Patient Comments: Restless Leg Syndrome - Treatments


What method did you find most effective in treating your restless leg syndrome? Submit Your Comment

Comment from: Garyisa, 65-74 Male (Caregiver) Published: February 23

I take 10 mg D-ribose and stir in with 1 scoop Energy Revitalization vitamins in 8 to 12 oz. of water. Fixes my wife's torment from restless leg syndrome within 10 minutes. I am sure it’s the D-ribose, key element in cellular Krebs cycle. Your body is not making/recycling enough ribose for your demands. Anyway, this does wonders, every time for my wife. You're welcome.

Comment from: CryingAngel, 45-54 Female (Patient) Published: January 23

I started suffering with severe painful restless leg syndrome (RLS) when I was 24. It started out occasional and when I hit my mid 30s it was every night and during the day. I was up walking, stretching and bouncing for 3 to 4 hours. After a surgery which did more harm than good and did not cure the RLS I was eventually put on oxycodone and gabapentin which I have been on for 10 years without any flare ups. Of course now with the government deciding my health care my doctor is telling me to get ready to suffer again.

Comment from: ChristineCoulter, 55-64 Female (Patient) Published: November 20

I have been taking pramipexole every night for years and it worked for restless leg syndrome. But I had a revision hip replacement 7 weeks ago and lately my legs at the sides is driving me crazy.

Comment from: LifelongRLS, 45-54 Female (Patient) Published: October 30

They finally found the restless leg syndrome (RLS) cure while researching something else; potassium citrate powder. Google it. You will find the study in Bangladesh where 100 percent of patients had no RLS after 45 days on 1/2 tsp in water (with food). I've had RLS my whole life and it works for me. You can't take more than the dose in the study though as potassium citrate (although natural and in Gatorade, for example) in too high doses is potentially fatal. So keep that in mind! But just take it as directed.

Comment from: Lemurqueen, 45-54 Female (Patient) Published: August 29

Nothing helps. I have had a movement disorder which seemed like restless leg syndrome but has morphed into full body muscle contractions that begin when I go to bed. Nothing has been effective. I have yet to find a doctor who can diagnose my condition, which has worsened over the years along with the increased dosage of ropinirole and gabapentin I've been prescribed. I just finished tapering off of Effexor which may or may not be the cause. I barely sleep now.

Comment from: Sunny, 55-64 Female (Patient) Published: August 07

To stargazer who posted that she ended her relationship. Chlamydia can lie dormant in the body for many years causing a low grade infection without symptoms. It could potentially flare up and cause a symptomatic infection, especially if there is an alteration in the person’s immune system, such as a severe cold or flu, cancer or some other severe illness. He could have been telling the truth.

Comment from: Lani, 45-54 Female (Patient) Published: August 07

I was desperate for a good night's sleep and want to share my idea in case it helps someone else. I bought a massaging seat topper, laid it flat on my bed and turned it around so the back massager runs up and down the backs of my legs. I even focused it on my calf and thigh where I needed it most. It goes off automatically in case I fall asleep. No discomfort all night. I'll keep hoping for a cure for restless leg syndrome, but this helped a lot last night.

Comment from: Nonnie, 55-64 Female (Patient) Published: August 06

Tramadol by far is the best remedy for my restless leg syndrome (RLS). My RLS was so bad I could not sleep. It was every night. Since taking the tramadol, I've not once experienced those symptoms again.

Comment from: LAC G Canada, Male (Patient) Published: February 01

After suffering from restless leg syndrome (RLS) on and off for 52 years and getting worse over the past year to the point of being unbearable, (I`m now 83 years old), I`ve discovered that magnesium oil spray on my legs and Vick`s VapoRub on my feet has allowed me to get 4 to 6 hours uninterrupted sleep for the past 5 nights. Too early to tell if this will continue but it`s been nothing short of a miracle and a great relief. Hope this helps other sufferers of this dreadful RLS.

Comment from: Nantuka, 75 or over Female (Patient) Published: October 07

I so hope that one of these days someone will be able to find a cure for restless leg syndrome (RLS). I am 76 years and have had RLS since I can remember. I have noticed as I age it keeps getting worse and RLS really robs all of us of a good night’s sleep day after day. Growing up I had scarlet fever and then rheumatic fever at age 5 and 6 years old. I have fibromyalgia, borderline diabetes, leaking veins in both legs, surgeries, so on and so on. When I cannot stand the restlessness anymore I use my prescription lidocaine patch 5 percent by QualiTest (only) and place a patch at the bottom of each foot with my diabetic socks on to keep the patch on. I also am on oxycodone and Requip. When my feet start to feel so cold it is not much later the restlessness starts up. I hope this helps someone like it has helped me.


