Patient Comments: Sacroiliac Joint Dysfunction - Experience


Please describe your experience with sacroiliac joint dysfunction (SI joint pain). Submit Your Comment

Comment from: Janae, 65-74 Female (Patient) Published: July 26

This is July 2021. I am an active 70 year old who rides (rode) horses, etc. I was an athlete all my life and then had a fall off the horse on my buttock causing 4 breaks in the lumbar area. After 26 years of pain off and on, now it seems it's from the sacroiliac (SI) joint. I tried everything. I will now have the radio frequency ablation to kill the nerves that send the pain to the brain. I am hoping it works. I need to get back on a horse where I feel the best. I will let you know if it works.

Comment from: Michele, 55-64 Female (Patient) Published: April 02

I had sacroiliac (SI) joint diagnostic shot and had no relief the same day, but was 100 percent pain free for two days after. The doctor said it made no scientific sense and deemed the diagnostic test a failure or inconclusive. I have continued to suffer when sitting, for over a year now. The pain sitting came on suddenly four years after lumbar spinal fusion L3 to S1. I don't know what to do.

Comment from: JT , 25-34 Female (Patient) Published: January 12

I’m a mail carrier and a dog jumped from under a parked truck onto me. I took a hard fall on my buttock. I couldn’t walk immediately after. I was misdiagnosed for a year before getting bilateral sacroiliac (SI) joint injections. I had 100 percent relief for 2 weeks. I’ve had 11 injections. This injury is taking over my life. I don’t sleep because of this pain. I can barely walk, sit, or stand. I’m going for bilateral fusions in hopes of getting my life back.

Comment from: Rebecca, 25-34 Female (Patient) Published: November 10

I started having sacroiliac (SI) joint issues in 2011. It came on suddenly; I had every test completed with no significant findings. I went through several months of pain management treatment. Then the pain returned almost every year, not as terrible as the first time. I’ve been through year after year of injections and physical therapy. The pain is unbearable again. Doctors don’t understand how debilitating SI joint issues are. I’m getting SI joint fusion surgery next month because I’m tired of living in pain.

Comment from: Abigail D, 75 or over Female (Patient) Published: May 27

I have suffered extreme pain from sacroiliac joint dysfunction for 44 years. I learnt to control the pain over the years but now it is completely out of my control and interfering with my daily life. I have never really had a consultant examine me but now just cannot go on like this. I need help to enjoy the rest of my life! Now it controls what I can do. It is getting worse now that I am older.

Comment from: Candace, 35-44 (Patient) Published: February 16

I have sacroiliac joint dysfunction (SI joint pain) and wondering if SI fusion help the pain and make walking better.

Comment from: catmonster, 45-54 Female (Patient) Published: November 01

I had sacroiliac (SI) joint surgery 2 years ago and felt 85 percent better after about a year. Now 2 years later I have some days that I feel like I never had surgery but for the most part I feel good and I sure have no regrets because my quality of life had become nonexistent before surgery. I do have two herniated discs in my lower back so I'm wondering if that's where my pain is coming from or if it is still my SI joint.

Comment from: Chicshelly , 35-44 Female (Patient) Published: August 19

I had an L5 S1 fusion 11 years ago and then another one a year later (first one did not fuse right). Then in 2012 I had my right sacroiliac joint (SI) joint fused. It was good for a while but then the pain came back even worse. Now my left SI joint is bad and on my right side I keep getting terrible electric shock type pains and numbness and tingling down my right leg. I also have really bad restless arm and restless leg syndrome on my right side as well. Wonder if anyone else experienced these problems after surgery.

Comment from: Ernie, 55-64 Female (Patient) Published: August 07

I developed flu-like symptoms: a two day red rash that quickly vanished, the feelings of a bad chest cold despite no cough or congestion, extreme fatigue, low fever, aching, throbbing, burning back and leg pain. After 15 days, I was diagnosed with a respiratory infection and sciatica - both of which I protested. One week later I awoke to the tell-tale rash across the back and sought immediate care for excruciatingly painful shingles.

Comment from: Lisa, 45-54 Female (Patient) Published: June 25

After 15 years of pain from lifting a corner of a bed and my sacroiliac joint going out, I took a tablet of Flexeril and one tramadol and waited an hour. Then I hung upside down on an inverter by one leg, on the side where the pain originated. I turned and twisted gently and intuitively until I felt the joint slip into place, maybe a 1/4 of an inch maximum. It fixed it. Finally.


Lower Back Pain: Symptoms, Stretches, Exercise for Pain Relief See Slideshow
Comment from: Lesleylu, 55-64 Female (Patient) Published: October 16

I've tried just about everything to ease my pain from sacroiliac (SI) joint dysfunction. I started on naproxen, but found out it can add to depression symptoms. I was on CBD capsules for about 6 months, but they pooped out. I tried a course of steroids and was pain free while on them and for about 4 days after. I am seeing a physical therapist weekly and alternating massage and chiropractic adjustments every other week. Nothing seems to be helping the pain long term. I just bought a TENS unit and an SI belt, so trying those next week. Perhaps acupuncture next.

Comment from: Sue sue , 55-64 Female (Patient) Published: September 19

I started having pain in my hip last year, from sacroiliac joint dysfunction. Last October I danced and after that I started having bad pain in my lower back. It was excruciating. I went to a chiropractor and he took x-rays and said one leg is longer than the other and did adjustments for about a month. I took muscle relaxers, then went to a physical therapist, and I am doing exercises. I am getting better now. My lower and mid back muscles are very tight still and I get cramps. I get inflammation if I work out too much. I have to take ibuprofen.

Comment from: DCCR, 55-64 Female (Patient) Published: July 17

I've had sacroiliac (SI) joint dysfunction for 16 plus years. I was misdiagnosed, and given wrong therapy and wrong injections. I eventually was diagnosed with SI dysfunction, and found a pain anesthesiologist that knew how and where to give an SI Injection. He referred me to the only physical therapy person he knew that does SI alignment and exercises. I can go 3 to 4 years without an injection. The most helpful exercise is Kegel, and a dose of prednisone. And if that doesn't work it's time for an injection and get aligned by my physical therapist. SI pain is really bad!

