Patient Comments: Sarcoidosis - Coping

Question:

How have you been able to cope with your sarcoidosis? Submit Your Comment

Comment from: Brissy, 45-54 Female (Patient) Published: November 21

I was diagnosed with sarcoidosis at the age of 24. I have been fortunate in that steroids are very effective with my condition. I have reduced lung function but have managed quite well. My major problem is that I catch every cold or flu going around. A few years ago I caught a cold at work and the next morning I was in hospital with pneumonia.

Comment from: moa, 55-64 Female (Patient) Published: December 17

I now cope very well. I have been hospitalized 3 times and had extreme fatigue plus most other symptoms. My lung x-ray looked like spider webs. I suffer from sunstroke and shingles. I am a nurse and by good luck began working at exactly the place to help. Chelation therapy cleared excess calcium from lungs, tendons and muscle. Inflammation process lays down calcium. It can be anywhere. Excessive exposure to sun increases vitamin D causing calcium shift. I take rest, avoid chemicals, I can live positively with it by taking vitamin C (5gms) omegas, magnesium, ashwaganda, liver support, chromium and multivitamins.

Comment from: negrita, 55-64 Female (Patient) Published: February 01

I had sarcoidosis about 5 years ago and was treated. Today I was told that the disease came back.

Comment from: mr. wilson, 35-44 Male (Patient) Published: October 16

I take the drug gabapentin for sarcoidosis and steroid cream for itching of arms, chest and calves. I have had long term coughing.

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