Patient Comments: Premenstrual Dysphoric Disorder (PMDD) - Experience

Question:

Please describe your experience with PMDD. Submit Your Comment

Comment from: Pikasun, 19-24 Female (Patient) Published: October 15

Sometimes I have PMDD (premenstrual dysphoric disorder) beginning with ovulation or sometimes a few days afterward. I feel very easily irritable, anxious, depressed, weepy, and have moderate to severe cramps until my period comes. I feel as though my emotions change minute to minute and I have trouble with regulating my reaction to things that annoy or irritate me.

Comment from: YogaLuvr, 45-54 Female (Patient) Published: September 26

I was diagnosed with PMDD (premenstrual dysphoric disorder) in 2012 by my obstetrician/gynecologist. I'm 46 and can't keep a job or have a boyfriend. My emotions are out of control, crying and self-loathing, and loss of interest in things I love to do. My body temperature rises, and I have hot flashes, horrible painful periods and nausea. I wish I wasn't a woman, this isn't living, it's existing and it is very depressing to be alive. I'm taking Lexapro for depression and anxiety along with hydroxyzine to help calm down the anxiety. I wish all women suffering, hope.

Comment from: PMDDD, 19-24 Female (Patient) Published: August 19

My PMDD (premenstrual dysphoric disorder) symptoms are irritability, oversensitivity to sounds and smells, auditory hallucinations. Depression, joint pain, extreme fatigue, lack of focus, withdrawal from social settings, insomnia, and food aversions. To add insult to injury I have lupus. So I also have a flare up during menstruation and PMDD at the same time.

Comment from: Badger, 35-44 Female (Patient) Published: July 23

I have suffered with PMDD (premenstrual dysphoric disorder) for years. As I reached perimenopause, around 41, the symptoms became dramatically worse, and affected my ability to function normally. After years of research and several different diets including veganism I discovered an article which linked gluten intolerance to inflammation and severe PMS. I immediately went gluten free and have been symptom free ever since. I hope this comment helps someone who else who was suffering as much as me.

Comment from: Angela, 45-54 Female (Patient) Published: June 07

I realized I had PMDD (premenstrual dysphoric disorder) in my mid 30s early 40s. I wish I had known sooner. I lived with this for a very long time and it did affect my family and myself. My symptoms include a surge of anger energy three days before my period, I cry spontaneously, I am emotional and get very angry over small things that usually I don't make that big of a deal. I currently take 20 mg of Prozac daily and this has helped me to feel even. Exercise and break a sweat. You're not alone!

Comment from: Voiola, 35-44 Male (Patient) Published: April 30

I feel like I absolutely go insane the week leading up to my period. I am normally a very nice, kind and patient person. But, just before my period it is like a storm coming through. I am quick to snap, very quick. I get depressed, thoughts of suicide, and I lash out at my loved ones. This is seriously affecting my life in a terrible way. I am diagnosed with PTSD (post-traumatic stress disorder) and with PMDD (premenstrual dysphoric disorder) on top of it, it is disaster waiting to happen. I feel like my only option is to isolate from my loved ones.

Comment from: Pmddruinslives, 35-44 Female (Patient) Published: March 19

PMDD (premenstrual dysphoric disorder) has totally ruined my life. I don't even know who I am anymore. I fly into fits of rage screaming and abusing whoever has done the slightest thing to annoy me. I break down in tears about 10 times a day. I have no friends, everyone thinks I'm a nasty evil person. I feel suicidal and don't seriously know how much more I can take.

Comment from: Jasmin, 25-34 Female (Patient) Published: January 08

My life is terrible. Premenstrual dysphoric disorder (PMDD) has destroyed relationships and prevented me from living my full potential. What's worse is I can't get any help because counseling and even consultations are way too much money, and any doctor I talk to keeps bouncing me around to other doctors to talk to and most doctors can't even pick up the phone. I feel hopeless, extremely suicidal which I've attempted several times and it is just awful waking up most days before my period. I hate this so much.