Comment from: Dwayne , 45-54 Male (Patient) Published: June 20

I had L4, L5 and L5, S1 fusion surgery about 18 months ago. After the surgery I had more pain than before the surgery. The doctor kept saying x-rays look great but I surely didn’t feel great. This went on for over a year with terrible pain in my buttocks and lower back but the doctor acted like everything was great with his x-ray pictures. So I got another doctor and he told me I needed a sacroiliac joint fusion so two months ago I fused the left side and am still in terrible pain. So people, please don’t rush into surgery because it can ruin your life. Most stories I hear aren’t good and these surgeons experiment with people and have no clue what they are doing. When you ask for answers they jump straight to their ‘x-rays looks great.’

Comment from: November-Rose-59, 55-64 Female (Patient) Published: December 12

I suffered with sacroiliac joint dysfunction for many years but after seeing 6 specialists, they blew it off as sciatica which MRIs did not support. I received physiotherapy for several months which did not improve my situation. I had many epidural injections but, no relief. I went for chiropractic therapy and acupuncture - no change. I sought out services for deep tissue massage where I was advised sacroiliac joint was frozen, and a 2nd therapist suggested nerve entrapment. I can't walk more than a few steps, too painful to climb stairs and have to cut shopping trips short due to pain radiating down my right thigh to the back of my calf. I don’t know what, if any options are left. I'm not getting any younger.

Comment from: Amy, 45-54 Female (Patient) Published: November 13

I had a liver transplant where I got 6 compression fractures and my back doctor had to do vertebroplasty. He said I had the bones of an old woman due to all the steroids from surgery. Now it has gone to l4-l5 to my sacroiliac joints. The more work I do the more they hurt. I can't have NSAIDs, so I'm at a loss. The main thing my doctor has done is given my facets and epidurals. Right now nothing is helping.

Comment from: Leesa, 55-64 Female (Patient) Published: October 14

Get your atlas muscle adjusted for sacroiliac joint dysfunction (si joint pain)! Find an atlas orthogonal chiropractor in your area. Make sure he/she has the equipment to adjust your atlas. This has helped me 150 percent. Nothing else needed.

Comment from: Dee, 35-44 Female (Patient) Published: November 19

I have been dealing with the pain of this debilitating sacroiliac joint dysfunction for a year and over the last year have found nothing helps better than light and modified yoga, walking on straight ground and swimming regularly. I take strong pain medicines every day that barely help with the pain. I cannot work now because I tend to have flair ups when I bend too much, and then end up in bed for two weeks. It hurts to drive and sit up for extended periods of time but with modification of activities the pain is bearable. I have heard that chiropractors help but was in a lot of pain after my visits, the same with physiotherapy. I hope this helps, thank you to all who post here, you remind me I am not alone in my pain.


Nearly everyone has low back pain at some time during their life. See Answer
Comment from: Mj, 55-64 Female (Patient) Published: September 08

I was in a car accident three years ago, I was sitting on the passenger side. Since then it's been an awful trip. In pain all the time, at first we thought it was my lower back. I went for physiotherapy (PT) for 6 months and came home in tears. I have seen 4 different doctors who just said it's all in my head. Finally I went to the pain clinic after 1 year of shots and more PT. The doctor said he can't help any more. It's time to look into sacroiliac joint fusion (that surgery). I have been doing a lot of research on this and it sounds good. The pain goes down both legs and in my buttocks both of them. I have been given a belt to wear, TENS unit, and lots of pain pills. But I still think ice and rest is the best. The accident only lasted 3 seconds, and my life has been terrible ever since.

Comment from: mtndew, 45-54 Female (Caregiver) Published: August 17

I am a nurse. I lifted a child and injured my back 9 months back. Five injections and months of physiotherapy later I had laminectomy in L4 L5. One year later I have bilateral bursitis and sacroiliac (SI) joint dysfunction. I can't bend, walk, sit, stand, or sleep. I am on NSAIDs, tramadol, and Flexeril. I feel like a polar bear sitting on ice. I had another injection in my lower back and I wear SI belt by Serola, trying to hold joint tight.

Comment from: Misfin2, 45-54 Female (Patient) Published: April 07

I started having back pain when I had my fourth and final child. In the past 11 years I have been on every type of medicine imaginable, seen a chiropractor, had fluoroscopic injections and have been to physical therapy. I am currently taking tramadol 50 mg and it usually helps about 3 weeks of a month but I always have one week of such intense pain I can hardly function. They tell me I have hyper-mobility, meaning my sacroiliac joint rotates to the front and to the back. I go to physical therapy once a week and they put me back in place and hook me up to an electric stimulus machine to help relax my back muscles. They also prescribed a pelvic belt which I went and got fitted for and gave it a trial run. That thing did nothing more than annoy me and make me hurt worse. My next venture is to inquire about iFuse to stabilize the joints. If you have been in pain as long as I have it really gets frustrating especially when everything only gives you pain relief for a very brief time.

Comment from: alohadoc, 55-64 Male (Caregiver) Published: February 26

I had taken a fall on my behind some 6 months ago and had continuing pain that seem to migrate from my anterior ASIS (anterior superior iliac spine) to the hip, and lately to the sacrum. I am had x-rays of the hip and it was normal. Since I had had a slipped disk at L3 only a few months prior, I suspected disk issue and as an acupuncturist, was treating L3, L4 and L5 with some help. Recently, I got an inversion table, and when hanging upside down it became immediately apparent that the bad spot was in the right side SI (sacroiliac) joint. The inversion table seems to really help, and I will be getting craniosacral therapy and a visit to the doctor, as well as an altered acupuncture protocol and my regular massage visits. Chinese herbals for the cartilage include, Liquidambar 15 from Seven Forests, glucosamine sulfate, MSM (methylsulfonylmethane), and a good diet of course. Good luck.

