Patient Comments: Peripheral Neuropathy - Experience


Please share your experience with peripheral neuropathy. It may help others with the condition. Submit Your Comment

Comment from: Makkers, 45-54 Female (Patient) Published: April 02

Not knowing I had Von Willebrand disease, my gynecologist recommended a partial hysterectomy to overcome severe blood loss during menstruation. I was 37. Numerous reparative operations later to clean up internal bleeding I have abdominal adhesions and severe pain. If my abdomen acts up so do my feet. Tingles, burning, embedded glass, broken bones sensations are common. Peripheral neuropathy is driving me crazy. I need a solution.

Comment from: Msbenx, 55-64 Male (Patient) Published: March 07

I do not fit in any of the causes of peripheral neuropathy. I have been tested for every one of the causes listed and none applies.

Comment from: Richard, 65-74 Male (Patient) Published: September 05

I have had symptoms of peripheral neuropathy (PM) for over 20 years. I lived with it until 7 years ago when the pain and numbness were unbearable. It was at that time that it was diagnosed. I was exposed to Agent Orange in Vietnam in 1967 and am receiving disability compensation for heart disease caused by the Agent Orange. Since PM is on the list of disabilities caused by Agent Orange I would have to assume mine was caused by it.

Comment from: Debbie, 65-74 Female (Patient) Published: July 31

I have severe peripheral neuropathy in my feet and legs. My left foot and leg started scarring 3 years ago then the pain began. Two of my toe nails came completely off and never grew back. I am on gabapentin which doesn't help at all with pain, I have burning and cramps, and it just hurts all the time. I take Norco occasionally which helps a little. Not much. I need help. Thank you.

Comment from: Steven, 55-64 Male (Patient) Published: July 26

I have a nerve stimulator in my lumbar spine and my cervical spine and the results are fantastic. I now do not need opiates or nerve medications like Lyrica and Tegretol for my peripheral neuropathy. I still suffer from feet burning and it is exacerbated by my bowel movements if I am not very regular.

Comment from: Laura, 75 or over Female (Patient) Published: September 04

I know my peripheral neuropathy is due to lack of vitamin B 12 and I didn’t eat meat for years after viewing the torture and torment of all animals. I was shocked and just stopped eating meat. I suffered depression as my husband went to heaven, and didn’t consider vitamins. I have been reading lots of articles, and doctors don’t know about B-12. All of us are vitamin B -12 deficient. They always say your level is good. No it isn’t, people! We are like this due to doctors not knowing about B 12.

Comment from: Lisa lew, 45-54 Female (Patient) Published: August 21

I have global hypokinesis and I have been in severe pain the last year. I was just recently diagnosed with polyneuropathy and I just recently started taking Neurontin 900 mg. I am in so much pain and I am really having a hard time knowing when I should go to the hospital. I would love to know what everyone else thinks, thank you so much.

Comment from: Ambika, 45-54 Male (Caregiver) Published: July 17

My husband has peripheral neuropathy since last 6 years. Till now he took Lyrica on doctor's prescription for pain, burning and tingling sensations in his feet. Now he is on detoxification diet and taking some supplements including benfotiamine and thankfully his numbness has reduced.

Comment from: Lori, 65-74 Female (Patient) Published: May 22

I am three years into idiopathic peripheral neuropathy with only the growing sense of oncoming numbness; no pain yet. Neurologist says it may or may not continue to progress so today, especially after reading so many nightmare stories, I at least just have a modicum of hope.


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