Patient Comments: Sickle Cell Disease (Anemia) - Diagnosis


How was your sickle cell anemia diagnosed? Submit Your Comment

Comment from: NSR, 19-24 (Patient) Published: December 15

I have been on tablets for diabetes for the past 10 years. My blood sugar level post lunch has been between 150 and 200. Due to busy schedule, I had to consult another doctor for a periodical checkup. My sugar level was 156/150. The HBA1c reading was 8.1. The new doctor immediately changed the prescription to insulin 12 counts in the morning and 8 counts in the evening. Until I converted to insulin, I never ever felt any symptoms of a diabetic. All of a sudden, I started experiencing every feature of a diabetic, like excess urination, giddiness, hunger, thirst, and fungal formation in the private area. It has been three weeks now. Today, the shocking report is that, my sugar level has shot up above 284 mg/410. The tablets which were administered earlier were Glizid M and Galvus. Present medication is Insuman 12 and 8 points and Galvus 500 mg post lunch.

Comment from: seyi, 25-34 Male (Patient) Published: April 16

I am a 27 year old guy. I was diagnosed of sickle cell disease when I was 2 years old, thanks to my dad because he was a medical doctor who took care of me. Although I had a different kind of life with visits to the hospital. I also had a late brother who had sickle cell anemia that died at the age of 15 but thankfully am still alive today. Though it is not easy because of the everyday use of drugs, I still manage myself well.

Comment from: brownboy, 19-24 Male (Patient) Published: December 30

I just went to the emergency room last night because I have bumps on my forehead. The first time I went was for the bump on top of my head which the nurse said was lipoma not even giving me a CT scan. But last night they gave me one because the bump on my forehead grew and is now getting too close to my eye. The results came back with not only bumps on my head but inside, behind my ear. I’m not sure if this is a result of the lack of blood flow caused by the sickle cells. But now I go to sleep and wake up with headaches.

Comment from: Eunno, 25-34 Female (Caregiver) Published: July 05

I am a Kenyan born. I was diagnosed by sickle by 8 months old. I suffered a lot when I was young kid. Most of my life I spend it in hospitals and I could not do what other kids did like swimming, rock climbing but I thank God now because am 30 years old and I don’t have sickle any more. God changed my blood type from SS to a perfect AA. I give him all the praise and thanks its over for me and I know when I get kids all of them will be healthy.

Comment from: LadyVega, 19-24 Female (Patient) Published: September 10

I have sickle cell (SC) anemia. My childhood wasn't as bad, I had crises throughout my childhood years but few hospitalizations. Once I turned 17 everything went downhill for me. I've had a silent stroke at the age of 17, ongoing blood transfusions, severe pain crisis and right after my 18th birthday I was diagnosed with AVN in both hips (avascular necrosis). I was treated and had surgery a week after diagnosis. After that I would often get infections and by that time I was diagnosed again with bleeding of the eye. I’ve had a crazy ride.

Comment from: salome, 7-12 Male (Caregiver) Published: October 22

Well, it was diagnosed when he was about 9 months old. He could not walk or put his foot down so they ran a full blood count and they found out that he had sickle cell anemia.

Comment from: tbone, 25-34 Female (Patient) Published: October 17

My mother said I was crying uncontrollable at 14 months old but there was no tears and my abdomen was as hard as a rock. When I got to the doctor the doctor realized I had not passed any urine for a long while either. Those were the first signs that my doctor followed. I am now 26 years old, with one child.

Comment from: elaine, 45-54 Female (Caregiver) Published: September 24

All my childhood I would get weak from playing activities with friends. My head would get light headed. I would stop playing until it passed and begin playing again. I would see floaters in my eyes when I got weak from playing sports. I also had body pains that I later found out was a crises. I got diagnosed while away at college. I woke up unable to walk because both knees where affected with pain. The emergency room doctor looked at my yellow eyes and diagnosed me with sickle cell before he did any test. He was correct.

Comment from: Arinze231, 25-34 Male (Patient) Published: July 06

I am 27 years old from Nigeria and was diagnosed as a sickler from childhood. There has never been a year where there is not a massive visit to hospitals. When I have a crisis I don't care about the number of injections I need. All I need is for the pains to go AWAY.


Anemia: Common Causes, Symptoms, Types, and Treatment See Slideshow
Comment from: CatLover315, 35-44 Female (Patient) Published: March 29

From what I was told by my mom, I was diagnosed with sickle cell anemia at 2 years old. My mom said that one day I stopped walking and crawling because my hands and feet were swollen. That's when she took me to the doctors and was told that I have sickle cell anemia.

Comment from: MS. Ann, 55-64 Female (Patient) Published: January 25

When I was a young child I would black out at school. One day I cut my leg and it just would not heal no matter what they did. I was taken to four doctors and the 4th one told my parents I had Sickle Cell Anemia {the Disease} and that they should not have any more children. At this time I was 9 years old.

Comment from: 3-6 Male (Caregiver) Published: March 17

My 4 year old son was diagnosed at his newborn screening. He had his first crises a month ago. He was in the hospital for 3 days and had a blood transfusion. That was scaring me more than him. The doctors told me the crisis was probably brought on by him having the flu two weeks prior and getting dehydrated the day before his crisis. Staying hydrated and fighting infections are his major problems right now. Also if you have a baby and you have to put them in daycare make sure it’s a place that doesn't have too many children and keep them away from the sick ones. My son had to be hospitalized twice after I put him in daycare when he was over a year old. He NEVER got sick until then.

Comment from: smsumrall, 35-44 Female (Patient) Published: January 19

I had a spinal tap and it diagnosed it.


Sickle cell disease is named after a farming tool. See Answer