Comment from: Gail, 45-54 Female (Patient) Published: February 04

I hurt my back 12 years ago lifting a wheelchair student. I had injections for 2 years, and finally had L4/L5 fused. This helped a lot but caused RLS (restless leg syndrome), terrible to say the least. Now the doctor says T11/T12 are herniated/bulging. Two other doctors say I have bursitis. I went to pain management today and this doctor says it's the sacroiliac (SI) joint dysfunction. I had injections in the SI joint today. The neurologist also says I have fibromyalgia.

Comment from: Alice, 45-54 Female (Patient) Published: August 27

I've been having lower back pain for 3 years now. I’ve been on the strongest pain medications and I still have a lot of pain. The doctor told me I have a touch of arthritis and a lot of wear and tear. I've been to a lot of doctors and can't seem to get any relief. Maybe it is my sacroiliac joint and not arthritis‚Ķ how do I find this out!

Comment from: Tim, 45-54 Male (Patient) Published: July 09

My background - power lifter from the age of 18 to 35. Over that time I injured my back several times however it always healed. In 2009 I injured it lifting a heavy object. It never recovered. Since then I have had a discectomy, a spinal cord stimulator and a L4/L5 fusion done. Beginning in 2010 I started having both the sciatic lumbar related pain and an incredible, horrifying, mind numbing pain in my left hip/pelvic area. From 2010 until this past May (2014) doctors overlooked the hip pain and believed it was tied into the lumbar issues. Finally the surgeon literally jammed his thumb into my sacroiliac (SI) joint and I nearly jumped across the room it hurt so badly. A CT scan later indicated I had sacroiliitis. I later had a spinal injection to both sides of my SI joint. The injections gave me 48 hours of pain free existence for the first time in 4.5 years. Next step is minimally invasive SI fusion. Hoping that it works and I can get my life back!

Comment from: truepits, 45-54 Male (Patient) Published: July 07

I had no sacroiliac (SI) joint pain until after two back surgeries, the second being a low back fusion. After the second surgery I had hamstring weakness and drop foot. I can only push down with my left leg and not pick it up. So when I walk I drag my leg. This is constantly twisting my hip and puts a strain on my SI joint with every step. So I do not want to walk now if that's what you want to call it. So I traded the electric shock wave pain down my leg for SI joint pain. Both are equally bad. And since I had back fusions they say I am not eligible for SI joint fusion. If you can avoid it, I mean all surgeries have their risk. That's why they make you sign the paper.

Comment from: Dfoody, 55-64 Female (Patient) Published: April 17

To Kathy, after eight years of bad pain I finally had sacroiliac (SI) joint fusion and six months later I have my life back. Check into this, the procedure came from Europe and was approved in the US in 2010. There are not many doctors trained in this procedure but you can contact iFuse and they will send a list of qualified doctors in your area. I walk every day, kayak and now shop.

Comment from: Hopeful, 55-64 Female (Patient) Published: April 16

After 5 years trying so many different things and wasting tons of money, nothing has worked. I am hoping for surgical fusion intervention for sacroiliac (SI) joint dysfunction and a trapped sciatic nerve. My right side from the hip started with a slight dull ache and has progressed to total weakness, needing a walker 100% of the time. I had to research myself all these years and thanks to finally being able to get insurance, I will demand a specialist trained in these areas. Hope this helps someone!

Comment from: Cathy, 45-54 Female (Patient) Published: April 14

For many years I have had low back pain. I have been told that my sacroiliac joint gets stuck in, I guess you would say the "open position"; it rolls out of the joint and gets stuck. I have been to physical therapists, doctors, and chiropractors. I visit them two to three times a week with some relief. It still is painful when I stand more than a few minutes. My quality of life has been truly hindered by this.

Comment from: The Holtie, 25-34 Female (Patient) Published: March 27

I had a double level spinal fusion in 2012 on my L4-L5 and L5-S1 discs after dealing with the pain for 6 years. Ever since then it"s been hard to turn over in bed. About a month ago I turned to get out of the car and screamed in pain because I "got stuck". I went back to my orthopedic surgeon and he suggested physical therapy. Physical therapist ordered 3 times a week for a month. I went back in today and they suggested an injection in my sacroiliac joint to calm the inflammation. The doctor pretty much said it should work, but it"s also to confirm the diagnosis. I hope it works, because I really don"t want to go under the knife again. With that being said, my spinal fusion went great and was a success. This problem seems to stem from the years I went before having my surgery.

Comment from: NasteMasto, 45-54 Female (Patient) Published: February 20

I am a registered nurse as I have read some of you are. I had an injury in "05 to C5 that soon progressed from C5 to C7 for which I had discectomy with fusions. This led to the diagnoses of degenerative joint disease (DJD) and osteoarthritis not long after. I believe I have sacroiliac joint disease; about every few weeks I get the worst sacral pain, even sitting down on my soft bed. My legs and thighs when I go to the restroom are so painful I cannot lower myself to the toilet. I will amp up the ibuprofen for a few weeks and then it starts all over! I can"t get in to see an orthopedic surgeon until May, I was referred in November. Meanwhile I suffer, I have not worked in two years, which kills me. I loved my job, I loved caring for my patients, and I hate being one! I am a physical and psychological mess!

