Patient Comments: Primary Sclerosing Cholangitis - Symptoms


What symptoms did you experience with primary sclerosing cholangitis? Submit Your Comment

Comment from: Jack48, 45-54 Male (Caregiver) Published: February 05

My ex-partner was recently diagnosed with primary sclerosing cholangitis (PSC). He also suffers autoimmune diseases. Also, associated with PSC his health has deteriorated, and he has weight loss, itch, and coughs up mucus every morning. His sleep or lack causes extreme mood swings. Unfortunately he is drinking alcohol daily, he is 52 years old. He is living in denial; scary stuff seeing damage inflicted daily by his alcohol abuse, and I do try give him help and support. Hopefully he tries to take some steps towards getting help and support; plenty available to him.

Comment from: Ruth, 45-54 (Patient) Published: April 17

I was diagnosed with primary sclerosing cholangitis (PSC) almost 2 years ago. I had extreme pain in the lower part of my abdomen on the right hand side. I was admitted to the hospital but was discharged 4 days later with no diagnosis, just an assumption that it was a kidney infection. Two admissions later and in total a five week stay in hospital I was diagnosed. My consultant said due to colitis I should have yearly scans, and that was almost 2 years ago!

Comment from: Kevin, 55-64 Male (Patient) Published: June 26

Extreme itching, fatigue and bloated stomach are my symptoms of primary sclerosing cholangitis.

Comment from: M66Maryann, 45-54 Female (Patient) Published: May 30

Before being diagnosed with primary sclerosing cholangitis (PSC), I had extreme fatigue for at least 18 months. My liver enzymes were also high for at least a year. Severe itching ensued. I could not function normally. After breaking down in tears at my doctor's office, telling them that I believed I had a liver problem, they ordered an MRI which indicated Klatskin tumor or PSC. This was about 2 months ago. Itching is currently controlled with cholestyramine. Several other medications failed. I have good days and bad days.

Comment from: Jason, 45-54 Male (Patient) Published: February 07

My early symptoms of primary sclerosing cholangitis were constant pain from pressure when wearing seatbelt in car (for at least 10 years). Then it progressed to discomfort in organs surrounding liver, possibly due to liver inflammation. Then gradual loss of energy, severe skin itching and yellowing.


Primary Sclerosing Cholangitis (PSC) See a medical illustration of the liver plus our entire medical gallery of human anatomy and physiology See Images

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