Restless Legs Syndrome: 16 Natural Remedies and Treatment for RLS See Slideshow
Comment from: Vivianne, 55-64 Female (Caregiver) Published: April 05

I have had restless leg syndrome for years and the only thing that has ever help me stop it when it starts is to wash my legs with a cold water face cloth. It seem to change the body temperature and then I fall asleep instantly thereafter and sleep all night long. It works well. Best of luck.

Comment from: Mazie, 75 or over Female (Patient) Published: March 25

I have been suffering with restless leg syndrome (RLS) for over 3 years. When a friend who has an autistic child was visiting me, she suggested lending me her child's weighted blanket to try on my leg at night. Reluctantly I accepted her offer. When I placed the blanket on my leg, within minutes, I had relief. Now I own a small weighted blanket and it does the trick every time.

Comment from: Tara, 55-64 Female (Patient) Published: March 04

I have been a lifetime sufferer of restless leg syndrome (RLS). I finally discovered a cure. The problem is dairy. I found this out by accident. Eliminate it from your diet and you will be totally free of RLS. If I just have a glass of milk or put cheese on anything, bam, it is right back. Believe me, eliminate dairy and you will no longer have RLS. The culprit is a protein in milk called casein. It is super high in cow’s milk. It doesn't seem like doctors have associated it with dairy yet, but I know many people who have discovered the milk/RLS connection and are relieved once it is eliminated from their diet, including me. Give it a try. You have nothing to lose but RLS symptoms for good.

Comment from: david, 65-74 Male (Patient) Published: December 10

I was using Sandoz pramipexole for restless leg syndrome (RLS) and it worked well for a long time. I tried quitting, and my RLS came back. I was starting to have some side effects from pramipexole. This may have been caused from a new medication I am taking. I am going back on pramipexole, anything is better than RLS.

Comment from: rlsbigtime, 65-74 Female (Patient) Published: November 25

I read that iron deficiency may be the reason we suffer from restless leg syndrome. Mine is getting worse. Requip works but I am starting to need more in the middle of the night. I want to try anything that will help and maybe will mean I do not need extra dose of medicines. I wonder if I can find relief by increasing the iron in my diet. I see Grape Nuts, Total and some other cereals have high percentage of iron.

Comment from: beerycondel, 65-74 Female (Patient) Published: October 28

I take Mirapex for my restless leg syndrome, but don't particularly like it since it also causes nausea and diarrhea.

Comment from: sheriseams, 55-64 Female (Patient) Published: October 08

Vicks VapoRub is so much less expensive than PK4 spray which also works for restless leg syndrome. It is the eucalyptus that reduces swelling. The restless leg has to do with inflammation inside the legs and by reducing the swelling, the pain is relieved. I have had the problem since childhood and didn't have a solution for many years.

Comment from: Len, 55-64 Male (Patient) Published: July 08

I am 55 and use Carbilev 25 mg 30 minutes before I go to bed at night and it works for my restless leg syndrome. Without it I cannot sleep.

Comment from: SusieQ, 45-54 Female (Patient) Published: March 03

If you are a woman and about menopause age, progesterone cream rubbed into your shins may help with your restless leg syndrome. It works for me every time. I'm better within 10 minutes. You can buy it over the counter or ask your doctor for a prescription. I started having restless legs at about 46 (peri-menopause age) and still occasionally have it at 51. (I tried all kinds of vitamins and supplements, antidepressant, gabapentin, and I walk 3 miles nearly every day, but it did not help.) It was a hormone thing for me. Good luck!

Comment from: sven, 55-64 Male (Patient) Published: January 07

I started having totally sleepless nights due to restless leg syndrome. I found that 300 mg of gabapentin shuts it down 100 percent. It is real cheap and has no side effects as far as I can tell. The bad news is it seems to last me only about 3 hours. It takes an hour to kick in so I found a rapid release Tylenol helps bridge the gap. I’ve only been on it for 2 weeks. There is a time release version, Horizant, but it is patented and costs over USD 200 a month.