Comment from: JD, 45-54 Female (Patient) Published: September 25

I started my cycle at 8 years old. I have dealt with PMDD (premenstrual dysphoric disorder) for over 40 years. It runs in my family, my mother and both sisters have/had it. It's quite simply hell on earth for 10 days of every month. I have severe depression, thoughts of suicide, physical exhaustion, clumsiness, desire to shut the world out, over sensitiveness, bloating, impatience, and debilitating cramps. In my mid-thirties, I discovered my diagnosis. However, most doctors still did not take it seriously. SSRIs (selective serotonin reuptake inhibitors) were a godsend.

QUESTION

Premenstrual dysphoric disorder is a severe form of premenstrual syndrome. See Answer
Comment from: Endlesslyawaiting, 45-54 Female (Patient) Published: June 15

I know PMDD (premenstrual dysphoric disorder) first hand, I experience severe mood swings with absolute rage. I feel targeted and I see conspiracy everywhere, I believe it to be my reality. My boyfriend rejects me for my behavior not knowing that it is not me per se. I am constantly being told how insecure and uncomfortable I am in my own skin. I remember everything after the symptoms are gone. I just don't know the point of transition. It is affecting my life drastically, and lately I have felt suicidal or I imagine myself doing things that are awful. I just want to clear my name with my boyfriend and others who have seen me in this state. I know I am not all the negative images that arise during this time, but others have no clue. It is very difficult, I have lost friends and shattered many a relationship. But in a sense I'm glad to know what is causing my mood disorders, I thought I was crazy.

Comment from: Tammie, 45-54 (Patient) Published: November 14

I have been dealing with premenstrual dysphoric disorder (PMDD) for 10 years. I have a severe form of the disorder that, before I was diagnosed, crippled me. The joint pain was severe, I could barely move. The headaches were bad, and I was diagnosed with cluster migraines. All this pain would spike my blood pressure. The cravings had me all over the place. I was gaining lots of weight. I had to wear braces on both wrists and knees to protect my joints. It was bad. With so much pain, I would also get anxiety and cry sometimes, and sometimes it couldn't be controlled. My obstetrician/gynecologist finally put me on birth control and it worked. I've been on birth control nonstop for 10 years. Now I have to find a way to come off the medicine because I am too old, 45, to still be on birth control. So I am seeing doctors to see what can be done. Oh yeah, let me not forget, I have some joint damage. I've had my hands fixed and have arthritis in most joints, or developing it.

Comment from: Spencer, 19-24 Male (Patient) Published: December 08

I am a boy with premenstrual dysphoric disorder, PMDD (I am a female to male transgender guy)! I was diagnosed when I was around 17, and Prozac is the only thing that keeps me from being suicidal and despondent every month. I have to take 40 mg because apparently lower doses don't do enough to quell my hormonal despair and I still want to die on a monthly basis if I'm only on 20 mg or 30 mg. My physical symptoms (cramps, bloating, sensitive chest which I once described as 'tingling with rage') are probably average, but the moods are awful and when I tried to wean myself off of the Prozac at one point it was a disaster. I couldn't drag my sorry backside out of bed for those few days to nearly two weeks every month because I was so depressed. My class attendance slipped greatly, I attempted suicide, and my eating and sleeping habits became really unhealthy. For me, PMDD also brings up urges to binge eat and increased gender dysphoria. Fun times. Someday, I'm getting a hysterectomy.

Comment from: Holly, 35-44 Female (Patient) Published: December 29

I have premenstrual dysphoric disorder (PMDD). It's awful. I can get so angry that I can't catch my breath. I want to die, everything feels so hopeless. I lay around and cry and eat. I have self-harmed in the past and am being treated for that but during PMDD I sometimes lose the battle and the blade wins. The feelings of deep depression and hopelessness is just about unbearable. I am currently on 40 mg of Prozac and my doctor said to start taking birth control along with that. So after this period I will start the birth control. I hope that will help because this last spell just about did me in.

