Patient Comments: Schizophrenia - Describe Your Experience

Question:

Please describe your experience with schizophrenia. Submit Your Comment

Comment from: hm1 scott, 25-34 Male (Caregiver) Published: January 21

My best female friend had bouts of sleeplessness at night and daytime sleepiness from schizophrenia. She would sit on my lap and almost fall asleep. Displayed visual manifestations of non-real persons and lost interest in hygiene. She became totally dependent on me for economic support.

Comment from: Ajay, 25-34 Male (Patient) Published: April 24

A new, innovative, and incredible treatment by me for schizophrenia: playing chess just once or twice daily can treat and beat the pressure and flow of painful hallucinations because it makes the mind to divert completely so heavily and strongly for about 30 to 60 minutes that it beats that flow and pressure of painful hallucinations and breaks the power of those hallucinations. Play daily and when some months pass by the hallucinations can be reduced to zero, but still playing chess once or twice will be required. And chess is so popular a game that it is accessible to everyone so easily on internet and computer and mobile phone. For computer Chess Titans is good and for mobile Shredder chess is great.

Comment from: George, 25-34 Male (Patient) Published: April 20

Once my uncle was ill with schizophrenia, I noticed his lack of personal hygiene. I did not attach any importance to this, but recently I found a dislike for personal hygiene in myself over the last 6 months, so I'm a little concerned. Also, I do not talk much with people of late and so I began to look for the reason for this. On one site it is said that hygiene has a practically significant role in schizophrenia, I wonder if this is really a genetic disease.

Comment from: Lorilor, 35-44 Female (Patient) Published: February 02

I was diagnosed with schizophrenia one year ago. I swore my friends were hidden in a room in my boyfriend's house where I live. I knew in my head they were all out to get me and so was my boyfriend. He had no clue I was sick and thought I was messing with him. It was a terrible time for me, so I started drinking and doing a lot of drugs. This made it worse. I moved into a motel and heard these people in the next room; they had followed me. I spent 12 days yelling at the walls. If I would leave the motel they would follow me. Sometime after I moved back with my boyfriend. The voices got worse now my mother was the voice and my best friend of 30 years. Eventually I was hospitalized court ordered so I couldn't leave. Today one year later I am finally voice free. I take Zyprexa every day. I only hope that people don't have to go through what I did. I was anorexic because I never slept nor ate. I am 95 percent better with medicines and a psychiatrist. Thanks for listening.

Comment from: Sleepyone, 35-44 Male (Patient) Published: December 28

I am not sure if this is unusual. I began with a depressive episode mixed with psychosis aged 20. My diagnosis was confirmed as schizophrenia around the age of 40. I am now 41. I am happily married with 3 lovely daughters. I have run my own business for the last 3 years, currently operating with a modest turnover and with potential for the future. I face self-stigma everyday as I am living with a condition few truly understand. At times, I even invalidate my own understanding because the urban myth surrounding the condition (violent menace to society) at times tells me that my experience does not count. I am preparing to begin a course of study at the highest professional level in my field, and I want very much to disprove the so-called truth that we cannot make a valid contribution in areas such as business and industry. I am poor, but happy. I have a lot to live for.

Comment from: Sean P., 55-64 Male (Patient) Published: November 20

If one is in touch with reality, then one knows what reality is. Thus one knows more than what today's physicists know. No, schizophrenia is not a mental illness. What it truly is, is far worse. Unfortunately, sanity is today nothing but a form of global conformity, and if you do not conform, you are considered to be abnormal.

Comment from: john, 25-34 Male (Patient) Published: July 08

I was diagnosed with schizophrenia when I was 26. I became more religious and politically active. I even considered myself as the only true prophet, and Moses and Jesus Christ at different times. The delusions went off as soon as I started medication. I am still struggling with negative and cognitive symptoms.

Comment from: Female (Caregiver) Published: April 11

Can any schizophrenic patient feels that some transparent opposite sex being is attached to her/his body having sexual intercourse all the time? My sister has been facing this feeling for more than two years since the age of seventeen and during that whole period she never had a moment of relief. It is just constant and that feeling never seemed to leave her. Except for this feeling everything about her is normal.