What kind of disorder is restless leg syndrome (RLS)? See Answer
Comment from: Denise, 55-64 Male (Caregiver) Published: November 05

My husband has had restless leg syndrome (RLS) for years, since we've been married and that's 33 years. He's been on Mirapex forever too and I'm sure I don't have to tell you all what kind of social life we have because of it. I read an article last night that might just change everything for us. It was an article about Vicks VapoRub and how it relieves the symptoms. He has such horrible burning he never sleeps through the night. Last night he did. All the way through the night. He was in such pain and having read the article I thought we have nothing to lose. It was life changing and that's understating it. You have to try this.

Comment from: Metoo, 55-64 Female (Patient) Published: November 04

I have suffered with restless leg syndrome (RLS) most of my life. I have taken many different drugs, some have done nothing. Some have helped for a while. I now take sleep medicines. I am asleep within 10 minutes. I sleep all night. I wonder why the doctors did not think of this sooner.

Comment from: Suzanne, 75 or over Female (Caregiver) Published: October 16

My mother, who has terrible restless legs syndrome, is 97 years old. She was in withdrawal from Percocet. I have tried remedy after remedy and nothing worked. Then I read that someone had had success with tonic water with quinine. I gave my mother about 8 oz. of Schweppes tonic water and about half an hour later her restless legs had stopped and she was able to sleep for the first time in about a week! Hope this helps others.

Comment from: Mila74, 35-44 Female (Patient) Published: September 04

I have been suffering from restless leg syndrome (RLS) for the past 13 years or so. At first I didn't take much notice but as I slowly moved to my 30s it worsened. So I started taking tramadol which works like magic. And I can’t take Maxolon, it worsens my RLS. I don't think a lot of people understand my condition. I have been told ointments will help but they don't. To avoid any addiction to tramadol, they have added gabapentin with it. Not much difference. So back to tramadol.

Comment from: Flora, 35-44 Female (Patient) Published: November 21

I am a RLS (restless leg syndrome) sufferer for many years now. I was so frustrated and tired all the time. I often felt like my general physician won't really believe me when I spoke to him about my condition. About 2 years ago i got injured in my right shoulder, my specialists prescribed me some oxycodone for the pain. Yes, I know that it is a narcotic but it has been the only medicine that has helped me. I only take one pill of 10mg before bedtime and I sleep like a baby with no morning drowsiness. I had previously tried taking magnesium and B12 and more iron supplements but to no relief. I also tried Mirapex and baclofen but it did nothing. I also don't drink coffee nor smoke. Needless to say that I also have RLS during the day but tolerate it with constant movement as I work. When I go to bed it is at its worse. I know that taking narcotics is not the right route but it is the only thing that has worked for me.

Comment from: Vonnierae, 65-74 Female (Patient) Published: October 31

I have had RLS (restless leg syndrome) since I was a child and the older I get, the more intense it is. Finally, when in my 40s, I was diagnosed with RLS. Mirapex lessened my symptoms but I was continually increasing the dosage to decrease the symptoms. Then I went to a sleep specialist and he prescribed ropinirole plus Tylenol #3 at bedtime and it works most of the time. I finally get consistent good sleep. I use a weighted blanket, lap size, when I need to sit for any length of time and travel with it. The only thing that stops an episode is an extremely hot bath immersing all but my head. Within 2 minutes the symptoms are gone. The water needs to be as hot as you can endure. I soak for 10 to 15 minutes and dry off with a towel that I warm up in the dryer while the tub is filling. I roll the towel and it stays toasty until I need it.

Comment from: VEE, 45-54 Female (Patient) Published: May 15

I only got restless leg syndrome when I was pregnant and I have had it since. I notice I get it when I sit down after an hour or so. If I go to bed it goes away. Caffeine makes it worse. I notice in the past year or two, I have also been getting a cold foot and nothing warms it up. In recent weeks I am now also getting low back pain and pain in the right buttock which is the same side as the other issues. I blame an injury to my coccyx 30 years ago. However, my mother and brother also have it. Nothing works.

Comment from: FeelT2, 65-74 Female (Patient) Published: March 22

I have suffered with restless leg syndrome (RLS) since I was very young. I had polio when I was about 7 years old. I thought maybe that had something to do with it. I had leg cramps usually, in the right leg, mainly the calf and foot, in my teens, during the day and night. This progressed, in my 20s, to the crawly feeling on my skin or liquid going down my legs. I always thought it was blood. I had the soles of my feet burning hot. Some of my sandals turned black, so I knew that it was not 'all in my head as many doctors told me. It hurt to have anything touching the bottom of my feet. I still have that problem now, at night mostly. I am 66 1/3 years old. I had insomnia already plus, my legs would not quit jerking and I had crawly feelings and jolts of electricity or stabs. It was also deep in my bones and it would feel as if something was chewing on my leg bones. Then, in my 30s, pain started in my right leg, then in both legs, up to the hips and including both feet. For the restless legs and cramps, which twist your feet and legs into impossible positions, quinine or quinidine once a day, at night. It really helped me. But you must take it daily and not just when you think it might happen. It is in tonic water but not enough to stop the leg camps or RLS. Hope that this has been helpful.

