Patient Comments: Seizures - Experience With Absence Seizures

Question:

Please describe your experience with absence seizures. Submit Your Comment

Comment from: donovan, 75 or over Male (Patient) Published: November 24

I feel like a wave is moving through my body when I have an absence seizure. It starts in my head and slowly moves to my feet. Then I get chills down my arms and legs, no pain, and sometimes a second one will happen within minutes. I have a meningioma non-cancerous tumor and I am sure this is the cause of these seizures.

Comment from: Neil , 55-64 Male (Patient) Published: March 03

I go into a trance like state with absence seizures. At this moment my mind plays tricks on me and I have a ‘déjà vu’ moment. My mind thinks of the strangest things from the past, such as making a cup of tea. The only thing is I get all the smells and sounds relating to that moment. Then I go sweaty and clammy and go vacant looking for a minute or two.

Comment from: bsites, 55-64 Male (Patient) Published: October 24

I have had 18 kidney stones and I believe I’m working on number 19. I’ve had four ureteroscopies to blast larger stones. I have unbearable stent pain following the surgery and hope I never have to experience that again. I have cut my sodium way back and drink a lot more water but I’m pretty sure I have another stone still in the kidney. The larger stones cause deep pelvic pain, similar to when your uterus contracts after childbirth. I plan to get a KUB (kidney, ureter and bladder) test on Monday to confirm. Ugh!

Comment from: Pjslow, 25-34 Male (Patient) Published: August 24

Absence seizures for me are like a highly vivid form of deja vu that you yourself can control to an extent. During this time for me it’s a combination of exhilaration, excitement and/or fear/fight or flight response feelings. It’s all very powerful emotionally and mentally so during this time I will often have a blank stare on my face and be unresponsive. Basically due to the fact that the information the seizure is creating in my brain is more powerful than the information my ears or eyes are transmitting.

Comment from: boity, 19-24 Female (Caregiver) Published: January 07

I lost my mom due to this absence seizure thing. I did not even know what she had until I found her medical files. She died in her sleep. I wish I had been there to save her. I am in deep pain because she died suddenly. I hate this illness.

Comment from: Raymond A., 55-64 Male (Patient) Published: December 23

While laughing very hard something strange happened in my head. I remained conscious but felt like something weird in my brain. It lasted a few seconds and I have experienced it several times, only when laughing really hard.

Comment from: Riley court, 13-18 Female (Caregiver) Published: October 15

My daughter has absence seizures and it happens about 50 to 80 times a day.

Comment from: akallmes, 35-44 Male (Patient) Published: May 10

I've had two liver transplants due to PSC and recurrent PSC. The best advice I can offer: Questran, even when not itching, along with exercising when you can. Also, seeing a nutritionist is key. Recovery and strength related to what you were able to eat. I used to take Tylenol to help with eating, so that the pain wouldn't be intolerable.

QUESTION

If you have had a seizure, it means you have epilepsy. See Answer