Comment from: Jules, 35-44 Female (Patient) Published: February 03

I have had issues with my SI (sacroiliac) joint since I was 13 (more than 25 years). Some flare ups have had me immobilized for weeks at a time, and some are just little hiccups. My doctor told me when I was first diagnosed that medical science would drug me up enough to mask the symptoms, and not really do anything for the underlying cause. She suggested a chiropractor instead, with doses of massage therapy as needed. As recently as 2 years ago, I had to deal with emergency room staff when I had a flare up so bad that my husband called 911 because he thought something serious happened. The emergency room staff told me to suck it up and dosed me with morphine (after I expressly told them it makes me physically ill with nausea and shaky extremities and violent headaches that last a few days) Tylenol 3 or 4 or whatever they are and Percocet. After this lovely cocktail they sent me home win no instructions to my husband, except "don't call 911 over this again". My chiropractor was called and offered to do a house call if I was unable to sit in the vehicle for the time it took to drive there. Only reason I said no was because I live in the country and it's confusing to get here. Chiropractic treatment works. Massage therapy works. My doctor did tests, offered shots, and said that's all they can do. My chiropractor does tests, suggests certain types of stretches and exercises, ascertains what has changed recently, speaks with my doctor to make sure they're on the same page, and has suggested surgery more than once to my doctor, seeing as I have probably had as many as 7 serious flare ups in the last 3 years. I am totally open to more shots, if they work, but when they don't, it's hard to justify it. Surgery is a scary thought, but if it means I can actually live a somewhat normal existence count me in! (Weight has never been an issue, too much or too little, so that has never been in the equation).

Comment from: Chelsee, 45-54 Female (Patient) Published: January 14

To those who have had the SI (sacroiliac) joint problem for years and are getting no relief, you need to see an orthopedic surgeon who specializes in this. I am a nurse, so caregiver but also an SI patient. Most patients, as I have read, have gotten between 95-100% relief from SI joint fusion. I had my right fused and got 85-90% relief, and am a lot better than I was. Although, I had started smoking again, I will not start when I have the left side fused. I'm hoping quitting will reverse my pain on the fused side. When all else failed, this surgery was life changing for me. MRIs and such can and usually do appear normal with this condition.

Comment from: Dearrosie, 65-74 Female (Patient) Published: November 08

I was recently diagnosed with Spondylitis (Arthritis) and had minimally invasive procedure laminectomy at L4 & L5. After the surgery I started having pain in my SI joints. My neurosurgeon had already told me that I had several things wrong with my back. The surgery was because of nerve damage and I was in danger of having drop foot. The pain from the SI joints is horrible, some days I can barely get through the day. I have had one injection in each joint and it helped a little. In a week I'm going to have second injections. I am also going for physiotherapy starting next week. I have been told that more than likely I will need surgery.

Comment from: jeannev, 45-54 Female (Patient) Published: November 06

I have been miserable with this SI (sacroiliac) pain for a month. I have had three scopes on my right knee, four on my left, bilateral knee replacements and a right knee redo in May, 2013. I am not a wimp, but this pain is nothing short of agonizing. NSAIDS and steroids don't help. I have no more sick time and I am a nurse, so I have to walk. I am running out of options. So far physiotherapy and chiropractic therapy have not helped either.

Comment from: middleages, 45-54 Female (Patient) Published: October 18

I have had severe low back pain since March 2009. I had been moving and had some low back pain and hip pain. I went to an urgent care and was given muscle relaxers and tramadol. No better. My husband took me to the emergency room and the doctor the diagnosed a herniated disc. I was given painkillers and steroids. Saw my primary doctor and she ordered MRI. Herniated disc at L5-S1. More painkillers and referral to orthopedic group. Great physiatrist did an epidural and then pool therapy. Good results but still lingering pain. That doctor kept me going for 2 years with epidurals and trigger point injections. I moved and have had constant pain in my low back and hip, radiating to mid thigh. This spring the pain started going to my foot so the pain management doctor did two epidurals 6 weeks apart. No more pain to my foot but still had low back pain. He thought it might be sacroiliac joint (SI) pain. Another doctor had suggested this but my insurance would not approve SI injections because my hip X-ray and MRI were "negative." This new pain management doctor got in my insurance’s face and told them I had been in pain for over 4 years and taking opioids and the only true test for SI is injections. They approved injections right then and there. I had my first SI joint injections today, 12 hours ago. It was instant relief when the lidocaine hit the joint. The numbness has worn off. I’m sitting for over 2 hours now with pain level maybe at a one! I have not been even able to sit through a two hour movie for over 4 years! Don't give up, keep pushing until you find that right doctor! I am weeping with joy. Finally, the correct diagnosis and the usual pain level of 4 to 6 is gone!

Comment from: Jaime, 55-64 Male (Caregiver) Published: August 07

My first experience with SI joint was in 1991 in Peru while bending over to get something from the futon I was sleeping on and my entire lower back ceased up and I felt the muscle tighten up so fast and strong it made me nauseated and dizzy. I had to force myself to fall on the floor and the pain was excruciating. Had it not been for a friend looking for me I would have been paralyzed there on the floor for hours. I have since experienced this through the years and doing as little as putting on a pair of shorts after showering which happened two days ago. It takes up to 10 days to fully heal and what I dislike about this condition is that it hits without warning. I have been very active my entire life playing sports and traveling. It's sad when this happens but it won't stop me from doing what I love doing, it just takes a little longer to do what I enjoy doing, but I do it! Life's too short!

Comment from: pepper13, 55-64 Male (Patient) Published: October 21

Injections are the only thing that works for my sacroiliac joint pain. I have tried medicine packs, Celebrex, chiropractors, heat, physiotherapy, etc.

Comment from: Kiiy, 55-64 Female (Patient) Published: April 18

Usually if I stand in one spot for cooking, washing dishes is when the pain from sacroiliac joint dysfunction hits in my lower back to where I have to sit down anytime now! Like quick! Then I get the anxiety pain, breathing difficulty and everything! I also have fibromyalgia!

Comment from: jasper, 75 or over Female (Patient) Published: December 21

I have pain in the lower back like a band across the back. I have pain just above the waistline, feels inflamed. I also have pain down the thigh and into the groin, I think it may be pain from the sacroiliac joint dysfunction.

