Patient Comments: Peyronie's Disease - Experience


Please describe your experience with Peyronie's disease. Submit Your Comment

Comment from: Mom, 19-24 Male (Caregiver) Published: October 14

My son just turned 23. He doesn't know why he has Peyronie's disease, but he does know it's changed his life and his attitude about life, and from mom's standpoint it's not good. I want to encourage him and I tell him things will get better but I don't know that. I hope they will. Nobody knows because he's so young. And nobody knows how to help him.

Comment from: Tom, 55-64 Male (Patient) Published: July 30

It is difficult to talk about Peyronie's disease with anyone. I noticed a lump on my penis and was diagnosed with Peyronie's Disease. My poor wife; no sex. It's too painful and we don't talk about it. Wish there was a support group or something.

Comment from: Doug, 35-44 Male (Patient) Published: July 17

I had surgery about 2 years ago. I had never heard of Peyronie's disease. The doctor always said I was having erectile dysfunction problems because of my diabetes. Then when I got a new doctor she sent me to a urologist and he said I had the worst case he had ever seen. I had surgery 3 days later, he put a tube, can't thank of the name, but I was hard 24/7. I was in so much pain I had to have it reversed and I am still in pain to this day. The tip of my penis looks like it was scalped. I am 42 years old and my life is in a place it shouldn't be.

Comment from: Carr, 25-34 Male (Patient) Published: May 03

I'm a 34 year old and what I'd thought was a healthy male. I was prescribed Flomax for BPH (benign prostatic hyperplasia) after getting 2 urinary tract infections back to back, within months of each other. I'd also taken OTC Nexium for heart burn. About 6 weeks into the Flomax I was awoken with a painful erection that was bent at 70 to 80 degrees about 3/4 way out. It has worsened to an almost horseshoe shape and I've been diagnosed with Peyronie's disease.

Comment from: Doesn't Work for Me, 55-64 Male (Patient) Published: January 30

Mine was straight as an arrow all my life. At 56, after a bout of flu that turned to pneumonia last summer, I developed high blood sugar and high blood pressure. The treatment is metformin for the sugar, and lisinopril with hydrochlorothiazide for the blood pressure. When it did not come down, they also added amlodipine besylate. That dropped my blood pressure into the normal range. That's when the penis started to curve. After 4 months on it, I now have a 45 degree bend up half way out, and my penis is also shorter. The medical literature says Peyronie's disease is a very rare side-effect, yet I know another individual similar to myself, 3 years older, that had the exact same thing happen to him, at the exact same time, and the only medicine we have in common is amlodipine besylate (generic for Norvasc). If it is so rare, what are the odds that I would know another individual having the exact same problem!

Comment from: Dogfart, 45-54 Male (Patient) Published: January 27

I had what I consider a normal yet really good sex life with my 2nd wife. We met when I was 43 and the sex was very intimate and intense. On my 46th birthday, I woke up with my left leg swollen like a balloon. I went to the emergency room and found I had developed a deep vein thrombosis (blood clot). Further tests indicated that I may have had lung cancer also. After surgery they ruled out lung cancer and said it was something called sarcoidosis. At almost the same point I wound up with severe erectile dysfunction, and a painful severe left bend near the head of my penis. It literally makes a 90 degree bend just before the head. Over the last 3 years, the bend became slightly better but not by much. My wife and I can't have intercourse anymore because of my Peyronie's disease and have to rely on other avenues to please each other. Thankfully we have a strong love for one another. My doctors have not been much help so far. It's discouraging.

Comment from: Duckaller, 55-64 Male (Patient) Published: November 25

My consultant suggested Peyronie's disease was caused by vigorous sex which I feel is nonsense. I had a rather pronounced curve of my penal shaft which never really bothered me or stopped me from enjoying normal intercourse. However, I recall very well, occasions whilst having intercourse that my penis despite being very erect, sort of partially kinked I felt it distinctly, and thought I had better be careful in the future, but too late I fear! The damage had been done and the traumatized area I believe attracts scarring and hence the formation of plaques. Nothing to do with vigorous sex, or unusual sexual habits just a predisposition if you happen to have a bendy one so be careful out there. Nobody told me it would be so naggingly painful either.

Comment from: chris, 35-44 Male (Patient) Published: June 16

I ended up with Peyronie's disease or something similar after a car accident when I was 17. To the best of my knowledge my penis suffered an impact in the accident which caused an internal laceration. This went unnoticed in the hospital. I also suffer loss of sensation to 60% of my penis due to nerve damage which also went unnoticed. From my knowledge there is no cure for nerve damage or Peyronie's disease.


Condoms are the best protection from sexually transmitted diseases (STDs). See Answer
Comment from: bill, 75 or over Male (Patient) Published: January 03

My wife and I had a normal and good sex life for 10 to 12 years, however my wife has small orifices, including her vagina and on occasions I would experience a sharp pain during intercourse. In the 11th year of our marriage I developed Peyronie's and I am of the opinion that it was caused by damage during intercourse. My present wife has not had children and my previous wife and I had 10 children over 17 years, I am aged 76.

Comment from: Ruuby, 55-64 Male (Patient) Published: November 21

I noticed a curvature happening about two years ago, today it has totally angled downward when erect. I can still have intercourse but it is not as pleasurable to me, she loves it, or so she says. I am wondering if there is any cure to this by taking supplements or maybe laser treatments.


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