Patient Comments: Primary Sclerosing Cholangitis - Medications

Question:

What medications were helpful with the symptoms you experienced with primary sclerosing cholangitis? Submit Your Comment

Comment from: Edna D, 55-64 Male (Patient) Published: March 26

I had a lumbar laminectomy 3/17/20 and today is 3/25/20; one week in! I have had numbness on my right foot along the outer arch and smaller toes, and cramping in my back thigh. I know it's still early so hoping it gets better. I still hurt after about 20 minutes of standing. It was a single level procedure. I was given gabapentin for the nerve pain. Let's see how I am in a month.

Comment from: Miss Mar, 55-64 Male (Caregiver) Published: December 31

Lactulose and Lasix were helpful with dealing with the symptoms of primary sclerosing cholangitis.

Comment from: M66Maryann, 45-54 Female (Patient) Published: May 30

My itching was severe with primary sclerosing cholangitis. I felt desperate and could not function normally. Nor could I sleep normally. Prior to diagnosis, I had taken sertraline for several years to treat anxiety. I weaned myself from it, and promptly began itching. In hindsight, I believe the sertraline had prevented the itching. After diagnosis, I got back on it. It did nothing to relieve the itching. I tried hydroxyzine, ursodiol, rifampin, and cyproheptadine. None worked. Cholestyramine worked. It is a powder that you mix into a liquid and drink. I take 3 doses daily, along with sertraline, and cyproheptadine. It took about 2 weeks to handle the itching.

Comment from: Jason, 45-54 Male (Patient) Published: February 07

Ursofalk (ursodeoxycholic acid) greatly reduced the pain I experienced in my liver because of primary sclerosing cholangitis. If I stop taking it (forget to take or run out), the pain increases so it definitely makes a difference. It does not reduce the disease, but does reduce the pain. Questran Light (cholestyramine anhydrous) reduced extreme itchiness.

QUESTION

Liver disease refers to any abnormal process that affects the liver. See Answer

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