Comment from: JBL, 35-44 Male (Patient) Published: February 24

Since 2000, I have not been able to keep a job. I abandon them. I don"t care about my hygiene, body or dental, I don"t take care of any of my stuff. I lost my longest relationship of 9 plus years (off and on) because I would lie about employment and just generally lie about anything. I"ve been homeless several times. I end up living with my parents, where I am now. I"ve stolen things and money from family members. When caught with the item I"d still lie! I have few friends and have very little socialization with my family. I drink and smoke pot when I have money. I have no appetite and my weight is around 124lbs. The last time I saw a doctor he asked if I was a drug addict! I went with an earache, which he didn"t treat me for. I didn"t ask for drugs except maybe an antibiotic if I needed it! I never eat with family. I wait till they"ve all gone to bed and then I eat left-overs, etc. My mom has offered to get me mental therapy but I don"t think I need it. But since I"ve abandoned another job... I"m told to either seek mental help or move out! They"ve had enough of my behavior and are frustrated/worried about me. I know they love me but I don"t know why I do/act like I do.

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Schizophrenia: Symptoms, Types, Causes, Treatment See Slideshow
Comment from: caregiver, 25-34 Female (Caregiver) Published: February 20

My sister is suffering from schizophrenia from last year. She stopped going to her university from last year then she was told to get married but things did not work well for any of the proposals, hence she broke down emotionally. She says that she hears spiritual voices, suspects that someone from the street is keeping an eye on her, thinks that her friends are breaking all the proposals and sometimes looks through the window to see who is calling her. She made some suicide attempts and tried to hurt herself. She was away from all social relations the past year. Just recently after the suicide attempts we are giving her medications like anti-depressants and also relaxation and sleeping pills. Hope that these will help to cure her fast.

Comment from: Chris, 35-44 Male (Patient) Published: October 31

I was diagnosed with paranoid schizophrenia at around 22. I have unusual beliefs about the nature of the universe, God and the workings of society but other than that I am fairly normal. I don't have many friends, so my family is very dear to me and I call them every day. I am divorced, I have a son and I hope he doesn't go through what my family and I went through but I will do my best to be there for him if he does. I have difficulty expressing emotions but have been told that I have a gift for writing; not noticeable in this little blurb. My family stuck by me through my troubles and that is why I am able to live on my own today, work to support myself and my son and pretty much live a normal life. What is normal...mine's just a little different from yours that's all. I disagree that this illness is the worst mental illness, but I'm no expert; just another being watching the universe unfold every day.

Comment from: vivistar70, 35-44 Female (Patient) Published: October 18

I am 43 and have the voices of demons, people and entities present with my schizophrenia, as well as dead people and animals. They are positive and negative. They often say, "Respect your space" when I try to access them for conversation or free association topics. All the people, entities, dead, animals, and I are victims, if we say we are. I have a mental Tourette's effect of bad words because if I say I have something then I do have it because I cannot make any negative observations. The effect is very intense but it is being managed with the following medications I am currently taking: Latuda, Topamax, and Ambien.

Comment from: dallasuser, 25-34 Male (Patient) Published: August 04

Schizophrenia is like an experience of sounds of voices or brain waves, like recalling and remembering music sounds inside your head, things you remembered and sometimes it gives loss of concentration, irritation and memory loss. Not all people with experiencing schizophrenia are violent, sometimes people who don't go to psychiatrist or having no mental health record are the ones, in my experience. I have been taking psychiatric pills for years and it did hurt my emotional health, so it doesn't help. It is better to live a life without prescriptions. Diet, eat in small portions and exercising are the best way to have healthy life.

Comment from: pp1, 19-24 Male (Patient) Published: August 01

With schizophrenia, I am always feeling someone is watching me… judging me. And looking at my face with anger.

Comment from: Chasity, 35-44 Female (Caregiver) Published: April 17

I am 17 years old and have been seeing my mother deal with schizophrenia since she was my age. She has been in and out of the hospital multiple times but will not change her medication from clozapine. She"s a paranoid schizophrenic. I"ve been looking into Invega Sustenna.

Comment from: moonchild, 35-44 Female Published: October 09

My 39-year-old son was diagnosed with paranoid schizophrenia in July of 2002 at our state mental hospital. He started being scary after 9/11/ and "got messages" that told him he was sent to save mankind. He had a terrible temper with cursing and violence toward his dad. On his second trip to the mental hospital in 2003, they were finally able to get him on Risperdal, which helped but raised his blood pressure very high. After four years, the psychiatrist switched him to Prolixin, an old drug that seemed to work better for him. He will never work again and has lost everything but his house, where he spends his days and nights alone, chain-smoking, like a recluse. He does visit his three daughters and has a cordial relationship with his former wife. I miss my youngest son the way he was before the “evil” took him away, and I cannot find anyone on either side of the family who had the disease.

