 years old and had left knee replacement surgery in June 2018. Recovery was about 16 weeks, and I used ice packs (heat, if stiff after 10 weeks), and CPM machine, home and outpatient physiotherapy. I was on Percocet for 9 weeks, then Norco, and weaned off by 13 weeks. I had right knee surgery in February 2019. I used ice packs, etc., been on Percocet for 9 weeks and will be switching to Norco this week. Supposed to be off it by early May. This knee surgery has been more difficult than the first one due to being in more pain.

Comment from: Jevans3536, 55-64 Male (Patient) Published: April 09

I just had a total right knee replacement surgery done on March 28th. I stopped taking the Oxycontin after day 4 and have been using Tylenol since. It feels like something was done to my hip. I can’t understand why my right hip could be so sore.

Comment from: MarSue, 65-74 Female (Patient) Published: March 29

I had total knee replacement surgery on my left knee in June 2018. Other than knee pain, the first 3 weeks after surgery, I gradually felt better with home physiotherapy (PT), outpatient PT, CMP machine, Percocet, and then Norco pain medicine. I was weaned off pain medicines 13 weeks after surgery. In early February 2019 I underwent total knee replacement surgery on my right knee. Even though the surgery and recuperation has been the same, I have experienced more pain and slower recuperation. It will get better.

Comment from: ChrisS, 45-54 Female (Patient) Published: March 18

I had my left total knee replacement on January 17 2019. Everyone tells me I’m doing really well. I can go upstairs but I can’t go down two legged yet. I can sit in a chair comfortably but I have a hard time getting up from a chair or couch, it hurts a lot. I still have significant swelling and discomfort. I’m becoming discouraged.

Comment from: Deborah, 65-74 Female (Patient) Published: March 05

Now it 5 months post total knee replacement. My recovery has been slow. My range of motion is good. My problem is pain in the front of my knee on climbing steps and standing from sitting. More upsetting to me is an ache at the back of my knee - in the muscles, I think. This started about five weeks ago. This is present with each step and gets worse with distance. The muscle also feels tired. My walking is limited to 10 to 15 minutes. This cannot be normal at this stage!

Comment from: June, 55-64 Female (Patient) Published: February 26

I had a part knee replacement on right knee in 2012 and it was really good until I fell straight onto the knee cap last November 2018. Now it is sore, burning and achy and not as good. I had a total knee replacement June 2013 and nearly six years on I'm still taking painkillers as I have nerve pain and neuromas on the scar which are unbelievably painful. It has completely ruined my life, I can't walk far, stand for long, or exercise at all. Think long and hard before you have this operation! I wish I had.

Comment from: Marion , 75 or over Female (Patient) Published: February 13

I had right total knee replacement (TKR) in 2011 and left TKR March 2018. I also have psoriatic arthritis. Knee pain has never gone away but range of motion is greatly improved. I do water aerobics 3 times a week. I am still taking 5 mg oxycodone daily and have been for many years. I cannot take anti-inflammatory medicines because of stomach pain. All in all I think I am doing pretty well for 78 years old.

Comment from: Julie, 65-74 Female (Patient) Published: February 12

I am 14 months out from total knee replacement (TKR). Surgery was worse than most due to previous tendon surgery and 25 years of arthritic tissue. Post-surgery extremely painful, and was in the hospital 5 nights. I was released on walker and initial rehabilitation came to me. For 1 month I was on crutches, several months with cane, and then slow progress. Pain stopped at 8 weeks. I had opiates only 1st 10 days with CBD oil 2nd month. I am still gaining muscle strength as atrophy and limp had set in prior to TKR. Rotation is about 75 percent now. I was the worst case scenario, so if I can do it so can you.

Comment from: Jennifer , 45-54 Female (Patient) Published: February 05

I had my double total knee replacements on December 24. I did not expect the pain to be quite this bad but it’s a different kind of pain. It’s more like soreness, aching deep inside the bones. That has subsided mostly and now I am just dealing with the stiffness and tightness. It does get better, you just have to be patient. It seems to be one step forward and two steps back. My biggest thing is trying to find a comfortable place to sleep. I was told not to put pillows underneath the knees but I did.

Comment from: Dave, 55-64 Male (Caregiver) Published: February 05

My husband has just come out of hospital after 5 days after having a total knee replacement. He has lost 2 and a half stone, is hardly eating, and is having pain throughout his body, especially lower back, buttocks, and down his entire leg. I wonder if these symptoms are normal. I also tried talking to surgery asking when the stitches need to come out, and if a nurse can come out to take them out. I was rudely told to put him in a taxi to surgery even though I've told them he can hardly move as his other knee is totally shot too.

