Patient Comments: Pick's Disease - Symptoms

Question:

What was your friend or relative's symptoms of Pick's disease? How is the patient coping? Submit Your Comment

Comment from: thirddaughter, 75 or over Female (Caregiver) Published: July 20

My mother was diagnosed with FTD (frontotemporal dementia), or Pick's disease, at age 78, after two episodes when she was in and out of hallucinations. She would hush me at times and have conversations out loud with people who were not present. She was also convinced my son was Jesus Christ. She also made a romantic overture to a neighbor's husband - completely not my mom! We found a good assisted living facility and she has convinced herself that she works there and takes care of the other residents. She is very hard to visit, often angry.

Comment from: LORI, 45-54 Male (Caregiver) Published: March 23

My husband (age 49) was diagnosed last year with Pick's disease or frontotemporal dementia (FTD). He started with cognitive issues in 2015 after a stay in the hospital after falling. They never really diagnosed the reason for his issues in 2015, but we kept pushing forward looking for answers. We went to speech therapy to help with some speech issues that he has had since his stroke in 2011. I asked the therapist what kind of work books I should get for him once the therapy was over, she told me age 10 to 12, and that's when it hit me that there was something huge to blame for it. We had to change neurologists because the one we had been seeing couldn't get past him having anxiety. We changed his medicine all around and he was better, but not cognitively speaking. Within 3 visits with the new neurology doctor, he had ruled more diseases out and diagnosed him with FTD. I have since come to find out, his uncle who had dementia also had FTD. It doesn't seem to be progressing really fast for him, but I do miss the husband I used to have. So very sad to watch a loved one deteriorate before your eyes and your children's eyes. Our boys are 17 and 23, they struggle with how to deal with it as well, as kids do, and they avoid the situation as much as they can. Truly sad. My love and wishes to the many others that suffer and care for the suffering, this isn't an easy job by any means. Keep looking for the positive! Keep hoping for a breakthrough in medical treatments.

Comment from: Katrinka62 , 55-64 Male (Caregiver) Published: May 30

I think my former husband has Pick's disease. He has divorced me after 31 years of marriage. He became eccentric and then aggressive and nobody seems to see it except my two adult daughters and their partners. He will not see a doctor. I am devastated as are my girls. Terrible illness. No hope.

Comment from: Dad, 55-64 Male (Patient) Published: November 20

Last November, 2012 I was told I had Alzheimer's disease by a neurologist who I just met and was told knew the best. Then, in January, he told me I didn't have that but that I have FTD (frontotemporal dementia). I was also told I had Sjogren's disease. I also have Tinnitus. All are diseases that can't be corrected, sad to say. As for FTD, my memory is getting worse. Once upon a time my IQ was 148 and now I feel like it's 48. I'm taking Namenda Tab 10mg twice a day, yet I don't see how that's helping me.

Comment from: 55-64 Male (Caregiver) Published: April 02

My husband is 55 and back in June he was diagnosed with frontotemporal dementia (FTD) However, he has been acting weird and gradually losing his memory. It is a horrible illness. I miss the man I met years ago, because he is no longer himself. I feel like I've had to give up my life, too. It is so painful to watch your loved one slowly die without being able to do anything to help. I am so sorry.

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