Comment from: Tilton92, 45-54 Female (Patient) Published: January 14

I have had restless leg syndrome (RLS) for about 14 years. I have been on several medicines for it but they just make me feel really sick so I stopped taking them. My legs get so bad at night that the only way I can describe it is, it feels like I could twist my legs and ankles off my body. The only thing that helps me is for my husband to rub my legs like a deep massage, five minutes of that and I am asleep in no time. This is a horrible condition that I wish there was a cure for.

Comment from: Cat, 45-54 Female (Patient) Published: January 09

When I was in my twenties, I would occasionally get what I called ‘rubbery legs’, in the evenings. When I was in my thirties my restless leg syndrome was almost unbearable during the third trimester of both of my pregnancies. As I have gotten older, it has gotten worse. Tramadol helps but I don't like the way it affects my mood. My doctor just prescribed Mirapex ER. I hope it helps!

Comment from: Weeroo, 55-64 Female (Patient) Published: November 19

For restless leg syndrome, massage with a rolling pin, always rolling up from ankle toward the heart. Do not do this if you have bad varicose veins. Very effective and easy to do yourself.

Comment from: 55-64 Female (Patient) Published: March 03

I have had RLS (restless leg syndrome) for several years, not knowing what it was for the most. It started out with my right leg feeling like it had no blood, just a weird feeling but recently it feels like hot liquid running up and down my leg along with spiders crawling, the whole gambit. Now it has gone to the other leg as well as my right arm. I am on Requip along with Tegretol. I take the Requip about an hour before bed or it won’t work. I was just recently diagnosed with sleep apnea as well, I think they run hand in hand, get tested, you don"t want to die in your sleep.

Published: April 09

I was diagnosed with RLS about 10 years ago. I first noticed the sensations while riding in the car. I thought I was going crazy until I went to the doctor for my annual physical and just happened to mention the symptoms to her. Thankfully, she immediately knew what it was and prescribed amitriptyline (10 mg) to be taken at bedtime. Within three weeks, I was finally sleeping through the night. She told me she wasn't sure why this particular drug works for RLS, but that she had heard positive results from others. It takes several weeks before the results "kick in," and when I went off the drug several years ago for about six weeks, my symptoms returned. I'm hoping it works for others; it worked and continues to work for me with no increase in dosage and no side effects other than possibly (can't be sure) making it more difficult to lose weight. It's also cheap.

Comment from: Helen, 55-64 Female (Patient) Published: June 03

My restless leg syndrome (RLS) was diagnosed two years ago. I get continual sensations in my legs, sometimes my whole body. My legs can have a burning feeling. Jerky movements can happen at any time. I choose to take no medications. I’m learning to keep life stress-free. When at work, I try to walk or move as much as possible. Exercise, especially running, helps me control my RLS. Anything cold can relieve symptoms, at times. I’m sleep deprived, so I try to take naps when I can.

Comment from: Sandi, 45-54 Female (Patient) Published: April 22

I am 48 years old with RLS. My first symptom was about 15 years ago. I was diagnosed three years ago and have been on Meriplex. The doctor recently doubled the dose; it doesn't seem to work well. I am miserable. Last night was the first time I had severe arm jerking. In the past, the only thing that had helped was moisturizing my feet and putting socks on; it seemed to help with sensitivity. But now I am lost as to what to do! I am exhausted and sad; it is affecting my everyday life.

Comment from: linda, 55-64 Female (Patient) Published: April 13

I have had RLS for only the last 4 years. I am 59 and very involved in high activity and stressful job. The lack of sleep was overwhelming for the first two years, and there were moments when I thought this was it, no releif. My doctor put me on Pramipexole and from the first night it worked. I do have a session about once a month where it is bad and I count my blessings that it is not every night. However there is a manufacturers "short" of this drug and cannot access any. My doctor now put me on Ropinorole and it is not working, 3nights on 3 nights up all night...rats! I will try Mirapex as some suggested. Once you get the sweet dreams it is hard to go back to the nightmare!