Comment from: marshastin, 55-64 Female (Patient) Published: May 26

I am trying to minimize my sacroiliac joint dysfunction (si joint pain). From what I have learned, my choices are NSAIDS, prescription drugs for pain, injections or the various exercises and walking suggested here. I will not take anything with steroids, as I already had my eye lenses replaced due to intake of steroids. With NSAIDS, I have way too many side effects, so can only take them 2 or 3 consecutive days. I won't take prescription pain medications until pain is excruciating. So exercising and walking is left. I wonder if heat or cold really helps this joint or they just give temporary relief. Thanks so much!

Comment from: roni, 45-54 Female (Patient) Published: August 27

I will never use steroids again. The last time I did, it totally messed my period up and I ended up having 2 periods a month. I have a hard enough time with periods at 45, I don't need any help. I just want a doctor to do the surgery for my sacroiliac joint dysfunction (si joint pain). I am trying to stay off narcotics. The pain sometimes is too much.

Comment from: Flareup52, 45-54 Female (Patient) Published: August 20

I have been having back pain for more than 20 years. The first time I noticed was after the birth of my 20 year old. I thought I had injured my back by doing the stepper exercises. So I stopped. Over the years the pain became more aggravated and after I had my youngest child ten years ago the condition really worsened. Long story shorter I have tried Meloxicam, Aleve, Ibuprofen and even lost 25 pounds recently. After increasing my exercise (treadmill/slight incline level and elliptical) I have the worst flare-up ever. I was told I have lordosis, degenerative joint disease (DJD), and a slight leg discrepancy. My inflammation levels are off the chart and have been for more than a year. I have decided to try acupuncture and acupressure after hearing many people's testimonies of great results. My first appointment is tomorrow morning.

Comment from: Blnd02, 45-54 Female (Patient) Published: August 19

I have severe pain which it's making me nauseated and lightheaded, I have scoliosis and I have a twisted pelvis, guess I'm having a flare up. If so I wonder how long they last, my sacroiliac (SI) joint is so painful!

Comment from: gwen, 45-54 Female (Patient) Published: August 12

I had three back surgeries, the first one 8/2011. Then after about 4 to 5 months I started having back pain. I had CT scan then I went for revision on my back in 1/12. Then 4 or 5 months I started having pain again, a different type of pain; when I bent over it was hard for me to straighten up. I did CT scan again and went for the second revision. I had no medical insurance so couldn’t go to doctor. After about 6 months I went to spine the surgeon to perform my surgery, he asked for CT scan, no insurance so I couldn’t do the CT scan. So now I’m having severe thoracic pain in upper back and severe low back pain. When I walk from my apartment to take out my trash maybe 50 feet more or less, I get severe hip pain and have to slow down my walking. I had two injection in low back within 3 months and injection in my thoracic 8/8/2014, and now on 9/3/14 I’m going for sacroiliac (SI) joint surgery on the left side. I have fusion on L4 and L5, I think if they remove that fusion that well help the pain I’m having, says the doctor, so I guess that’s that.

Comment from: tristin t, 45-54 Female (Patient) Published: November 08

I had SI joint pain for several years. I finally tried a chiropractor. It works really well and doesn't hurt to have it treated. The pain medications and the shots only seemed to mask the pain temporarily, the chiropractic therapy seemed to fix it. It seems to return slowly over a period of 2 months, so every few months I go back to the chiropractor and get another adjustment.

Comment from: Mel, 55-64 Female (Patient) Published: October 31

I fell at my work place, broke my wrist and fell hard on my right side. I went through physiotherapy, received cortisone shots into my right hip which was very painful. After finding no improvement I had an MRI revealing an annular tear to my lower spine and some bulging discs. I received two injection sessions but no relief. Every doctor I've seen have mentioned S1 joint. I just had an IME (independent medical examination) and he was also mentioning the sacroiliac joint. I hope someone figures out something that will relieve this horrible pain!

Comment from: 45-54 Female (Patient) Published: October 24

I have suffered from what is known as sacroiliac joint dysfunction for about 15 years and after an almost deadly accident it went away but now it has come back. However the difference from the other people’s symptoms is that my pain doesn’t go away unless I am moving or walking. I cannot sit or lie down for a long time. I do yoga and swimming and that helps a lot.

Comment from: Joanna, 55-64 Female (Patient) Published: October 24

I started having sacroiliac joint pain 25 years ago when I was pregnant with my son. I was told I had a stretched ligament and was given some exercises, which I did for a while, and I guess they helped. I have the most trouble with sleeping. From time to time, I have had back spasms while trying to rise from a seated position. At those times, I cannot turn in bed without holding onto the bed to help me. Recently, I started having hip pain on the same side. I've also had pain down my leg for a long time. The other week, I had to have my daughter help me dress and use crutches to walk. I made an appointment with the orthopedic doctor. By the time I got in, I was doing much better. X-rays showed nothing. Today I had my first visit with the physiotherapist. She used ultrasound and electrical stimulation and gave me some exercises to do.

Comment from: Cheryl, 45-54 Female (Patient) Published: August 07

It's been 31 days since I went to the ER, in excruciating pain. They X-rayed my hip and back and found nothing and sent me home with a prescription for pain pills. Second night, second day, went to ER again, still didn't find anything, I didn't want to leave the hospital because of the pain. Went to my primary and he checked me in the hospital. I was there three days and they ran MRI on my hip and lower back, still nothing. The second day in the hospital, the orthopedic doc gave me and injection for bursitis of the hip, said that should help. It didn't. Went back to primary and sent to a pain management doctor and he said I have a good looking spine and that the pain is caused by my SI joint. He still wondered why I was using a crutch though while I was in his office. It hurts to walk and my upper thigh is on fire! Went back to pain management doc today for a Cortizone injection into SI joint, it hurt like heck and he said that I was the only patient that reacted like that as far as me saying it really hurt! The injection will take one to five days to feel some relief, right now; I'm hurting and still have fire leg.