Comment from: Silverfox-MP, 55-64 Female (Patient) Published: January 31

I had a total knee replacement on January 18, 2019. I stayed in the hospital for 4 days waiting to go to inpatient therapy and was sent home instead, saying I was doing fine. The pain I'm experiencing is in my thigh and the knee cap area. I'm also experiencing burning in the area. I can't get comfortable whatsoever. I do not take narcotics, only Tylenol. I wonder if anyone else is having these painful experiences, if so please share.

Comment from: Akhowe, 25-34 Female (Patient) Published: January 24

I had my total knee replacement on the 8th of January. I too am having lots of pain and I have told them from the very 1st day that I felt something was wrong. They keep saying it is normal but I don't think so. At the hospital I woke up with a fractured or sprained ankle. At 1st they said it was just broken blood vessels but when I went to physical therapy she asked me if I fell or something! She then said I must have moved wrong during surgery. They are setting me up with another surgeon for a 2nd opinion. I can hardly walk, I'm in pain a lot and the swelling and heat sensations are too much. I can't even bend my knee just a little without pain shooting through my leg.

Comment from: Mart48, 65-74 Female (Patient) Published: January 22

I’m a 70 year old female. I had knee replacement surgery on June 25, 2018. I was in the hospital for 3 days then went home. Second night in the hospital I was awake part of the night in pain. I was on an IV of Percocet, 2nd day they started me on Percocet pills. My first night home I was in pain most of the night, but after that I didn’t have as much pain. I was on Percocet 5 mg for 9 weeks every 4 hours, then every 5 hours and then every 6 hours. Then I went on to Norco 7.5 mg 1 pill every 6 hours for 2 weeks and then weaned off the Norco. By my 12th week since surgery I was off the pain medicine and only took Aleve when needed.

Comment from: derbear, 35-44 Female (Patient) Published: January 21

I had a total knee replacement on 1/7/19, 11 days ago. I stayed one night in the hospital. I have been doing well with mobility and only needed the walker for a couple of days and quickly switched to going to physical therapy (PT) rather than having in home PT. I am in so much pain and I can only go 3 hours before I need ibuprofen, or Percocet. They set me up with a CPM (continuous passive motion machine) which has been a life saver. I ice 4 to 6 times per day and do exercise/stretching at home and keep my leg elevated. Still my knee is swollen, hot, and I have bad bruising.

Comment from: Diana, 55-64 Female (Patient) Published: January 18

I had a total knee replacement over two years ago and am still in pain. I recently got a second opinion and was told the tibial component wasn't placed correctly and that the pain behind my knee is probably a torn posterior cruciate ligament. Now I'm getting yet another opinion on a second knee replacement. I'm pretty stressed out. I wonder if anyone else had a similar experience.

Comment from: KrisK, 55-64 (Patient) Published: January 15

I had total knee replacement on my left knee on 1/8/19. I am walking around the house without an assistive device but use a cane outside. The pain is present but much less intense than I thought it would be. I have been practicing listening to my body and sleep a lot but feel great and am so glad I did this. By the way, I am 56 and was bone on bone as a result of a college age ski accident.

Comment from: Sue k, 65-74 Female (Patient) Published: January 15

I had a total knee replacement four weeks ago. I'm getting on with the exercises ok but the tibia bone by the shin is so tender and very painful to walk on, I feel that it's holding me back.

Comment from: TKAMESS, 55-64 Female (Patient) Published: January 15

I had total knee replacement in late October 2018. My question is if anyone has had severe knee and leg swelling 11 weeks post operation. My leg feels like a 100 pound peg leg if I stand/walk for 30 minutes. I have good flexion and extension when sitting but cannot bend leg when walking. Pain radiates up the thigh and down my leg when I am up on it for more than 20 minutes. I am fatigued when trying to go about daily activities. I am loosing quad strength daily. Cannot go up a stair.

Comment from: Grace 1973, 55-64 Female (Patient) Published: January 15

I had right total knee replacement on December 3, 2018. The swelling has gotten much better, until the end of the day. I completed 2 weeks of physical therapy and my flexion is 125 and extension (goes flat while lying down, but still a minor bend while standing) have improved substantially. I get sharp pains frequently just to the inside of the new knee cap. I'm still taking narcotics and want to start weaning down as soon as possible. With the pain I'm having from some of the exercises I don't think that's going to happen anytime soon.

