Patient Comments: Reactive Arthritis - Non-Joint Symptoms

Question:

What are your symptoms associated with reactive arthritis in non-joint areas? Submit Your Comment

Comment from: CodyChristianMIller, 35-44 Male (Patient) Published: May 02

The symptom that started everything was the sprinkle of red. After having been encroached on and finally 'taken' by my assailants, that sprinkle of red disseminated until 8 months or so later I was completely infected bodily (head to toe). I used cranberry ardently and had multiple mistreatments with antibiotics which obviously helped mollify complications greatly. The red blotchy (erythematic) rash first came out on my inner thighs by my knees, but eventually trickled down my arms, covered each of my major joints (elbows, knees, ankles), and subtly disseminated everywhere. Because of my use of cranberries and vitamins, as well as exercising, folliculitis developed in my pubic region where my thighs meet the abdomen (on either side was a scabrous folliculitis). I understand now that the folliculitis occurred as opposed to the lymphogranuloma venereum complication. Eventually, within 2 or 3 years, I developed stage 0 lymphedema whereas my skin became prone to reactive arthritis episodes (from adulterated products) that left it detached, shiny, crinkly, and edematous (startling from head to toe even). The main symptoms of the reactive arthritis that I experience on a day to day basis are the finger fissures along with dry skin, incontinence, and balanitis. The eye involvement is rarer, and seldom, and when it was acute I was prescribed ophthalmic drops (tobramycin). But the main symptom is the finger fissures, they can be almost unbearable in the beginning as when the finger splits open it also puffs up infected. As time goes by, and the complication is more chronic, they are more easily controlled with monitoring of one's diet. The treacherous thing about the lymphedema complication is the eventual potential manifestation of tendinosis.

Comment from: Mandy, 45-54 Female (Patient) Published: May 02

I get symptoms similar to irritable bowel syndrome (IBS), such as bloating of my stomach and a lot of wind and then within a day the reactive arthritis starts, with a joint swelling up. There is a definite link between what I eat and the occurrence of a spasm of reactive arthritis. Maybe it is because it started a couple of years ago, after really bad food poisoning (lasting 6 weeks), after eating a bad oyster.

Comment from: Risch, 45-54 Female (Patient) Published: July 17

I was diagnosed with Reynaud's phenomenon several years ago and suffer from extreme fatigue. Two years ago, after thinking I was having a heart attack, the emergency room diagnosed me with costochondritis. Now over the past 4 or 5 months my finger joints have been aching and my left thumb joint is constantly cracking. My arthritis test was negative as was a Lyme disease test. This pain and suffering is not in my head! It's very frustrating to go through daily life and mad to think it's in your head.

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