Patient Comments: Sickle Cell Disease (Sickle Cell Anemia) - Symptoms

Question:

At what age did symptoms of sickle cell anemia first appear in someone you know? Please describe other symptoms. Submit Your Comment

Comment from: Noor, 19-24 Female (Caregiver) Published: May 15

My friend got diagnosed with sickle cell anemia when we were doing our engineering. First she showed symptoms such as joint pains then it began to swell up. Along with that there was slight fever too. Finally we decided to consult with a doctor and he recommended to do a blood test. The result showed she was anemic. And with a few more tests, the doctors confirmed that it was sickle cell anemia. All the test were done and now she is undergoing blood transfusion.

Comment from: MLJ, 25-34 Female (Caregiver) Published: May 08

My child was diagnosed with sickle cell anemia at about two weeks old. She received excellent medical care and continuous monitoring all of her life. She averaged 3 or 4 hospitalizations per year as a child and young adult. Most hospitalizations were for IV antibiotics and pain treatment. She became very adept at a young age in letting me know if her pain level was at the big doctor (hospital) level or a regular doctor visit level. She was always right; the emergency room or doctor office visit resulted in her being admitted. Good overall care, educating her and myself about her condition, monitoring her activity and rest levels, and avoiding extreme heat or cold gave us some control over her condition and allowed her to enjoy her childhood. I was also diligent about her medications.

Comment from: Oli88, 25-34 Male (Patient) Published: March 26

I am a 31 year old with sickle cell anemia diagnosed at birth. At first I had many crises. I have been through 4 strokes and this has affected my home, family, relationship, career, psychological state, life, etc. I tried going to university, I couldn’t complete it because of the fact that the strokes affected my mental abilities. Now I get blood transfusions and medications and I’m a perfectly ordinary male. I am thankful all is well.

Comment from: J Nicola, Female (Patient) Published: June 02

I am a 31 years old sickle cell anemia (SCA) patient. My illness was discovered when I was two years old. In my early year, I had a lot of painful crisis but was never hospitalized. I had to be taken to the doctor though, I would be treated and discharged. I have a steady state of 12 and weigh roughly 165 lb. I am often told that I am lying when I say to persons that I have SCA. I try to eat a balanced meal, exercise and I keep myself very warm. Despite the fact I live in Jamaica, the climate may vary so I dress according to the climate. At work I have my sweater and my leg warmers and I never go out with my umbrella. I do not smoke or drink. I find that once we (persons with sickle cell) are educated about our illness, we can live a normal and healthy life. I have no children because of my fear. I would like to have a healthy baby. I cannot bear to see smaller children in pain, it breaks my heart. I do have a high tolerance level, so I can be feeling excruciating pain and not cry out. I am often very tired, despite the fact that I would sleep for 8 hours. I would encourage anyone who is closely involved with a sickle cell patient to educate themselves about the illness as this will foster a better relationship.

Comment from: ferlix, 25-34 Male (Caregiver) Published: April 11

I realized the disease on my first born who later passed away at the age of 2 years and then knew my third born also is suffering from it again. The disease is not easy to deal with, this disease needs money but it’s good that we are managing it well.

QUESTION

Sickle cell disease is named after a farming tool. See Answer
CONTINUE SCROLLING FOR RELATED SLIDESHOW