Patient Comments: Polymyalgia Rheumatica - Treatment

Question:

What was the treatment for polymyalgia rheumatica in you or someone you know? Submit Your Comment

Comment from: Margey, 65-74 Female (Patient) Published: May 06

I was diagnosed with polymyalgia rheumatica 11 months ago. I was on 25 mg of prednisone for 5 weeks, with immediate dramatic improvement. I am still rather shaky - my hands and wrists had been a big problem from the outset, but able to get up and down stairs and shower myself as well as dressing myself within the first 2 weeks. I slept better. It was reduced to 15 mg for 6 months and now I am on 10 mg, but have weak days and depression and don't like the steroid side effects.

Comment from: Wino, 65-74 Male (Patient) Published: April 30

My treatment for polymyalgia rheumatica is prednisone 20, quick start (3 doses 1st day, 2 next 3 days, and 1 last 3 days). I got 90 percent relief from symptoms after day 1.

Comment from: Maureen, 65-74 Female (Patient) Published: December 26

I've had polymyalgia rheumatica for 9 years. I started with 75 mg cortisone, down to 1/2 mg every second day but still on that evil drug methotrexate. Hope to be drug free by 2019.

Comment from: SusieQ, 45-54 Female (Patient) Published: October 02

I took prednisone 25 mg once daily initially for polymyalgia rheumatica. I lowered dose to 20 mg after 3 days. I lowered again to 15 mg but that was too low (pain started again). I have been at 20 mg for 2 weeks now and am seeing a rheumatologist in a couple days and hopefully will start to wean down the dose.

Comment from: jude, 65-74 Female (Patient) Published: January 03

After a flu shot in 2013 I came down with severe polymyalgia rheumatica. The doctor was unable to determine the problem so I suffered badly for 9 months. A bout of double vision put me in hospital, and the treatment was prednisolone. I was still suffering very badly and I did not like this steroid so I found my own treatment and this is what I did. I took bromelain, turmeric (curcumin) ginger, vitamin D, vitamin K2, vitamin C, magnesium citrate, all naturally anti-inflammatory, a natural diet massage stretching and water aerobics. It is now 2016 and I am symptom free.

Comment from: margaret, 75 or over Female (Patient) Published: April 24

I have learned so much today from reading everybody's story of polymyalgia rheumatica (PMR). I was told ten years ago by a neurosurgeon that my pain was not from back problems. He was astounded that I was told it was. He suggested PMR. Well, to this day I have not had the proper treatment or diagnosis. I was told my blood work did not support a diagnosis of PMR. I now realize this is not true. I am in the midst of a major flare up. I am going to see my primary physician this week and I plan to tell him this story. I am going to ask him if will treat this disease as I refuse to see another rheumatologist, neurologist, etc. Good luck. So I have gained much insight today and I will talk about diet and other medicines, and feel confident in my ability to get through this one way or the other. Thanks to all.

Comment from: Margaret, Female (Patient) Published: September 26

I have had polymyalgia rheumatica for two and a half years and managed to reduce medication to 1 mg. Then it flared up again. I am back up to 10 mg. I decided I have had enough of this and enrolled in a class for Pilates and taught myself Tai Chi from You Tube. Gentle stretching exercises, 10 minutes a day. The results are amazing. I am down to 5 mg and I can lift and stretch my arms as much as I did, if not more, since before polymyalgia struck. I feel better than I have done in years and I just hope some of you out there will give it a try and achieve the same results as I.

Comment from: judy, 65-74 Female (Patient) Published: August 24

I had polymyalgia rheumatica (PMR) in 2013 now 2016 PMR can be cured. Get off prednisolone very slowly, use a natural anti-inflammatory medicine like bromelain, ginger, or omega 3. Stretch and gently exercise, take B 12 calcium, vitamin C, and magnesium for leg cramps. Take painkillers only if absolutely needed, get plenty of sleep, eat raw fresh food like pineapple and other fruits, and salmon. As you improve start aqua exercises, massage joints, do Pilates, and water therapy. PMR can resolve over time on its own but, do not give up. I had ESR of 100 now it is 5. I bowl twice a week, swim and do water aerobics 4 times a week. Do not accept this condition, do not believe that it cannot be cured. I am living proof, bromelain is the key. Seek out a good naturopath, it is an auto immune condition.

Comment from: Tiger, 55-64 Female (Patient) Published: March 01

I have had polymyalgia rheumatica (PMR) 3 times since I was 60 years old. I am now 73. I just got off of prednisone. I was on it for 6 months. Happy to be off of it. Second and third times the pain was unbearable. The medicine was a miracle drug. Some side effects I was not happy with. I hope that PMR does not return to my body.

SLIDESHOW

What Does It Mean When Your Whole Body Aches? See Slideshow
Comment from: Reddog, 75 or over Male (Patient) Published: September 10

I am 76 years old and on prednisone for over a year, currently 10 grams per day. I also take vitamin D, an osteopathic medication, once a week, and a couple of ibuprofen at bed time. I have a relatively high sedimentation rate around 44, but minimal to no symptoms, just occasional slight pain in both shoulders. My symptoms of polymyalgia rheumatica under this treatment are minimal and do not prevent me from being active in sports like tennis and biking. Reducing the amount of prednisone does cause pain to start crawling back.

Comment from: Kevin, 65-74 Male (Patient) Published: December 17

I am a 72 year male. Two years ago I contracted shingles which lasted for around 12 months then almost immediately I awoke one morning almost unable to move, very stiff and sore, particularly in both shoulders and I had difficulty lifting my arms above the shoulders. I had a steroid injection in each shoulder and that helped with the shoulders. Prednisone 15mg per day alleviated the other symptoms. Being an active lawn bowler I continued almost daily rollup practices as well as walking the dogs. The aches and pains vary slightly, but I have been able to reduce the prednisone to 10mg some 12 months after the onset. However, I still get very fatigued both physically and mentally after a full day on the bowling green. My BMI (body mass index) is good. My general health is ok and I am regular of meals and rest. The PMR (polymyalgia rheumatica) seems to be in a holding pattern, not getting better or worse. A hot shower, exercise and rest, plus a good night's sleep each day seems to be helping.

Comment from: kreusing, 75 or over (Patient) Published: December 27

I was diagnosed with polymyalgia. I have been on prednisone for three days and I feel improved but not better. Years ago I had temporal arthritis and was given prednisone and woke up without pain. I understand that if you have one type the other can attack you years later. I also have anxiety and IBS (irritable bowel syndrome) which makes it difficult.

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