Comment from: Irishlady, Female (Patient) Published: February 14

I am a retired 65 y/o female who has had RLS since my teens. I never realized it was a neurological disorder that could be treated. I have had problems sitting for any length of time and lying in bed when it gets especially bad. Sitting while teaching was so difficult. About 2 years ago, I saw a doctor who prescribed Mirapex. I also take iron and vitamin C, as my Ferretin level was low. I take the Mirapex routinely at bedtime, and intermittently during the day if I have symptoms or know I will be sitting a long time. I have had tremendous relief, although I still have occasional humdingers about once a month. On those nights, I feel especially grateful for the relief I get most of the time!

Comment from: obscura, 65-74 Female (Patient) Published: January 31

I have found that capsules of l-tyrosene, an amino acid and calcium and magnesium tablets (+ boron), help considerably. When at its worst, I take one of each and also take both each night at bedtime to try and stop it happening. It does not seem possible to prevent it entirely but the frequency of the RLS sensations is much less on this regime for me. Hope this helps. I first realized that calcium could help with this problem when I was pregnant, if I took a calcium tablet (crushed - it was many years ago) this would stop it.

Comment from: koradoras, 65-74 Female (Patient) Published: January 18

I have RLS since the age of 22. I am now 67. Having a job and raising my two children is unbelievable without sleep every night. I had about 2.5 hours sleep a night. My feet get hot, veins swell, a snake like feeling up and down my top half of my legs, legs jerking, sometimes it’s the right leg, sometimes the left sometimes both. I couldn’t even control going to a movie. Life was a hell during those years. Years later at the age of 40’s I read in woman’s magazine about mirapex, so I asked my doctor if I could try, long before this he prescribed many meds and to my disappointment it did not work. The first night I took the mirapex I fell asleep peacefully for the first time in 26 years. Now I can’t live without them. I slept in and was late for work first time ever.

Comment from: jayesh , 25-34 Male (Patient) Published: June 27

I take a medicine Pramipex 0.5 for depression, now I feel very good as far as depression goes. If I stop this medicine I get restless leg syndrome.

Comment from: Tim, 65-74 Male (Patient) Published: July 28

I take 3 mg of ropinirole for restless leg syndrome, which helps a little. Don't laugh but I am putting a bar of soap in my bed at night and it seems to be working.

Comment from: RLSgetsWorse, 55-64 Female (Patient) Published: December 04

This sounds crazy and it is so simple. Just put a bar or chunk of soap under your sheets by your feet when you go to bed. You can even leave it in the wrapper. I don't know how it works but it does! Doesn't cure restless leg syndrome but does cut down the symptoms drastically. And no need for drugs.

Comment from: Living with it, 45-54 Female (Patient) Published: October 15

I have had this horrible problem for most of my life. I remember being a small child kicking the seats and walking my feet and legs up the windows to get the coolness to settle my legs. I am now 50 years old and currently taking ropinorole. This works but it takes about 45 minutes of suffering for it to finally kick in then I get tired.

Comment from: AKA, 65-74 Male (Patient) Published: June 28

What a journey... I went through a lot already. What helps me is: - no starches (tomatoes, potatoes etc) - no cafeine (although sometimes a short black does help!) - less dairy product - tens machine if symptoms not too bad. - magnesium (liquid spray on skin is best absorbed) - no MSG - deep thumb massage in calves muscles - feet straight up the wall for 20 min. - melatonin 3mg for sleeping - aspirin sometimes - medical marijuana in any form - accupuncture - meditation Good luck to you with these :-)

Comment from: brenda, 45-54 Female (Patient) Published: March 29

I am 50 years old. I have suffered with restless leg syndrome for as long as I remember. I think I had some of the symptoms when I was a child. My grandmother called it "growing pains." Recently I saw my doctor for this condition. I’m now on the generic for Mirapex (pramipexole). I feel like it is working, as I haven't even been awakened as usual, shortly after falling asleep. I was getting symptoms more days in a week than not. The other medications I’ve tried to treat restless leg syndrome haven’t helped. I was on these medications for other purposes. I really am starting to have faith that this medication will help me, so I may have more restful sleep during the night.

Comment from: Jenny, 55-64 Female (Patient) Published: June 09

After going through many expensive and strong drugs I finally found that Tramadol (Ultram) works best for me. Luckily Tramadol works, has no side effects and is on the $4.00 list at pharmacies.

Comment from: 35-44 Male (Patient) Published: April 05

I have had RLS for about three years now and the only drug worked for me was Vicodin!

