Patient Comments: Thyroiditis - Share Your Experience


How did you find out you had thyroiditis? Please share your experience. Submit Your Comment

Comment from: Pamela, 75 or over Female (Patient) Published: February 09

I have Hashimoto’s thyroiditis and pernicious anemia. Mayo Clinic diagnosed. Since I was untreated for at least 6 years, symptoms will not get better. Levothyroxine and B12 injections keep progression in check. Serious diseases! Few doctors are aware, or they disregard.

Comment from: mommyjen7, 55-64 Female (Patient) Published: May 21

I ended up in the hospital with severe high white blood cell count from thyroiditis. Took them three days, a spinal tap, MRI, isolation until they finally did an x-ray of my thyroid because I kept telling them I had a sore throat on the outside of my throat. Severe hyperthyroidism, treated in hospital for 4 days and then hypothyroidism for three years. Just trying to go off medicine now.

Comment from: crystalline, 45-54 Female (Patient) Published: July 30

I am a cardiac patient who experienced joint pains in my right arm from the wrist joint up to the shoulder joint seven months ago. I went to see a surgeon who upon physical examination informed me that I had a lump on my thyroid. He sent me to do blood tests as well as CT scan and when the results came out, he told me that I was okay and we should observe the behavior of the lump. After 3 months the pain in my arm joint became unbearable and I saw another surgeon for second opinion who informed me after further tests that I also had cervical and lumber spondylosis. He put me on injectable calcium and physiotherapy and the pain in my joint has subsidized but the lump in my thyroid is more prominent now and he still wants to do further tests.

Comment from: nfc, 45-54 Female (Patient) Published: January 14

At the end of October, 2013, I had some mild neck pain, starting on the right side in the area of my thyroid. I also got a bad cold around that same time. After a couple of weeks, the pain got worse, and I also discovered my blood pressure was running a little high. Normally my blood pressure is fairly low. I had a sonogram done of my thyroid. The doctor wasn't too concerned about it. I had nodules that had been present on previous scans, and there was no change in them, however, there were some texture changes on the right lobe. In the meantime, I started experiencing anxiety, which made my blood pressure go higher, which made my anxiety get worse. In the beginning, I would get a mild shaky feeling, and I thought it was blood sugar dropping because I had eaten too much of something sweet, i.e., cookies, donuts, etc.! Finally, I had blood work done and got in to see the doctor, this was about the middle of December 2013. By this time, the right lobe was not as swollen as it had been, but the pain had spread over to the left side, and it was now swollen. Because of my symptoms and labs, I was given the diagnosis of thyroiditis, mild-hyper. I had lab tests done again a couple of weeks ago, and they are getting better.

Comment from: Dana , 45-54 Female (Caregiver) Published: January 26

I have had what was originally diagnosed as Graves’ disease, for over 27 years. However, I have had the clinical list of what constitutes as lupus which covers just about everything on the diagnostic clinical signs and symptoms. Being on 125 mcg levothyroxine daily is rare to have a lab value of 1.140 TPO and the rest of thyroid lab tests are negative, but I still have the clinical signs of lupus with only one positive ANA marker. Who knows, perhaps there is a new disease and integrates both as a new discovery.

Comment from: Linda, 55-64 Female (Patient) Published: December 04

I was told I had subacute thyroiditis. That means your TSH is low and you T4 is normal. Now my T4 is going up. I wonder if this has happened to anyone else.

Comment from: Katydid, 65-74 Female (Patient) Published: July 30

I have had hypothyroidism since I was 19 and always have had trouble controlling my weight. While dieting and exercising on my doctor's advice, my weight just fell off. When it fell below my usual minimum and my annual thyroid level check started to increase, he immediately ordered other tests and diagnosed thyroiditis. I then started to search for symptoms and found that I had the jaw and neck pain and increased sex drive (never had that before). It took about six to eight months for the levels to settle down, and after two years, I'm back to my normal self.


Where is the thyroid gland located? See Answer