Comment from: goforit, 75 or over Female (Patient) Published: June 14

I had my first battle with SI joint pain two weeks ago. I had severe pain in my left hip. I thought I had a kidney stone, but there were no other symptoms pointing to that. I explained to ER doctor that the pain was in the left hip area, and hurt all the way through the left side and down the front of the left leg. He did a CT of my abdomen. Then he sent me home with a prescription for Tylenol #3 with instructions for me to follow up with my primary care physician for "abdominal pain and vomiting." I had no abdominal pain other than that radiating from the hip, and I had no nausea or vomiting. After reading that so many of you have suffered with this for years, it makes me glad that I am an old lady!

Comment from: James Bond, 35-44 Male (Patient) Published: June 13

I've had left sacroiliac (SI)-joint issues for a year. It began as several years of on and off back pain. I worked out and stayed active but started having hip pain and trigger point pain in my left hip after running for a few weeks. After a series of injections I could not bear weight on my left leg and was on crutches for nearly three months. The doctor kept saying to push through and go to physical therapy. I did for some time only to find out I was making it worse. I was supposed to rest awhile after having these nerve blocks. I've been strong, healthy, and have worked out regularly for 20 years. You have to keep pushing to get the correct diagnosis.

Comment from: melissa, Female (Patient) Published: May 16

I am a 30-year-old who has arthritis in my right SI joint. This condition has been the most frustrating experience of my life and has made me feel like a crazy person. It started out as lower back pain and muscle tightening. The first doctor I saw gave me muscle relaxants, which never worked. As the years went by, I saw several doctors and specialists. It was very frustrating. My physiotherapist finally said that it was the SI joints and told me to get X-rays. These showed that I have arthritis. My family doctor sent me to a sports medicine doctor, who sent me to a pain management doctor. He told me my pain had nothing to do with the arthritis and it was nerve related. He then gave me multiple spinal nerve blocks, which did nothing. After telling me it’s nerve related, I made him send me to a neurologist, who recommended an MRI, which was negative – except for the arthritis. Now I am currently waiting to see a rheumatologist. I’ve been in pain for almost six years, with no end in sight. Some days, I can barely walk or sleep. While sleeping, things seize up. Just the simple action of getting off the sofa is excruciating. The worst is that I can’t exercise because I’m in pain. I’ve gained 20 pounds and can’t work it off. My advice: if you have SI joint pain, don’t let the doctors tell you it’s nothing. Get X-rays and demand to see a specialist.

Published: July 29

I have had back problems for a few years, but I recently injured my back assisting a resident at work. I am an LPN and was helping one of my residents that was choking. I have been in a lot of pain for about 4 months now and my doctor is considering SI joint injection. I am currently in therapy, but it is so hard to exercise with all the pain I am in. It seems like I make a little progress and then I get set back again. I go back to the doctor today and I know he is going to want to schedule the injection. If anyone has any comments, please post it at this site so I can read it. I have tried so many different medications that it is upsetting my stomach and possibly even my liver. My family Dr. informed me that my liver enzymes are elevated and she's not sure why. What are my options at this point? Someone please give me some good advice. I am only 29 years old and I am so scared that this may cause long term complications. Thank you to anyone that is reading this. Please comment back.

Published: July 15

One year ago, I had a Morton's neuroma removed from my right foot. I thought this was the end of my problems, which was mostly just my foot. The surgery made a bad situation worse. My SI joint began to hurt as did down the side of my leg and my hip. Some places actually hurt to touch. I have taken dose packs of steroids, had an injection, have done six months of physical therapy, taken a medical leave from work (I teach and the tile floors made it even worse), tried all kinds of pain killers, muscle relaxers, water therapy. I’ve had an electrode attached to my SI joint with medicine on it that was put directly on the problem area, massage therapy, and so many other things I can't even recall them all. I am now trying a chiropractor and acupuncture. I still have no relief.

Comment from: Machine Review, 25-34 Male (Patient) Published: October 10

I have suffered from back pain since last 6 months with sacroiliac joint dysfunction.

Comment from: Paul, 55-64 Male (Patient) Published: April 17

I note in your very helpful article that you do no reference hemochromatosis as a possible cause for sacroiliac (SI) joint pain. As a sufferer of hemochromatosis I believe from what I"ve read elsewhere that hemochromatosis is causing mine. Something I will take up with my doctor when I return from vacation.

Comment from: Ssmccartney, 25-34 Female (Patient) Published: March 17

I have suffered from sacroiliac joint pain for 3 years now. I have done physical therapy, 3 SI injections, I continuously see a chiropractor. And have had no relief my pain varies from an irritation to I can"t get out of bed.

Comment from: Shannmack, 35-44 Female (Patient) Published: November 14

I had injections for my SI pain about 4 months ago. They have made a huge difference but every once in a while I have a flare up. I stretch and take a couple of Advil and apply ice and sometimes that works. Other days I just have to ride it out.

Comment from: Cheryl, 45-54 Female (Patient) Published: August 20

I'm still having pain with walking and my left upper front thigh is burning and sore. I have four more days for my second injection into the SI joint. The doc says that this shot will make a 70% difference in the way I feel. My kitty wants me up and playing with her right now, and just bending down to get her ball hurts. I can't go back to work yet, because I can’t walk without pain and a limp.

Comment from: thunder, 55-64 Female (Patient) Published: August 07

I am having extreme pain in the hip that radiates across my back and down my leg. I have had this before from lifting numerous heavy objects at work. A good chiropractor solved the problem last time and I am currently seeing him again. I am already starting to feel relieve. I wear a belt in between visits to stabilize the hip joint while the ligaments heal.

Comment from: hayscynthia9, 25-34 (Patient) Published: August 07

For the 29 year old who posted on July 29th.... Were you able to find anything out?? I am 25 and just started LPN school. Got an MRI, have a "small" amount of arthritis in my SI joints, wait tables where I pull on the joints but the last specialist I saw gave me anti-inflammatory and physical therapy. It has been five days and is getting worse. I am about to call now and ask about getting an injection. Let me know if you have any new information or advice and I'll do that same.