Comment from: badmrsphillips, 25-34 Female (Patient) Published: March 09

I've had restless leg syndrome ever since I was a little girl and I'm 34 now. It runs in our family and it's always been kind of a joke, even when it's painful. It's just something we all live with. When I was newly married years ago I was nervous about what my new husband would think of my sleeping habits, since I shake the bed often with my over active legs. I learned to tighten my muscles and release them slowly and eventually I would just shook my toes. I occasionally still shake, but I catch myself and tighten and release. It helps relax me also so I fall alseep faster.

Comment from: sharon, 65-74 Female (Patient) Published: June 30

I have had RLS for 40 years. I have tried Percocet and other drugs the only one that works for me is Requip. But over the years I'm up to 5 pills a day. It is so bad sometimes I feel like stabbing my legs. I cannot function anymore I'm at the end of my rope. It is so much worse than pain. I don't know what to do.

Comment from: Dublin, 35-44 Female (Patient) Published: June 20

Sleep is the only cure for my restless leg syndrome. I get it in the evening while sitting watching television and the only thing I can do to get rid of it is put my legs up and sleep on the couch or go to bed. I have this condition since my early twenties. I only get it when I'm really, really tired. Both my mother and aunt suffer with the same problem.

Comment from: Claire, 45-54 Female (Caregiver) Published: June 15

I think I may have RLS for the past 8 months when I go to sleep my legs start to twitch hurt and seems so heavy it keeps me awake. I can't seem to be able to do anything relieve it, it a heavy sensation in legs now it's starting in my arms to where it affects my sleeping I am so tired it's not even funny. I have low iron hypothyroidism and I am over weight by 50 pounds am also stressed with situations going on in my private life right now could this be the cause on my legs wanting to jump all over the place at night and keep me awake I have tried everything am at my wits end.

Comment from: Sleepless in Indiana, 35-44 Female (Patient) Published: June 01

I have used almost all of the drugs prescribed for this. Right now the only thing that seems to help is Percocet. I do have a prescription for Sinemet also, but sometimes it just doesn't work. I also have a TENS unit that does help if the symptoms are not too bad. A neurologist I used to see always prescribe me two different drugs one was used as a backup if the first didn't help. Also, she told me that my meds would probably need to be rotated since after awhile they just didn't help anymore.

Comment from: Bones, 55-64 Male (Patient) Published: May 12

I have restless leg syndrome. Ask your doctor for Tramadol-50mg. One early morning and one in the evening and one as I go to bed. Results are unbelieveable. It takes a short time to get used to them, and you might even skip the earliest one. The 1 in the evening calms your legs so the one at bedtime lasts all night!!!

Comment from: 45-54 Female (Patient) Published: May 11

I can't stand it anymore. I have had RLS for years, but now it's worse than ever. I hate going to bed. Nights seem a terrible, endless pain. I find no rest. I wish I could sleep at nights. During the day I am so tired and sleepy when I drive, that I fear falling asleep while driving my kids back from school or to or from their after school activities. My husband is suffering too because if I'm in bed, I'm constantly moving and if I do something else, my noise wakes him up. Exercise, magnesium, circulation medications, muscle relaxers, you name it, I have tried everything and it is worse and worse every day. I am absolutely desperate...

Comment from: sylvie, 55-64 Female (Caregiver) Published: May 04

My mother has had restless legs for years-she is 90. I am 64 and this past year I have developed what seems like the syndrome but just in my feet-when I go to bed my feet get tingly and I move them constantly to try to make them stop. I read that vicks vapo rub helps with neuropathy symptoms so I started rubbing it on my feet at night and then wear socks and so far so good.

Comment from: vicki, 55-64 Female (Patient) Published: April 27

I am thankful for websites like this one. I have been diagnosed with everything from fibromyalgia, varicose veins (with venus insufficiency) and obesity. Currently on disability because I could no longer work six days a week and get no rest at night. The leg cramps and pain mostly in the calf muscles really wiped me out. Starting getting migraines (prob. because of lack of sleep, trying to do mind over matter and keep working). This is a serious condition. I was on Lyrica for a couple of years (which did help me) and got me moving again. Also helped with the lack of sleep. Took Ambien, which helps you sleep. Cannot take Lyrica anymore. I now take Celebrex 200 mg and Tramadol 50 mg. Trying to go back to work parttime. I will be 55 my next birthday. Keep up the fight.

