Patient Comments: Scleritis - Symptoms & Signs


Describe your signs and symptoms of scleritis. Submit Your Comment

Comment from: Godsgirl, 45-54 Female (Patient) Published: November 01

Three weeks ago I was helping my 14 year old daughter stretch. We were holding hands going opposite directions, when she lost her balance and pulled me forward. My big toe and the 2nd toe split the leg of a bench and when I looked town my 2nd toe was lying sideways to the left. I knew it was broken. It turned my entire foot black and blue. I’ve been in a boot for 3 weeks, I’m at the doctor now for my recheck, but I was told it’s still broken and displaced. Going to specialist now. Ugh!

Comment from: TXcutie, 45-54 Female (Patient) Published: August 05

I was having severe migraine headaches, head aches that stop you from functioning. Prednisone controls the headaches but it causes a whole series of other problems like making my blood sugar go up so I have become insulin dependent. I tried tapering down on the prednisone and the headaches came back. My eye is red almost continuously from scleritis. I have an auto-immune disorder and the doctor is suppressing my immune system. The doctors don't know any underlying diagnosis.

Comment from: CHM, 55-64 Female (Patient) Published: November 27

I developed scleritis and uveitis in my right eye 7 years ago. The symptoms included severe redness of my entire eye and some pain. The steroid drops cleared redness within 24 hours. The underlying cause of my repeated (1 to 2 per year) scleritis attacks have not been thoroughly investigated (normal rheumatoid factor) and I keep getting discharged from the eye hospital. I am concerned at the lack of investigation, treatment and monitoring of my condition.

Comment from: david, 75 or over Male (Patient) Published: December 10

I had right eye cataract surgery about 3 years ago. I had a history of episcleritis prior to this. I had a retinal tear about a year after the cataract surgery. I developed aching symptoms in eye, jaw, and temple that became increasingly frequent and severe. I self-treated it with Pred Forte which became less effective in time. I will see a retinal specialist today for evaluation.

Comment from: Elena, 55-64 Female (Patient) Published: November 20

I have both bilateral scleritis and rheumatoid arthritis which came about the same time, 1.5 years ago. I am currently on both methotrexate and low dose prednisone and my arthritis is mainly just in the feet but my scleritis is not responding well to treatment. I am now having problems reading, pain, and experience ocular dryness, as well as some photophobia. My concern is what side effects I will get when I have to go on something stronger like Humira or Remicade. I would love to know if anyone has been successful in halting their scleritis symptoms.

Comment from: heena, 55-64 Female (Patient) Published: February 10

I am not sure how to differentiate between episcleritis and scleritis. I have redness and pain in my left eye since seven days. Doctor is giving me Pataday eye drops but no improvement. Two to three times in a day the pain goes severe, there is pain in cheek bone also.

Comment from: EILEEN, 65-74 Female (Patient) Published: March 13

My rheumatologist advised me the latest labs show my rheumatoid arthritis is under good control. However, extreme burning, painful, dry eye has been getting worse over the last year. I was sent to an ENT today and I refused to have a lip biopsy to determine if I have Sjogren's syndrome, as the procedure can result in permanent numbness of the lip in 10% of the patients. I have been referred a third time out to an eye specialist to take another look at my eyes. Scleritis makes sense. Dose of prednisone 10mg is not helping. I've been off methotrexate for several weeks. This is frustrating. I cannot use my eyes when the pain gets so bad. I have to close them to lessen some of the irritation and that's not how I want to live my life.

Comment from: Sabiroon, 75 or over Female (Caregiver) Published: December 19

My mother has been suffering from scleritis for the past two months. We are giving loteprednol suspension and nepafenac eye drops, ofloxacin ophthalmic ointment along with all termed pain killers.


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