Comment from: Susan, 45-54 Female (Patient) Published: July 17

I have injured my sacrum three times. once, whiledancing, I over extended my hip, and wow, the most painful moment of my life. The second and third times, both bending to the side leaning over and lifting something heavy and bulky. I am hypermobile, it is too easy for me to over extend myself. Since understanding what causes this to happen to me, I am now very careful to tighten my stomach muscles, and keep my torso straight, vs. twisted, when lifting. additionally, i am sure to get the item iam lifting as close to my body as possible .

Comment from: Barber21221, 35-44 Female (Patient) Published: May 31

I have had SI joint pain on and off for a few years now. When I have a flare-up, I see a chiropractor and treat with ice. That, along with some gentle strengthening exercises has meant all the difference. Light stretching has also been beneficial. I find as I age - if I exercise and stay strong, less things seem to ache. Good luck!

Comment from: courier, 45-54 Female (Patient) Published: May 15

Get the injection and don't do any motions that irritate the SI joint, like bending, twisting, squatting, lifting, carrying, kicking doors or moving items with your legs. Stop the job that is causing the pain. Stretch daily and do yoga – keep walking on level ground.

Comment from: 25-34 Female (Patient) Published: August 04

I started having pain in my SI joint in October of 2007 and have since had four injections and numerous rounds of physical therapy. I believe that this treatment has helped tremendously, and I would recommend it. I am 27 and this has been a very frustrating experience for me, especially after the first injection only gave relief for a short time. I am glad that my pain specialist talked me into having further injections because it has made a big difference. I am not completely cured, but I am glad to be a functioning member of society again. I would recommend the injection and go from there. A really helpful physical therapist would be a really great investment as well.

Published: August 01

I injured my back in February of 2007, and last month, I finally got diagnosed with SI dysfunction. The doctor won’t listen when I tell him that the medications Hydrocodone and Gabapentin don’t help. I hurt all the time from my lower back radiating down to my toes. The leg pain started three months ago from the X-ray guided injection.

Published: July 15

After leaning over for several minutes, I was unable to stand upright due to severe pain from the left to right of my lumbar region. Next, I sat down for a lunch break and was not able to stand up. I went to an urgent care facility where they diagnosed me as having severe lumbar strain. After my first week of physical therapy, I have been told that I have an SI problem. After the first week, I felt as though I was 90% healthy and then later that evening after physical therapy, I was in severe pain for the entire weekend and resorted to my medications. I am performing core strengthening exercises now this week and have physical therapy three times per week.

Published: July 11

I have suffered with low back pain for more than four years when we found out is was my sacroiliac joints. I soon went and had SI joint injections that hurt so bad and only made the problem worse. It got to the point to where I could not walk. My doctor said surgery was my only hope. SI joint dysfunction is a bigger problem than most people know. My joints would not stay in place anymore. Only for a few hours then they would be out again, it had my hips out of line. The pain was so bad, sometimes I would cry and scream. Now I'm three months post-surgery. I have four screws placed holding my SI joints together and I cannot get over how good I feel, how I can walk with no problem. I still have a small amount of pain though. Injections are working at the moment.

Published: July 07

I am a 36 year old mother of two. I started experiencing severe SI joint pain during my second pregnancy last year. The pain lessened after the birth of my son one year ago but has gradually returned and increased in frequency and severity. I wear a stabilizing belt and am trying to do lower abdominal and pelvic floor exercises with a physiotherapist, although there is not much time for this with two young children. The biggest stressor on the joint is from carrying my son who is 1 year old and 28 pounds, while I am only 110 pounds and not very strong.

Published: July 07

I was hurt on the job, lifting a patient (I am an RN), and I have been in a terrible amount of pain since then (it has now been about eight months). I had an MRI done of the lumbar spine and have mildly bulging discs at L3-4, L4-5 and L5-S1. My pain starts at the middle of my back and goes down to my hips. I have sharp pain starting at my right lower back and down into my right leg. It does soon the left also, but never as severe. The bottoms of my feet go tingly when I sit for any amount of time, especially when driving, as well as my big toes, part of the second toe and sometimes up around the outside of my calves. The right leg feels as if it is going to give out many times when I walk. My doctor believes it is from my SI joint, so I underwent an SI joint injection under fluoroscopy. I would say that I got about a 50% relief for about the last five weeks; now it seems to have worn off. I am frustrated and in pain most of the time, and they just keep offering me trigger point injections which aren't helping anymore, and pain pills/muscle relaxers.

Published: July 07

I was told I had arthritis of the right hip, but I kept telling the doctor that it was more in my groin than in my hip...especially when I sit in the car or in the chair at my desk at work. Even if I am having a somewhat "normal" day, those two things will send me into a tizzy. I also have a bad left knee, so I don't have a good leg to stand on! Then I went to a chiropractor and after she watched me walk the first time, said she didn't think I had a hip problem so much as an SI problem, and then she worked on me. She gave me exercises to do and now, before I get out of the car or up from my chair, I bend the right knee and I can get up with less pain. I also get massages on a regular basis and these two things usually work. I am unable to get the injection in the SI area as my doctor suggested because I do not have insurance at the moment. I think my chiropractor and masseuse will be my saviors this coming winter.

Published: July 07

I've been experiencing back pain for about 18 years and had back surgery eight years ago. However, since then, I have been having this excruciating pain in my low back on right side. I have been to see numerous doctors and can't seem to find why I am having this pain. Finally, a pain management specialist diagnosed SI joint dysfunction. The symptoms were obvious but no one ever diagnosed it until now. I am ecstatic just to know finally what problem is instead of it being a mystery. But now going to physical therapy and doing exercises doesn't seem to do much.