Comment from: denise62, 65-74 Female (Caregiver) Published: October 06

My mother is 67 years old. She is having a lot of these symptoms. I have not taken her to the doctor yet but we go soon. She is on a lot of medicine including morphine. She was using the fentanyl patches. She was putting the patches in her mouth. The last time this happened she didn't come all the way out of it, after it wore off. Since then which has been about 3 weeks she has all these signs of schizophrenia. I read that drug abuse couldn't cause this disease but I'm not so sure about that. She thinks her mother which is deceased and her mother's best friend who is not deceased is living in her bedroom. She says they are very little and they stay in pillows, blankets, and drawers. They don't want anyone else to see them or hear them talking. My mother asked her mother how she came back from the dead. She said her mother said she did not really die and the doctor made a mistake when he pronounced her dead. But she is embalmed and she crawled out of a whole in her grave and came to my mother's room. She thinks her mother's friend came about 3 or 4 days later. My mother talks to both of them all the time. Other than this behavior she seems to be fine. She talks with normal sense the rest of the time. She has fears of other people showing up that she don't know. I hope the doctors get this right and don't just say she has dementia. Or is it all pretty much the same?

QUESTION

Schizophrenia is the most disabling mental illness. See Answer
Comment from: Carolyn, Published: September 17

My brother, who is now 67, has been schizophrenic for many years. He has been on Zyprexa for a long time now and it has improved his behavior tremendously. He still has very delusional thinking, even on the Zyprexa. For instance, he still believes that previously, when he was not on medications, he heard the voices of his spirit guides, who were assisting him when he was being attacked by wizards and demons. He believes that several people at his day program have strong auras that he can sense, and he believes he can communicate telepathically with those people and get a telepathic response (consisting of a "feeling"). In fact he believes that these people at the day program are actually Lemurians (a mythic race that inhabits tunnels under Mt. Shasta in California). He still believes all this, but he doesn't act on it in any destructive way. His behavior is much better, and he no longer hears the voices of the spirit guides. He really isn't "normal" but his interactions with other people are much better.

Comment from: confusedsis, 25-34 Male (Caregiver) Published: September 17

My 31 year old brother was diagnosed with schizophrenia 10 years ago. He has been on several medications since then. He was in remission for about three years until a couple of years ago when he started refusing to take his medications. He insisted that the medications had too many side-effects and that he was afraid to take them. He started having problems at work, became more verbally aggressive and now he is homeless. We had him committed for treatment many times. My other brother and I could not have him live with us anymore because we are both married have young children and our spouses don't even want him in our homes. Schizophrenia is the worst disease anyone can have: it destroys not only the patient, but the whole family.

Comment from: shamiska, 19-24 Female (Caregiver) Published: September 17

As someone whose parent has schizophrenia and whom has it also. I just want to tell you that no matter how hard it may be or how guilty you feel about it, if a family member needs help make that call! I struggled from the age of 10 to help my schizophrenic mum for 6 years I struggled then it got really bad and she ended up in a mental hospital. She's out now has been for four years and she's a thousand times better than she ever was. Fight your fear and bite the bullet it's worth it.

Published: July 28

Our 21 year old son showed signs of mental illness when he started talking non stop and became very violent towards us. I believe he had smoked a lot of drugs. He thought he was Jesus Christ coming back to save humanity. Also he used to hear voices commanding him to do evil. We felt that he was suicidal too so we got him admitted in hospital. He spent about 3 weeks in hospital and when he was discharged he became very calm and quiet and hardly communicated with us. In the beginning he took tetracaine and risperidone (6 mg). But now 9 months later he only takes risperidone (1 mg). He neglects himself a lot so we still have to remind him to brush his teeth, bathe, change his clothes, etc.

Comment from: Feeling much better, 35-44 Female (Patient) Published: November 26

I have had this for 8 years. I am a female and I take diazepam at night. I am taking citalopram with trazodone also. I am 95 percent better in 1 month with little no symptoms at all.

Comment from: sam, 19-24 Male (Patient) Published: August 20

I had schizophrenia and lived with it untreated for almost six years, believing it was normal. I was always in trouble and in total denial. I was also living in hell, I started getting treatment. I expected to get better after the first pill i took, but I had to wait another eight years to be able to experience some restful moments. It still feels like a bad joke.