Comment from: DeeDee , 55-64 Female (Patient) Published: January 08

I had a total knee replacement December 3, 2018 with a small complication with my knee cap. The doctor had to manipulate my tendons to make the knee cap stay in position. My range of motion is great and I am walking independently but I have pain every time I move my knee, and it pops and clicks. I thought it was my new joint and my doctor says it is normal but the pain has gotten worse. When I move my knee cap side to side it pops and clicks. My knee cap is catching on my new joint replacement. More surgery perhaps.

Comment from: Lanace, 65-74 Female (Patient) Published: January 08

I had a left total knee replacement on 10/24/18. Everything went well. I have full flexion and extension and not on any pain medications. I am using the elliptical machine every day for about 30 minutes. My problem is that I am unable to stand for very long without discomfort and can’t walk very far (maybe 1/2 mile) without having to rest. I am doing my strengthening exercises every day. My primary care physician said it would be a year before the knee felt normal. Fingers crossed.

Comment from: Skippy, 65-74 Female (Patient) Published: January 07

I had left total knee replacement on 8/13/2018. Physical therapy was difficult, I got 112 percent at 4 months then dropped back to 100. Now I get pinching behind knee if I try to do the stairs. Numbness has increased from outside to the top of my knee. Clunking sounds too are there now. I wish I had never decided to have the surgery. Knee was bone on bone but pain was never as bad or as long as this experience. I am having sharp pain in ham strings too. Pain at night at times. I will never consent to surgery on my other knee!

Comment from: seagullman, 75 or over Male (Patient) Published: January 03

I had robotic left knee replacement on October 15, 2018. I am having nothing but problems with the knee; constant ache, sometimes severe. I was given home therapy for two weeks and then released. I asked the doctor about continuing therapy and was told I do not need it. I also did not have the mechanical knee mover for the same reason. I was told to just walk and exercise. I had my right knee done 32 months ago by a different doctor using the old procedure and had no problems. Now fighting scar tissue.

Comment from: Woody, 55-64 Male (Patient) Published: January 02

I had a total knee replacement 4 weeks ago. No pain in knee. None. I am making progress on flexibility too! But I developed a hematoma on my calf. Entire calf is hard as a rock and painful to the touch. But the worst part is it often now starts to clench and it feels like a charley horse is coming on. Physiotherapist friend recommended lots of stretching. Surgeon says hematomas are common so why do I find no stories about it anywhere! My edema has something to do with this it seems but no one mentioned it.

Comment from: Danny B, 55-64 Male (Patient) Published: January 02

I had a total right knee replacement on 12/4/18. I had issues with this knee for years. I was in the hospital 2 days, with minimal pain and 115 degree range of motion. I came home and had in-house therapy for 2 weeks with 122 degree range of motion but had swelling and couldn’t straighten it. I am still taking pain medicine 1 tablet twice a day. I started outpatient therapy a week ago and let me tell you, I’m more stiff and sore than before because she works on the hamstring and other muscles for about 20 minutes then ices. She says it will improve.

Comment from: Tennisme, 65-74 Female (Patient) Published: December 31

I had total knee replacement in September 18. Good surgery I guess. I want to be one of those “oh, this has changed my life for the better” people. Physical therapy worked on iliotibial band for the first 6 weeks. I got all flex and range ok. Now at 3 months I have bleeding around the joint. Perhaps synovitis. I have never been on thinners. My knee blows up in minutes, repeatedly, with pain! Looks like a 16” soft ball! I can’t move it or stand. No help from the doctor’s office as yet. They act as if I’m just in anxiety. This is awful. Will I ever have my active life back, or did I goof!

Comment from: pat, 65-74 Female (Patient) Published: December 26

I limped for years and had total knee replacement. I developed atrophy in the thigh and compromised my hip. Now 8 weeks post operation I have hip pain and my muscles are still atrophied. I went for physical therapy 3 times a week. Nobody warned me of this condition pre-operation.

Comment from: Tommy, 55-64 Male (Patient) Published: December 21

Today is week 4 and 3 days after my total knee replacement (TKR) of the right knee. It hurt badly 2 weeks, but is getting better every day. No pain medication. They sent me home with prescription Tylenol 3. I have been taking over the counter Tylenol. I use ice packs or heat. Leg is still not straight yet. I was back to work at 3 weeks doing light duty. I had my left knee TKR in 2016. I am glad I did it, tired of pain!

