Patient Comments: Ramsay Hunt Syndrome - Complications

Question:

What are the complications you've experienced from Ramsay Hunt syndrome? Submit Your Comment

Comment from: Single Mom, 35-44 Female (Patient) Published: July 17

I woke up one morning with a knot in my ear and I was in excruciating pain. I went to the emergency room and was diagnosed with an ear infection. A couple days later the right side of my face was totally paralyzed. I then went to an ENT who diagnosed me with Ramsay Hunt syndrome. He prescribed me pain and anti-viral medicines. After 6 months I regained feeling in my face. As of today, 3 1/2 years later, I have hearing loss and episodes of unbearable pain. I've accepted that I will live with this. Best wishes to you all.

Comment from: Raine72, 45-54 (Patient) Published: September 19

I have chronic dry mouth from Ramsay Hunt syndrome. My hearing has not fully returned, I have tinnitus, and taste on the affected side has not returned. I also have slight balance issues.

Comment from: Debra, 55-64 Female (Patient) Published: May 02

Ramsey Hunt syndrome complications have been varied for me. I suffered almost total paralysis on the right side of my face four and a half years ago. I am still recovering and I look normal now. Patience is what I suggest. The pain was severe and it is still painful sometimes but not like the first few months! I have vertigo, light headedness, pain, confusion, ringing in the ears [tinnitus], watery and watering eye, loss of taste, difficulty swallowing, and painful sores in my mouth and ear! Of course, I had a CAT scan and a blood test to rule out a stroke within one day of paralysis. I was put on steroids and also antibiotics to treat a raging ear infection at the time. Take vitamin B, rest, eat properly and stay off alcohol. I am 90 percent recovered after 4 and a half years!

Comment from: Kim, 55-64 Female (Patient) Published: February 14

I came down with Ramsay Hunt syndrome 3 months ago. It was misdiagnosed as Bell’s palsy. I did not receive the anti-viral medicines. I did get the prednisone. I still have no movement on the affected side of my face. The neurologist told me that the virus destroyed the 7th nerve, and my case is severe. I am looking at surgery now. They take the nerve from the tongue and hook it to my face. Otherwise I can wait 2 years as the nerve regrows and see how much I get back. He said the muscles in my face may not be able to wait that long.

Comment from: ERP, 75 or over Female (Patient) Published: October 10

I experienced pain in right ear. Doctor gave ear drops that I took for 3 days. Pain got worse, right side of face fell, and right eye stayed open. At the emergency room I was diagnosed with Bell’s palsy at first but I had so much pain in my ear, throat and head, and they changed it to Ramsay Hunt syndrome. A CAT scan revealed throat 3/4th paralyzed, and one vocal cord. I was on liquid diet, my speech was affected and so was ability to walk. I was given oxycodone, Tylenol and Valium each once in 4 hours, for pain. I was in the hospital for I month, could eat some food if I concentrated with no distraction and could walk with cart. I was still on pain killers, 4 months later throat is still partially paralyzed.

Comment from: Donna, 55-64 Female (Patient) Published: February 11

Wonder if there are there any support groups for Ramsay Hunt syndrome patients. I went to bed fine and woke up to the right side of my face down. l went to the emergency room (ER) and got misdiagnosed with Bell’s palsy. I'm so mad at the ER doctor, l told him it felt like l had painful blisters in my right. He wouldn’t listen, l kept asking him to check and he finally did but said it was fine. I really want to sue him just so he learns to listen to his patients.

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