Comment from: MartyC, 65-74 Female (Patient) Published: April 26

The lady who described restless leg syndrome as feeling like worms crawling inside your legs most described what I have felt for years. My legs don't jerk as so person's legs do. I have been on several medicines over the years and am now on Requip 1mg (5Xdaily)(1AM,NOON,Dinner and 2 at bedtime). This usually works as long as I remember to take it.

Comment from: Sherwood315, 45-54 Male (Patient) Published: April 25

I am 49 yo male 6'2" 235lbs and have had restless leg syndrome since childhood with the last 10 years increasing to nightly episodes. I have had very positive results with Ultram(tramadol) 50mg 3 times during the day, 10am, 4pm, and one right before laying down at 9-10pm. I have found no relief for RLS triggered by diphenhydramine.

Comment from: Tam, 45-54 Female (Patient) Published: April 20

I feel as though my legs could run a marathon at night with frequent bouts of jerking. I didn’t realize I had RLS until I read up on it. I'll be speaking to my doctor about treatment. I've been taking over the counter sleep aids to help, but find myself groggy and still not sleeping. I didn’t realize this was a real syndrome. I also think standing or working on your feet all day has something to do with it.

Comment from: CTYankeelady, 65-74 Female (Patient) Published: April 19

I was having a terrible time with restless legs and losing sleep night after night after night. I read somewhere that Vitamin B12 helps and so I tried it. Two weeks ago, I started taking 2000 mg of slow release B12 tablets and from the first night of taking them I have not had a single episode of restless legs. It’s wonderful!

Comment from: Male Published: April 19

I started to get Restless leg syndrome in my mid twenties and still have it as a 55 year old male. I’m very athletic, eat well and have not been able to find any cure for it. I have tried deep knee bends, when it starts but it only relieves it when I’m actually doing them. I usually get it when trying to sleep, and have been awake all night often. I had an operation about 20 years ago, and they gave me codeine for the pain. I also noticed that codeine stopped the restless leg syndrome, and have been taking it most nights. It’s the only thing that I have found to relieve the symptoms. Not a good thing to use every night, but it’s better than not sleeping.

Comment from: ExNYer, 65-74 Female (Patient) Published: April 19

About 15 years ago, I started having an aching feeling in my legs and had trouble sleeping because it was so bad. I told my Dr. about it and he just said that his legs ached too. Needless to say, I got another doctor, but he didn't know what it was either. Finally, I read an article on Restless Leg Syndrome and realized that is what I had. The article said a way to stop the ache was to lay on your stomach for about 10 or 15 minutes and the pain would go away. Believe me, IT WORKED!! I know it sounds really strange, but it works for me.

Comment from: TAofSBK, 55-64 Female (Patient) Published: April 14

I recently lost my job in Aug. and my health is not good. I have not been able to seek a doctor and about 3 months ago began to experience symptoms not described by RLS. I don't have the urge to move my legs at night but when I'm sitting or lying down I feel my legs move and you can see my muscles or nerves or whatever move. It looks like a facial tic all over my thighs and calves. At times I can feel the tics in my arms and sides of my body. I know the answer will be...go to a doctor. I can't afford the office visits or the lab tests. There is no help out there for the newly poor without work. I am diabetic but my diabetes is very controlled. My nerves however are out of control. Living under lots of stress. I'm 62.

Comment from: Ann, Female (Patient) Published: April 12

I'm 70 years old and have had restless leg syndrome for several years. The doctor prescribed Mirapex. Sometimes it works, sometimes it doesn't. Sometimes it makes me jittery. Right now it is 3:30 am and I'm still awake because my legs still jerk.

Comment from: Joyce, 65-74 Female (Patient) Published: March 29

Have had restless leg syndrome for years but never labeled it. I described it as "mini-spasms" or electrical shocks in my buttocks and down my leg, especially aggravating at night or while sitting for a period of time. I took Gabapentin and woke in the AM, looked at my legs and could hardly believe they were mine - they were calm!

Comment from: christopher65708, 13-18 Male (Patient) Published: March 25

When I was little I thought I wasn’t normal because I would always have to shake my legs because the feeling I would sometimes get I could never explain. At night the moving of the legs keeps my wife up and I can’t fall asleep unless I am so tired my body just passes out.

