Patient Comments: Poland Syndrome - Features

Question:

What physical differences has Poland syndrome caused in your body? Submit Your Comment

Comment from: MAtthew_Ray, 45-54 Male (Patient) Published: March 27

I never knew it was called Poland syndrome until this year. I am missing the entire lower pectoralis on my right side akin to a mastectomy. I'm grateful to find a site to talk about it. It has been a matter of embarrassment my entire life.

Comment from: Anthony, 55-64 Male (Patient) Published: November 08

I have Poland syndrome, you can know from the chest muscle on the left, and small shoulder. I was 14 when I noticed something wrong, embarrassing to talk about it. When I was 17 I asked my general physician (GP) to see someone and he said to go home and live with it as nothing could be done. I saw 3 more GPs, now I am 34 years old. All 4 GPs said no so I went to a private GP and asked him to refer me to see someone. He said I was going down the wrong road so I researched as much as possible. I had surgery, disconnected lateral muscle made into an armpit and half chest muscle. It looks very good. My right chest was 3 to 4 inches lower than the left. After saving up more money I had my nipple and chest lifted, but all went wrong. My nipple now is 4 times bigger and they took out to much fat from the middle of the chest, so I am left with a big dent. Now in my 60s I saved more money up had my nipple reduced and chest lifted, it has only been 4 weeks, looks very good.

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