Comment from: ALucas, 35-44 Female (Patient) Published: December 18

I had total left knee replacement on 8/27/18. I had the worst experience. I had manipulation at the 7 week mark and went back to work at the 9 week mark. It's been 15 weeks since surgery and I still don't have full range of motion. I have nerve pain every day. I'm on gabapentin but that only lightens the pain. I limp after sitting for a period of time, when the weather is bad and when I've had a long day. Every day I regret the decision to have this done. Think long and hard before getting it done.

Comment from: Jen, 45-54 Female (Patient) Published: December 18

I am 3 weeks post operation for total knee replacement of my right knee. I am having a terrible time sleeping. I can't sleep no longer than 2 to 3 hours at a time. There are times I just pace the floor from the pain even with Dilaudid. I have been trying to go longer times without pain medicines and just use ibuprofen. This is a tough recovery. I am walking without any assistance and have 84 range of motion and 10 flexion. Physical therapy (PT) is painful and I do my PT at home also. I am so hoping this gets better and the pain eases up soon, and I can sleep.

Comment from: Neka76 , 35-44 Female (Patient) Published: December 12

I had a total knee replacement 3 weeks ago. It was painful, then a week later it got better. Now I don’t know why, it hurts worse and I do everything the doctors said to do. Walking feels like a lot of pressure and tingling. My foot goes numb. I hope it gets better.

Comment from: Cando, 55-64 Male (Patient) Published: December 11

I had bilateral knee replacement on November 5, 2108. I am a little over 4 weeks out and I went back to work on week 3 with doctor’s permission. I am lucky so far and am happy with my recovery so far. I put in a lot of pre-operative work before surgery, lost 25 lb., changed diet, purchased a stationary bike and did 8 to 10 miles for 3 months before surgery. This is what has helped my recovery faster, and being steadfast on exercises after surgery. I am still very stiff and have pain at night which makes it hard to sleep.

Comment from: Richard, 65-74 Male (Patient) Published: December 11

I had my right knee replaced in March of 2010 and my left knee replacement in December 2012 by 2 different surgeons. With my right knee I came home 3 days after surgery, and my left knee I was sent home the following day. I was very active prior to the surgeries. I am 73 now. I was very motivated to do the physical therapy exercises and both knees are at around 140 degrees bending. I ride a bike outside around 15 miles a day and on the days I don't ride my bike I walk 5 miles. The replacements are the best thing I ever did.

Comment from: Amanda Blackwell , 45-54 Female (Patient) Published: December 07

I had my total knee replacement 3 weeks ago. I am 45 years old. The 2nd day the pain was off the scale and 3rd day it was definitely better and less intense. I have to use my ice pack 3 to 4 times a day. I use R.I.C.E. method. I have been on morphine for 3 weeks an now on co-codamol. The pain has started to be better after 18 days. I stick with doing physiotherapy 3 times a day and a short walk each day. The worst pain for me is sitting on a chair with my legs down and not propped up. Or standing too long whilst out.

Comment from: Gilly, 55-64 Female (Patient) Published: December 07

I turned 57 whilst in hospital. I had bilateral total knee replacement 3 weeks ago. I had 105 bend in hospital and could straight leg raise both legs individually. Surgeon saw me at 2 weeks post operation and said I was where most people are in two months. All sounded great, so I lowered my medicines significantly... probably a mistake, as bending hard I have moments of pain, but trying to push through. Knee pain from before is gone, now just frustration of moving more normally.

Comment from: In pain, 35-44 Female (Patient) Published: November 29

I had total knee replacement in June 2018. If I could go back and not have it done I would. It is 5 months out. I can’t straighten my leg out at night, have to sleep on fetal position. It hurts to get up from my bed, from a seated position or something as simple as getting out of the tub. Think 2, think 3 times before you have it done. I'm in more pain now than I was the day I was discharged from the hospital. I've been back to work 6 weeks after my surgery. I'm a certified nursing assistant on my feet all day. Pain is here to stay.

Comment from: Bunny , 75 or over Female (Patient) Published: November 28

I had my total knee replacement on October 31, 2018. I am 77 years old. Things went great until I decided to manage pain medicines myself. I don’t recommend that, I think one should follow as written. The knee would be okay but back flared up something awful. It is hard to sleep with pain from both knee and back, I am ready to drive but have not been released to do so.

Comment from: Cattknap, 65-74 Female (Patient) Published: November 27

I had a total knee replacement 5 days ago. I am in good physical condition, regularly do yoga and Pilates, adding fairly intensive knee and arm strengthening exercises 8 weeks prior to my surgery. I am allergic to all narcotics so opted for a spinal, and I was awake during the entire surgery. I have had relatively very little pain. My biggest complaint is a burning in my stomach from the anti-inflammatory drugs. I use an ice therapy machine 3 times a day. I sleep well at night with almost no pain.