Comment from: XYZ, 25-34 Male (Caregiver) Published: October 07

My husband and father-in-law suffer from this disorder. My father-in-law says he possesses divine powers and can interact with God. He even insists that some holy spirits have come in him, and they can answer queries. He got extremely attached to me emotionally. Even when I went out to work, he would drive to my workplace and wait patiently until I came out, maybe for hours. If I had to visit my parents, he would secretly follow me. Well, all this was still tolerable. My husband, on the other hand, gets violent. Many times he has been physically violent with his father and me. I suffered a miscarriage because of the physical abuse. He moves out of the house suddenly, and his whereabouts are unknown for days. After a week or two, whenever the family learns his location, they go get him and bring him back home. He moves out without luggage and doesn't even brush teeth. He has been unable to hold down his job. He talks of doing great things, such as setting up businesses, being a real estate king. He would boast that he was born and bought up in England, when the fact is, he has never traveled out of India. He lies to the extent that anyone can tell that he is lying. The worst is that the family doesn't accept that they suffer from this disorder to maintain their public image. His father is on haloperidol, and he is irregular about taking his medication. The same goes for his son. It was a traumatic phase for me to live with them and make them understand that they need professional help. The biggest reason is that my husband is a homoeopathic physician, and he thinks he knows medicine better than anyone in world.

Comment from: Sonali, 55-64 Female (Caregiver) Published: September 25

My mother, who is aged 55, is suffering from schizophrenia for the last four years. She can hear voices and suspects that those voices know her thoughts and can see through her. She also charged people whom she suspected to be her enemy. She is on medication for the last one and half years. She doesn't want to accept this as an illness and we somehow manage to give her the medicines saying that they are pills prescribed by a person who wants to help her. She now says that the intensity/volume of those voices has reduced and she has not charged/attacked anyone so far. However, she still believes that this is real. She also wants to stop her medicines and it is difficult to convince her. She also seems to be suffering from side-effects of the medicines. She has a frozen shoulder and has diabetes, osteoporosis etc. The doctor wants a CT scan of her brain to be done, but it's difficult, as she realizes that the scan will probably be done because of this problem that she has.

Comment from: RKaufman, 35-44 Male (Patient) Published: September 11

I am a 38-year-old schizophrenic who was diagnosed three years ago. I never in my life thought that I would have a mental illness. I thought that was something people were born with. Medication doesn't just “start working.” It takes time and education. The person with schizophrenia should remember that with time, we can recover. Keeping medications in a normal place and participating in a psychosocial atmosphere can increase your skills and education about your illness.

Comment from: Lady21, 19-24 Female (Caregiver) Published: September 11

My boyfriend always seemed normal to me, but recently he has been sent to a mental hospital. They are claiming that he has an anger problem and slight schizophrenia. After the reading the definition on your website, everything is clear to me: He really is schizophrenic. He always thinks someone is plotting against him, that everyone is talking about him and everyone hates him. He claims that he heard someone over the phone saying his name and saying stuff about him, which never happened. He gets very angry and frustrated quickly. Sometimes he would talk about things or say things to me, and I would tell him that he makes no sense. There was always a slight thought in me that something was seriously wrong with him, but I always ignored it. Now that things are clear, I'd just like to warn women out there to be careful because things can get pretty dangerous when someone thinks everyone is against them and trying to harm them.

Comment from: Art, 35-44 Female Published: August 21

I have a 35-year-old brother who was diagnosed with schizophrenia three years ago and was treated in a clinic in Australia. He was released not long after being examined and given medication. He later came home to Greece and all seemed OK. He had the occasional hallucination, for example, he would see the planets from where he was lying on his bed. Gradually, he refused to continue his medication and as a result, he was easily irritated and angered, especially with my mother.

Comment from: woodysgirl, 45-54 Female (Patient) Published: August 13

I am 51 years old and have had schizophrenia for more than five years. I take so many medications at night I feel as if my stomach is a pharmacy. I get scared a lot because when I try to tell my family I am hearing voices, they look at me and say, “No, you're not; quit being silly.” Sometimes I cry because I get so scared of the personalities of these voices. I currently have four personalities. I don't like going to group sessions because I don't like to be around a lot of people. I am around enough people as it is. I don't go out of my house for days and days at a time; I just don't want to. But I go to my doctors. So far they have my medications on the right track, and I am thankful for that.