Comment from: CiCi, 45-54 Female (Patient) Published: February 23

I have dealt with PMDD (premenstrual dysphoric disorder) for 15 years. I went to countless doctors, internists, obstetrician/gynecologists (too many to count), gastroenterologists, endocrinologists. That is when I learned what practicing medicine meant. They really didn't know what it was. Trial and error. Let's try this medicine and then we will try this. I lived it and still have trouble explaining it and people look at you like 'Oh you had PMS?' No! I lost so many jobs, I cannot tell you. You can get away with saying you have a stomach bug the first time even though they don't understand it lasting a week. But, when you have it again the next month they usually say this isn't working out. Very debilitating nausea, pain, fatigue like I had never had and have never experienced since, and sharp shooting pain. I have never had a baby but, I cannot imagine it being any worse pain. It felt like a knife being shoved up my bottom. I lost my home due to foreclosure. After I went through menopause I had something close to those feelings, but not totally debilitating a couple of times. Then none since, thank goodness. To know most likely you would be experiencing the same thing a month later, not only the symptoms but disrupting your life and your job. I would not wish that on my worst enemy. So, so hard to deal with. I would start on a medication and maybe not get sick for 2 months, sometimes 3, then boom, it is back. Three to eight percent of women get this! I wish more people knew about it because so many people think you are a hypochondriac or nuts. This is actually a recognized disorder in the AMA (American Medical Association) as a disability. You can get SSDI (social security disability insurance) for this now.

Comment from: Justme, 25-34 Female (Patient) Published: August 19

During my PMDD (premenstrual dysphoric disorder) I have the most difficult time! Tearing up over nothing, weight gain, over sleeping and irritability are just a few of the things I experienced. A couple of days after my period starts everything changes back and I feel like myself again! It's been tough on all of my family. So much so they keep up with my periods to gauge when it's okay to be around me. That changed once my doctor prescribed citalopram 10 mg. So though I hate the fact I take medicines, I do feel more like myself during the days leading up to my cycle.

SLIDESHOW

Premenstrual Syndrome (PMS): Track and Prevent Symptoms See Slideshow
Comment from: yaya, 25-34 Female (Patient) Published: February 24

I am extremely confused with my PMDD. When the time is really near my periods (one week before and a few days after) I became aggressive, sensitive, crying a lot, hurting myself and the loved one, my chest feels like it wants to burst out, I only can think about the negative things. My husband doesn't really understand what I'm going through. He always said that I am a person with a lot of drama and a person that can't receive advice or criticism. But actually I'm not! I really suffer from my emotional disturbance.

Comment from: msmiller, 35-44 Female (Patient) Published: December 13

My PMDD is horrible! I have all kinds of symptoms ranging from really bad cramps that feel like labor pains, to nausea, bloating, fatigue, joint pain, back pain, headaches, mood swings, depression, etc. My doctor prescribed Zoloft which was like a miracle drug for me at first. When I first started to take Zoloft I would literally have no symptoms, my period would just "show up" with no warning but it doesn't seem to work for me as well as it did when I first started taking it.

Comment from: patrina, 35-44 Female (Patient) Published: December 05

It's awful, just awful. I have PMDD and it is so hard to cope each day. I have had PMS every day for almost a year. I was offered a procedure (my weight was too much for a hysterectomy). I cannot think of the name off hand, but it is when they scrape your uterus. That was done 3 weeks ago and the pains are even worse. I just can't take it much longer. I have just gone on to sertraline, but that takes about 14 days to kick in, that is, if it works. The depression is just out of this world and you have no control over it and of course the pain and the vomiting; having no life. Even one day once a week pain free would be nice.

Comment from: Andrea Wiles, 25-34 Female (Patient) Published: August 21

In 2008, I was originally diagnosed with PMDD. I would have two periods a month, for a week each time. The pain was unbearable. I could be sitting down and get a sharp, stabbing pain that was worse than a contraction, and it would take my breath away. I would get pains that doubled me over and made me crawl because they hurt so badly. I have had the mood swings, the depression, the anxiety, debilitating pain, etc. It has been so bad that in the late part of 2011 I was sent to an OB/GYN to have a hysterectomy done because of my severe PMDD. I ended up having a hysterectomy in February 2012, but the doctor left my ovaries because I was 33 years old at the time. I still had the symptoms, except now they were 10 times worse than before. I am seeing another OB/GYN, and he says the only thing left to do is remove my ovaries because the medication didn't work on me. I know having my ovaries removed means that I am going to need the extra hormones, but maybe I will feel better. PMDD is nothing to brush off.

Comment from: dar, 45-54 Female (Patient) Published: March 13

I have had premenstrual dysphoric disorder (PMDD) for a while but got really bad 4 years ago. I'm on bupropion 2 times a day and have a nerve pill if I need it. I still have bad cramps but my life is way better with this drug.

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