Patient Comments: Superior Vena Cava Syndrome - Treatment


What kinds of treatment, including medication, have you or a relative received for superior vena cava syndrome? Submit Your Comment

Comment from: LaDonya, 45-54 Female (Patient) Published: June 19

My condition is a combination of all superior vena cava syndrome and Steel syndrome. My face and jugular veins make me look like the Hulk every morning, also causing my throat and windpipe to swell. This causes wheezing and hoarseness. I am a dialysis patient so you would think fluid removal would help but it doesn't. I periodically collect fluid on my lungs and abdominal wall requiring needle aspirations. In the last 6 months my condition has causes several hospital stats for treatment. At this point no immediate cure is available.

Comment from: Mzery, 45-54 Female (Patient) Published: February 23

I was diagnosed with superior vena cava syndrome after my portacath was removed. I had been treated for stage IV colon cancer, and finally got my port removed. It was difficult to get out as tissue formed over it. In a few short months, the entire vena cava was occluded as were both jugular veins and the main veins on both arms. My vascular surgeon attempted to relieve some of the pressure by trying to enlarge my collateral veins. It helped a little but still breathing and swelling are a huge issue. Diuretics helped a bit too as well as avoiding lying on my right side. I have no clue why but it seemed to help a bit. Also I sleep on a wedge and 5 pillows to stay upright more when I sleep.

Comment from: pt65, 65-74 Female (Patient) Published: February 07

I had swelling of the hands, arms and my carotids were distended. It feels like I have a concrete block sitting on my chest and difficult to take a deep breath. My pulse gets up to 130s when I exert myself. Sure enough the CTA found I had superior vena cava syndrome due to the port I have in to get IVs. I am going to get further testing to get more answers.

Comment from: Cynric, 45-54 Female (Caregiver) Published: November 29

My husband was diagnosed with superior vena cava syndrome. Our oncologist missed it and I guess the radiologist. Since he had a lifetime of radiation in theatre, he had a double stent put in. It opened it because the tumor was pressing on it.


Cancer is the result of the uncontrolled growth of abnormal cells anywhere in the body. See Answer