Published: July 07

I've had SI dysfunction since my son was born. It is mainly on my right side (pelvis and sacrum). It also radiates to the left side and affects my legs and knees. It hurts where I bend over. By the end of the day or sooner, I feel like collapsing. My legs get weak and achy. I also have lumbar scoliosis, which is probably caused by this disease. My right hip is tilted and higher than the left hip which is causing all kinds of radiating pain. Everyday, the pain is somewhere different. Other days, it is everywhere at the same time. That's when I will take Vicodin or Aleve. I find resting my back by lying on a firm surface (carpet) and putting a rolled up pillow under my head helps my neck, back and pelvic problems. Sometimes my tailbone acts like it is being strained. The pain is a strained, pulling and painful sensation. It causes me to walk funny, if I can walk at all. My hips including my pubic bone will "freeze" up. It's all so weird and there is no MRI scan that will prove SI dysfunction.

Published: July 02

I am a 39 year old mom of three. I have been suffering with SI for over 10 years now and I've had Chiropractic treatments and Physical therapy and nothing has worked for me. I always thought it was my lower back but it wasn't. Now that I know what I'm dealing with I have no other choice but to turn to a pain management doctor, because my pain has gotten so unbearable.

Published: July 01

About 1 year ago I began having flare-ups of what I now know is the sacroiliac joint. The pain was so unbearable I would have to leave work and to my puzzlement, severe nausea always accompanied the pain. Ibuprofen did help, as did lying down on the affected side or on my stomach. And as one of the past posters stated, I could lift nothing of substance or bend in any way without it bringing on a flare-up. I have been seeing a chiropractor for about 2-3 months and while I do continue to have some flare-ups they are much milder and much less frequent. I can also do things such as gardening and yesterday I was even lifting bags of mulch without pain.

Published: July 01

I have suffered with SI joint pain since a car accident over 10 years ago. I have tried everything in an attempt to ease the pain when I have a flare up. Currently I undergo RF injections at the Pain Management Clinic at my local hospital. During this procedure the nerve endings are effectively "cooked", and then they take however long to grow back. This has been the most effective treatment for me personally. On any average day I have constant pain in my SI joint, but you just learn to live with it. I take pregabalin, tramadol, naproxen and strong paracetamol on a daily basis. I feel it's a matter of me controlling the pain, and not the pain controlling me.

Published: June 27

My assumption is that I have some sort of Sacroiliac problem however, seeing many doctors with at least 3 MRIs and 2 CTs they do not see anything abnormal for a 66 year old man. At least nothing that they get concerned with. The symptoms are and not restricted to includes pain in the S1 area with numbness that projects down the leg into the hip and then into the feet. If I stand in one place for 5 minutes the left hip gets painful and numb and then of course down the left leg to the foot. It really gets bad if I don't keep moving or sit. At some times you can't find somewhere to sit and/or you have to stand in line. What a pain. I end up not desiring what I had to stand in line for. Sometimes I think the medical community is not interested unless it is an easy diagnosis with a quick fix or, at least treatment.

Published: June 27

I have had SI problems since an accident resulted in a hip contusion. I've been through physical therapy and do stretching every day. When it goes out, I now go to my Chiropractor, who I have been seeing for at least 8 years for it. It is the only thing that puts it back in place. You do have to do your stretching every day though, especially for your hamstrings and do hip flexion. I would highly recommend seeing a chiropractor. By the way, I am also an RN.

Published: June 23

The SI pain on my right side started several months after a fall in which I sprained my ankle knee and hip. Physical therapy and ibuprofen haven't helped. The only real relief is inactivity. Mowing the lawn, lifting anything of substance and even extensive walking cause it to flair up. I am curious to know if gout may be involved as I have had that in my elbow and thumb within the past two years. I'll be pursuing that angle with my physician.

Published: June 23

I have had SI joint problems for 10 years. I was told that I would have problems all of my life, and something as simple as twisting my torso to get in the car could cause the problem. I have had four bad "attacks", three happening in the three years. When they happen I take 800 mg of Ibuprofen four times a day for many days and wear an SI joint belt. I feel this is the best route, as they immobilize the joint. This is a joint that is supposed to move just the tiniest little bit. Problem with the belts is they are hot, and I am overweight, so many are too small.

Published: June 20

I was just diagnosed with Sacroiliac Joint Dysfunction and I have been in pain since a fracture to my L5 13 yrs ago. I am pursuing physical therapy and hope it works. I am so sick of this pain that is so unpredictable.

Published: June 09

I have had SI joint pain on and off for over 20 years. The first episode was misdiagnosed as a disc problem (and subsequently) I was given traction which of course made it worse. So I had months of severe inflammation This was not resolved until I had manipulation and this has been the case ever since UNTIL NOW.I have had four sessions with a qualified osteopath, whom I trust completely, and he says the joint is now mobile But the inflammation persists and is affecting my life. I am now 66 and I seem to be stuck with it I am now returning to my own doctor but still feel the answer lies with manipulation and associated treatments.

Comment from: angela, 35-44 Female (Patient) Published: August 12

Hello to the nurse with the back problems. I have suffered from SI dysfunction for 10 years now and have tried everything under the sun. In fact, like you I was in my late 20's. The only thing that helped me was acupuncture. I did the injections, PT, meds, I go to the gym, I am slim, blah, blah, nothing worked. Acupuncture was amazing and I highly recommend it.

Published: August 01

I have had 2 SI joint injections. I will highly recommend the injection. Depending on individual pain tolerance you may need a sedative of some sort before the injection. I did not, but everyone is different. A person will always have to be mindful of lifting, jerking, twisting, bending, sitting without crossing the legs and so on. But most SI joint pain can be tolerated. Not welcome, but tolerated.

Published: July 09

I am a 39 year old mother of two. My sacroiliac dysfunction started about five years ago and was just recently diagnosed last week. All of the sudden, I started having severe pain in my lower back and my neck. I received an injection as a diagnostic tool last week.

Published: July 28

When I try to walk just short distances my si joints are so painful I don’t feel that I can make it back to my house. I awake at night with pain. If I lay on my side I have terrible pain and I feel as if my legs are going to stop working because of all of the pain.