Published: July 09

My daughter was diagnosed with the disorder. She was a bright and intelligent 18 year old who was in various HS groups and ultimately graduated. One day she appeared to exhibit what I labeled as "a drug person" but I was wrong. Clinical tests proved negative. Now, my baby has since graduated from HS (with the help of great HS counselors), been admitted twice two mental facilities, and occurred many thousands in hospital costs. Today she had another episode. I will not let her go back to the hospital. I also discovered she was faking taking her medication (Zyprexa). I had her take it. Watched her for about three hours and then recently allowed her to go to bed. Yes, I had to allow an 18 year old to go to bed.

Published: June 25

My father who is aged 84 is having the disease. He was alright 3-4 months ago. What I am observing for the last 2 months is that he is saying strange things which is unbelievable. Every time he says someone talked to him over phone (in fact he never uses the telephone even when he was quite okay). I have assumed that he is hearing voices. Sometimes he says the Indian Prime Minister talked to him and he is visiting us. At times it would be Mrs. Sonia Gandhi and the Indian Finance Minister Mr. Chidambaram. At times, he is scared and tells one or two of our relative's names and says that they have sent persons to kill him. Since he is a pensioner he even takes out money and throws out of the window thinking that he is paying money to those who have come to harm him. He was very attached to my elder daughter and used to take a keen interest in her studies. However, now whenever she has gone to school he tells me that someone has attacked my daughter and she is bleeding and asks me to go to her rescue. Sometimes he says that someone has kidnapped her and she is in some far away place (he mentions the name of the place). If we tell him it is not the case, he argues to the point and tells me or my brother that we are lying.

Published: June 09

A couple of months ago i felt the whole world was against me and out to get me. I avoided my friends and spent most of my time talking to the voices in my head. I was sort of glad because I would never be lonely again. The voices in my head told me they'd put a prosthesis in me and that' how they knew what i was thinking. What I wondered was how I came to know words I've never heard before. Things started to get complicated when a guy I used to like came into the picture. I kept hearing his voice everywhere. He even proposed to me! Now I know it was all my imagination. Till this day I keep wondering whether what happened to me during those months was real or just a figment of my over active imagination. How i wish i knew. Well i took pills and I'm much better now. Th voices disappeared. to all those with schizophrenia, don't worry ! We're living in the 21st century and will be cured in no time just like me.

Comment from: Linda, 55-64 Male (Caregiver) Published: October 14

My husband, brother-in-law, and sister-in-law all have schizophrenia. My husband's doctors have said that he is a great one to study because he went as far from reality that one can go and came back to live a fairly normal life without having to go and live in a hospital. They would like to write a book about him.

Comment from: missbee123, 25-34 Male (Caregiver) Published: October 06

Both of my brothers have been diagnosed with schizophrenia. They both live about four hours from me, and I see and hear from them infrequently. It's difficult to imagine what they must feel like, and until recently I would constantly argue with them. One of them has positive symptoms, and I thought he was just lazy and withdrawn. My other brother sees black demons coming out of my back, and white ghosts coming out of my nose. They both frequently discontinue their medications, and always get into trouble with the law. Just recently, my negative brother was stabbed and walked out of the hospital in a gown. The erratic behaviors are complex for my mind to understand, and I'm thankful for having gained a greater understanding of the disease. Now, maybe, I can deal with my brothers more effectively!

Comment from: Ian, 19-24 Male (Caregiver) Published: October 06

My friend was diagnosed with Schizophrenic Psychosis when he was 15. Since then he has had many instances where he has had random impulses/urges to kill people like family and friends. He told me that if I got to hear his thoughts for a day, I'd kill myself. He told me this as he contemplated suicide. He constantly hears voices telling him to do vile things and he fears of hurting others and it drives him mad. Medication is only so effective.

Published: July 28

It's a special type of living hell because it has lead me to distrust my family and friends. The people that I love the most become the biggest antagonists. I feel that I can't live like this because I see in black and white and at the moment everything is black. I was taken off my medication a while ago and I know I have to go back on it. Please talk to someone impartial if you feel like this, don't suffer alone even if you just want to be alone.

Published: July 22

My relative is suffering from schizophrenia. She is under treatment, but no tablet is found effective with her she takes penhargan 25mg and aneval 50mg daily twice each tablet but is not recovering. She has been taking the tablets for 8 days.

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