Patient Comments: Powassan Virus Disease - Experience

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Please share your experience with Powassan virus disease. Submit Your Comment

Comment from: Elizabeth, 65-74 Female (Patient) Published: September 04

I have had Powassan virus disease for four years (originally diagnosed by cerebrospinal lumbar fluid). I was in the hospital and rehabilitation for months with a stiff neck, weakness, and general confusion. I still cannot walk, speak very quietly, but no cognitive issues. I would like to know the prognosis.

Comment from: Sassy Karen , 45-54 Female (Patient) Published: July 03

I'm not sure how long Powassan virus stays in your system but I was in the trauma center for almost a month with encephalitis, seizures, strokes, memory loss and partial paralysis! The doctors had no idea what I had and weren't sure if I was going to make it. I now have permanent seizures!

Comment from: rachgor87, 25-34 Female (Patient) Published: June 26

About a week after finding a tick in my son's scalp I started to have neurological symptoms that on-set quickly. I had feelings of confusion, trouble word-finding, numbness of the tongue and vertigo. I went to the emergency room (ER) where they ran tests to rule out a stroke and once those came back normal they sent me home. That night I woke up with a fever, whole body aches and chills, continued confusion and dizziness, inability to move my head from side to side, and an overall feeling that my body was shutting down. I have never felt that sick. I returned back to the ER where they tried to do a spinal tap but failed and was admitted to the hospital that night. For the next week I was treated for meningitis with anti-viral medications and IV fluids. I hardly remember that week at all. It was scary for me and my entire family. Thankfully I live in an area where medicine is top-notch and my doctors treated me immediately. The most worrisome symptoms of Powassan virus disease were memory loss and confusion as well as tingling in many areas of my body, including my feet which left me unable to walk for 2 weeks. This disease is no joke and if you feel any of these symptoms you should seek medical care as soon as possible.

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