Comment from: Cathy, 45-54 Female (Patient) Published: November 27

On October 4th I had total knee replacement, never again! I am 7 weeks post operation, pain awful, stiff knee, and surgeon won’t help; said his job was on the operating table, rest up to my family doctor for pain and depression, and physiotherapist and me! Told me go back to work this week, I can’t drive yet, but expected to go to work full time, full duties, 8 hours on my feet, carrying heavy loads. I’m far from ready. I’ve done all exercises assigned to me both at home and at the physiotherapist’s, will it ever get better!

Comment from: spacyhood44, 45-54 Female (Patient) Published: November 27

I am 7 weeks post total knee replacement and feeling great. I have 116 bend. Therapy is your best friend although I know it can be painful. I do exercises all the time now because it decreases my stiffness. Two days ago I had a needle like pain, one bump under the skin came up, and it moves when I move my leg. The pain is every once in a while and doesn't last long but the pea sized bump is weird.

Comment from: Wonder Woman , 45-54 Female (Patient) Published: November 27

I had my total knee replacement (left) on October 17, 2018. I had 72 degrees of bend at 2 weeks. Five weeks out I'm at 95. I struggle for every degree. It is stiff and takes time to move well. I believe only time will tell. I'm weaning off pain medication because I'm so tired of taking it and it makes me feel awful. This intensifies the pain and decreases range of motion! I'm hopeful it will improve.

Comment from: Dooneymom, 65-74 Female (Patient) Published: November 27

I am post-surgery four weeks with total knee replacement. My range of motion is good but I am still very swollen and I have been unable to cut back on my medicines. I’m reading all these comments on how people only took their medicines for a week or two. I’m wondering if others have stayed on their medicines.

Comment from: Ttyyy, 55-64 Male (Patient) Published: November 26

The knee pain is absolutely ridiculous. I never ever would have gone through a total knee replacement if I had known how painful this would be 2 years later. I am now in a wheelchair and can't walk at all because of it. No one knows what's wrong. I walked into surgery but I never walked again after total knee replacement. Think twice before you ever do it.

Comment from: Tmae, 55-64 Female (Patient) Published: November 24

I had total left knee replacement done on 11-5-18. Never again. The nerve pain is unbearable at times. I can’t sit still for too long or I become very stiff. I am walking with cane and at times on my own. I can’t even imagine having both done at the same time.

Comment from: CathyB, 65-74 Female (Patient) Published: November 20

I had my total knee replacement 1 (right) on March 27, and knee replacement 2 (left), October 16. I am very pleased with 1. I am in recovery for the second. I took pain medicines pretty much just 1 week and half-doses half of week 2. Right knee flexion is at 127 degrees, left knee is pretty close at 124; both knees can straighten. I am doing Pilates, physical therapy and walking 2.5 miles alternating with stationary bike. Only problem is that left leg aches; didn’t happen with the right one. I’m a triathlete and expect full recovery.

Comment from: Mary, 55-64 Female (Patient) Published: November 20

I am just shy of 4 weeks out from my total knee replacement. I never expected this pain. I can flex my leg however cannot bend it. It feels achy and stiff and I'm only at 63 degrees. I needed to have this done however now I'm not so sure. I have cried more in the past 4 weeks than I have in years. I see my orthopedic doctor tomorrow and he has already talked about manipulation under anesthesia. I feel down and can't really do much as the pain, especially sitting, is excruciating. Never again! My right knee is good and if it weren't I'd live with the pain. This has been the worst experience and now I am getting depressed.

Comment from: Deb, 45-54 Female (Patient) Published: November 19

I had total knee replacement on October 30, 2018. All went well besides bruising, but very hard sitting due to it still pain in the back of the knee. It is just miserable. I am walking well and I do try exercises but I also had burns from the strips they used so that was a setback. I wonder if anyone else has pain so bad in the back of the knee. I start therapy in 4 days. Thank you so much.

Comment from: KTG, 55-64 Female (Patient) Published: November 19

I had total knee replacement 4 weeks ago. Opiates make me really sick but I had to take Dilaudid and Zofran for nausea first two weeks, and then stopped. I was also on Celebrex and Tylenol. Just taking Advil now. Range of motion is 115, almost straight. You got to work it, work it, and work it. It will be painful, in fact the first month is terrible. Get an ice machine, ice all day long, keep moving and know it will be several months of discomfort, tightness, pain, but the intensity will lessen. It’s hard not to get depressed, but stay positive.

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