Patient Comments: PLMD - Experience


Please describe your experience with PLMD. Submit Your Comment

Comment from: Suzanne, 65-74 Female (Patient) Published: April 20

Once or twice a week I start thrashing all over about 20 minutes after initially falling asleep. Sometimes I even hurt my back with involuntary movements. My head, neck, arms, hands, everything jerks. I take more medicine, stretch my legs, and walk around. Every night I take clonazepam, trazodone, Mirapex, and gabapentin. When PLMD (periodic limb movement disorder) won't stop, I take more gabapentin and Mirapex until it stops. It's a horrible experience.

Comment from: Dash, 45-54 Male (Patient) Published: April 19

My periodic limb movement disorder (PLMD) started with leg twitching, noticed by my wife. I would typically sleep through the episodes. I saw my neurologist and started testing. First blood work, then MRI of the brain and neck. Everything was fine. MRI of the thoracic area showed two center herniated disc that were deforming the spinal cord and causing myelopathy, and clonus of the feet. By this time I was having trouble walking. I had thoracic spine surgery, removed discs, had cadaver bones graphed in and plate to fuse T 7 through T 9. Nine months later walking is normal, reflexes are normal, but PLMD is still active.

Comment from: rks, 65-74 Female (Patient) Published: October 13

I call my PLMD (periodic limb movement disorder) moving toes, because my toes start moving and wake me up. When this happens I go to the kitchen, slice an apple or two with the peel and eat the apple in bed. I also eat one small piece of dark chocolate at least 72 percent cacao. If I wake up a second time later, I again do the apple dark chocolate routine. I make sure I avoid all kinds of white sugar as well as ice cream of any kind. I may have a problem since I take depression medicine.

Comment from: Sahara5150, 55-64 Female (Patient) Published: January 30

My problem with PLMD started about 5 years ago. Initially it was only my legs that began twitching at night, always as I am dozing off to sleep. The problem has increased over the years to now include my arms, shoulders and upper back, and look like I am having seizures. Typically they last for 2 or 3 hours, but I've had spells last as long as 8 hours. Klonopin is what the doctor prescribed, and all I can tell it does is make me feel stoned while I twitch. Walking seems to be the only way to stop the jerking, but it only helps until I lay back down, then I start flopping all over again. It seems to happen on average about twice a week, but sometimes every night. This, along with my fibromyalgia, degenerative disc disease and osteoarthritis, is making life unbearable.


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