Comment from: 75 or over Female (Patient) Published: March 07

Ropinirole has been the most effective for my restless leg syndrome. I am over 90 years old and have had RLS for many years (over 30). My Mother also had RLS; however the doctor did not diagnose it. I have tried Gabapentin and Mirapex. I begin taking 1 gm about 1 pm and take another 1 gm about every 3 or 4 hours until bedtime. If I begin to experience RLS when trying to sleep, I take another 1 gm. This regimen does give me a fair amount of relief.

Comment from: Melanie, 7-12 Female (Patient) Published: February 17

I am an 11 year old female. I just found out about RLS. I can explain it as a pulling feeling in my legs. I usually get this feeling during school or I wake up in the middle of the night with it. It has slowly been getting worse over time, and I cannot relieve myself during school because I can't stand up. I know that there is no cure for RLS, but I hope there is one made soon as it disrupts so many people's lives.

Comment from: Les, 65-74 Male (Patient) Published: February 16

Most effective is diet management and temp control. Carbs after 8 pm drive my legs crazy (usually the right one, but the left one takes over when the right is on break). That includes most things I like to eat along with a glass of wine. When they do act up, I get some relief in bed by putting my legs outside the covers (in the winter) and freezing them. It really seems to help, and eventually you get used to the frostbite. I also take Klonopin periodically, but it scares me.

Comment from: 35-44 Female (Patient) Published: February 15

I have restless leg syndrome and I am 40 years old. It has gotten more severe as I get older. It is also in my arms. I tried Requip with no reief and it made me vomit. I stumbled upon Ultram...and it seems to be working the best. I take one 50mg tablet 2x a day and there are no side effects. I didn't take it one night recently and the symptoms were back, didn't get to sleep till 6am. I thought I was going insane.

Comment from: 55-64 Female (Patient) Published: February 14

Mirapex or the generic thereof is the only remedy for me so far. I call it "a miracle drug."

Comment from: sheri l, 55-64 Female (Patient) Published: January 31

I have had RLS for about 15 years. Seems to get worse the older I get. I have been on Mirapex/Pramipexole for about 2 years and it helps sometimes and sometimes it doesn't. The times that it doesn't I usually end up taking some kind of sleep aid with it. Getting no sleep is the worse part. My legs fell like there is something inside of them moving. Usually it is only one leg at a time that bothers me. Sometimes I have it in my arms. My mother had it for years and we thought she was just exaggerating, we couldn't believe her legs could bother her that much. She usually got in a hot tub of water and took Tylenol 2 to help. Now I know what she was experiencing.

Comment from: cutieswan, 55-64 Female (Patient) Published: January 31

I have been on mirapex and it did nothing for my restless leg syndrome attacks, so I was put on requip the generic version ropinorole 2mg. It takes 1 hour to actually kick in and relieve symptoms but rls has ruined my life. I used to enjoy taking trips now I have to depend for my spouse to drive to me because I have to take requip before a trip or a movie and then I’m so sleepy it puts me to sleep. What worries me is that in case I’m ever in the hospital for any sort of procedure I hope the medical staff will give me my rls meds as I take them at home or as they are prescribed.

Comment from: 45-54 Female Published: January 27

I have had restless leg syndrome for 5 years. I take Mirapex. It does help. I work out, walk, and eat sensibly.

Comment from: wind4dance, 75 or over Female (Patient) Published: January 26

I found that anything containing monosodium glutamate (MSG) either causes or aggravates restless leg syndrome. Many food manufacturers have not stopped including it in their products. I'd like to see it banned. My family did several blind studies on me and I agree with my findings. Please share this information with sufferers. Since MSG also causes violent headaches and stomach upsets, then it stands to reason it could be the culprit.

Comment from: babydog49, 65-74 Female (Patient) Published: January 18

I had restless legs for years, this to me feels like worms moving in your legs/arms at times. I take reqiup and it helps, but it’s too much money I sometimes walk at night to ease it. If I take something to help me sleep, it gets worse.

Comment from: Winkie, 55-64 Female (Patient) Published: January 18

I am currently taking a variety of medications for rls including: requip 2mg bid; gabapentin 300mg bid; Klonopin 0.5 at bedtime. The most effective single medication is requip, but obviously it's not enough otherwise I wouldn't need the others. Also, hot showers help a lot, but no one thing works alone.

Comment from: legs, 45-54 Female (Patient) Published: January 14

Full massage of the calf area, the tendons between ankle and calf (Achilles) - especially important as this seems to be the major cause of the jerky feelings in legs, and also massaging the foot. Self massage of the Achilles and calves can be done by putting one leg on the knee of the other leg and rubbing thoroughly. It takes 30-45 minutes to work for each leg.