Patient Comments: Popcorn Lung - Experience

Question:

Please share your experience with bronchiolitis obliterans or popcorn lung. Submit Your Comment

Comment from: Reggie Manfred, 55-64 Male (Caregiver) Published: October 15

I got Morgellons disease in approximately around April 2008. I expected to die but found treatment with ivermectin, Bactrim and rifampicin. I never use steroid drugs as I think it makes Morgellons worse. Some people are allergic but I was able to take about 20 times the recommended dose of ivermectin daily. After 2 years of massive drug doses (drugs are much cheaper overseas), I take just one dose of rifampicin just one day a week and am ok.

Comment from: Maverick, 45-54 Male (Patient) Published: September 19

I have bronchiolitis obliterans that took my doctors 6 years to diagnose. A lot of the waiting to get diagnosed was everyone was afraid I would not come off of the respirator after the lung biopsy. I was injured at work with hot glue fumes but the same chemical as in microwave popcorn butter. I was on a transplant list once but got really sick right before Christmas 3 years ago and they put me in hospice. I got out of hospice and I'm trying to get relisted. Very bad disease.

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