Patient Comments: Pilonidal Cyst - Signs and Symptoms


What signs or symptoms did you experience with your pilonidal cyst? Submit Your Comment

Comment from: Joshkorah , 55-64 Male (Patient) Published: August 13

My pilonidal cyst appeared at age 18 with all the common symptoms. I had a partial removal and, as the surgeon said it would, it grew back in. I have a crazy hypothesis about this condition. Once when I was squeezing it out, I smelled an odor exactly like what comes from the musk scent gland of an animal. Because of the location of eruption, I believe it may be a genetic susceptibility trait that can be traced to certain humans. I don't have coarse hair.

Comment from: Ferla, 19-24 Female (Patient) Published: July 08

I had a pilonidal cyst for the first time last year, and about 3 times after surgery but after the first time it wasn't as painful. Now after a year it came back and it hurts badly. I can't sit or lie on my back, the area is swollen and red. I was going to wait for it to pop by itself but it's gotten too painful, so I might have surgery done on it again. And the first time when it popped I had a panic attack due to the pain. I literally couldn't breathe.

Comment from: skydiver2006, 55-64 Female (Patient) Published: January 24

I am a 56 year old female, and when I was 16 years old, I was experiencing pain at the lower part of my tailbone. My mother took me to the doctor and he said it was a pilonidal cyst, and that required surgery. It wasn't anything you could visibly see, but I couldn't even sit. It was a much more major kind of surgery than I expected. I was in the hospital for days, using a bed pan for bathroom, and had a sponge bath from my mother. Now it has been 40 years later, and I am having pain again. I am not sure where to even seek medical help. I sure hope I don't have to have surgery again.

Comment from: elton h, (Patient) Published: July 18

This is my first time having pilonidal cyst, and it has been ongoing for about 7 days. I am planning on making a doctor appointment today. It is very painful, and feels very hard. The cyst is on the upper part of my tail bone on the left side.

Comment from: scbear13, 19-24 Female (Patient) Published: April 15

First of all, I am type one diabetic and have been told this keeps reoccurring because of my diabetes. My first experience with a pilonidal cyst occurred when I was 18. I had worked out a lot and began feeling soreness in my cleft. It was not flared up but I had gone to the emergency room (ER) because of the severe pain. They had said I must have bruised my tailbone from working out. Well, a few days later, the cyst flared up and had burst at home. I had many follow up appointments and ever since then, it had come back every 6 months. I have horrible pain, barely can move, back pain, swelling, and fever. Never has it drained on its own. It always starts in the center as a hard lump, then spreads to the right cheek, then really flares up on the left side. I've been to many doctor's offices/emergency rooms to have it lanced, then packed for 3 days, then left open to heal. I finally had surgery in March of 2015 after a flare up. The sinus tract was 3 inches deep into tissue. It was removed and closed up with glue. I had to take it easy for a month, and then I was healed enough to return to work. In October of 2015 (7 months after the surgery) I had thought it came back, but it ended up being a hematoma that felt exactly the same as the cyst. It had opened up on its own one night while I was sleeping (talk about a scary experience). Now the cyst came back again in March of 2016 (a year after the surgery). I was told that this must be something that will keep happening. Surgeon drained it, packed it, and same old story. It is to the point that they don't even give me any instructions, because I know the process. Well, now it has only been two months and it is back, again.

Comment from: Mother of Two, 65-74 Female (Patient) Published: November 19

I was 18 when I began having pain in the tailbone area and believed it was just from sitting too long as I had just began a new job that required a lot of sitting. However, over the next few weeks the pain intensified to the point that I couldn't sit at all and continued to worsen even more so that I was unable to straighten up to walk. When my parents finally realized I needed to see a doctor I had to crawl into the back seat of the car and lay on my stomach. The doctor took one look at what was going on with me and told my mother that I needed to leave his office and immediately get me to the hospital. We left the doctor's office and went to the hospital and as we arrived they came out to get me with a wheelchair and told me to sit in it. I told them I couldn't sit in it and they insisted that I had to. I finally ended up having to pretty much stand on the foot rests of the wheelchair and lay myself back against the chair. I had surgery to remove the pilonidal cyst soon after arriving as it had actually gotten that bad. Surgery was a big relief, pain was finally gone. My advice to anyone would be if you have a problem with pain and/or sitting in the tailbone area, get it checked by your doctor sooner than later. I waited way too long to see my doctor. It took a while to heal, with continual drainage and continuously changing the dressing for approximately 3 or 4 months. I am now 68, 50 years later and I am having pain in that area again, although there is no cyst or swelling, just pain. I wonder if this pain could be a result of scar tissue build up that has formed since the surgery. I will ask my doctor at my next appointment. I also wonder if pilonidal cysts may be hereditary as both my sons also had them. I had noticed when they were babies they had an opening in that region of the tailbone and when I asked the pediatrician if that meant it was a precursor of a pilonidal cyst forming he answered yes. Sure enough 30 years later one had his cyst removed, and the other son had his lanced 25 years ago and so far they haven't had any recurring problems.


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Comment from: ly2010, 55-64 Male (Patient) Published: May 27

Pilonidal cyst is very painful. First signs are difficulty sitting and the feeling of pain in the tailbone area. Pain increases the next few days until it is drained.


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