Patient Comments: Parkinson's Disease - Diagnosis

Question:

At what stage was your Parkinson's disease diagnosed? Submit Your Comment

Comment from: Ncebakazi Asia Tyong, 35-44 Female (Patient) Published: August 20

I was diagnosed with Parkinson's disease a year ago at the age of 58. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now accept I have Parkinson's.

Comment from: DJGB, 65-74 Female (Patient) Published: September 21

I was diagnosed with Parkinson's disease a year ago at the age of 68. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now accept I have classic symptoms. I am taking amantadine and carbidopa/levodopa and am about to start physical therapy to strengthen muscles. My foot still jiggles and toes tend to curl and cramp but I do see improvement. I am fortunate to have the loving support of my husband and family. I make it a point to appreciate every day!

Comment from: Mary, 75 or over Female (Patient) Published: August 15

I was diagnosed with restless leg syndrome (RLS) at 69. I had begun to have twitchy legs but if I exercised the legs, the feeling went away. When the exercise stopped working, my neurologist prescribed one Sinemet 50/200 at night. For a year or so, I was taking it twice a day. After that the neurologist began testing other drugs but none helped like Sinemet. I was sleepy in the beginning but after 10 years, I no longer experience sleepiness. However, I am up to 3 50/200 and 4 25/100 in a 24 hour period, sometimes it takes more than that. I realize now that the RLS was a precursor to Parkinson's disease but it seems to be progressing very slowly so I am adapting. I keep active and can still pick up and carry a case of 24 1/2 liter bottles of water. And I can still drive my pickup truck at 79.

Comment from: 75 or over Female (Caregiver) Published: March 11

My grandma has Parkinson's disease, she is about 75 years old it was detected 7 years ago. Right now it's getting more difficult to live for her, because of stiff muscles she can't even move. L-dopa and carbidopa medicines are given, but won"t give much relief. She can"t eat food and the skin is damaging forming ganglia. This is may be the last stage of disease.

Comment from: Jane, 55-64 Female (Patient) Published: August 17

I have been diagnosed with Parkinson's disease even though I don't have the DaTscan until 22 August. I was being tested for multiple sclerosis and have been displaying symptoms for around 3 years, shaking, twitching, rigidity, neck pain and anxiety. I am a 61 year old female.

Comment from: Buddah, 75 or over Female (Patient) Published: June 15

My comment starts with my diagnosis and my neurologist assistant's comment, 'oh, you are so lucky, it could have been something serious.' Looking back on that I am flabbergasted at such an unfeeling comment. I was also told 'you don't die from Parkinson's disease,' you just die from associated symptoms! Well, guess what, you don't die of cancer either or from the flu or from motor neuron disease, you die from the symptoms of those disorders. Looking forward to a slow death, unable to eat or move or breathe or take care of one's self; I will most certainly die of Parkinson's. It seems to me that like my other conditions of arthritis and especially atrial fibrillation, if the medical fraternity doesn't know how to cure it they brush off any suggestion that they are at a loss, with platitudes and a wave of the hand. Treat us like people with a very serious disease, admit you are at a loss, and be truly aware of the terrible impact it has on people's lives.

Comment from: bud244825, 35-44 Male (Caregiver) Published: February 07

The love of my life for the last 17 years was diagnosed with Parkinson's last week. In the last year I have noticed the tremors on the left side of his body, and he has a significant loss of strength and mobility in his left arm and left leg. It took me almost a year to get him to go to the doctor. I had long suspected it was Parkinson's but when the doctor confirmed it last week, I really hoped I was wrong. The doctor started him on Sinemet immediately and after a week we are noticing that the tremors are decreasing. We remain hopeful for the future.

Comment from: Bill, 75 or over Male (Patient) Published: August 08

I'll be 75 in 3 weeks. My Parkinson's was diagnosed about 3 weeks ago. For years I have had symptoms of arthritis and neuropathy, but they were only diagnosed a few months ago after I fired my previous doctor and hired another. It was the onset of tremors starting in my right hand that caused my other symptoms to be recognized as Parkinson's. CARBIDOPA-LEVODOPAER 25-100, 100mg 3 x Daily, has been been very helpful. I can still walk smoothly but the ground under me feels like it is loose or moving. Swallowing and speaking difficultly has been periodically problematic for about 15 years. But I still get around without being noticed. My diet and exercise are normal for me and my weight remains at 155lbs. My main concern is that all my family members have passed on and I live alone. I'll have to make future care arrangements with strangers.

QUESTION

Parkinson's disease is only seen in people of advanced age. See Answer
Comment from: Michele, 35-44 Male (Caregiver) Published: June 25

My brother was diagnosed last month with Parkinsons at 40 years old. Currently he only has a tremor in the left hand but his dr has said he displays other signs ie finger tapping difficulty, loss of expression and no swing on arms. None of which I even noticed until it was pointed out. This disease scares the hell out of me but I am determined to gain as much knowledge as possible and do all I can to help him adapt to new symptoms if and when they arise. Also had the chance to see how deep brain stimulus via an implant works and although it isn't for everyone is was very impressive. Thank you all for sharing

Comment from: Sue, 65-74 Female (Patient) Published: August 09

I was just diagnosed with Parkinson's last week. I am 66 years old. My symptoms at diagnosis are tremors in the right arm and hand at rest and also walking without moving my right arm.

Comment from: Rooting for Michael, 45-54 Female (Patient) Published: March 05

I am 45 and was diagnosed with Parkinson's disease 5 months ago. I showed symptoms for many years but it wasn't until my eyes and face started twitching following a seizure like episode that I was officially diagnosed. If you think something is wrong see a doctor. Medication is VERY helpful for me and I expect to live a long life :) Besides I am too angry to settle for less!

Comment from: george, 55-64 Female (Caregiver) Published: March 01

My husband was diagnosed with early onset Parkinson's disease at 63. His symptoms were shuffling of feet, slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle. Things are tough for me, I too am disabled but now must step up to assist him. He now walks with a walker. He has trouble with balance especially at night, getting into the shower and exiting it is difficult. Getting into bed is also another thing he finds impossible. We have a high bed and I had a local school make a bench to help him into bed.

Comment from: genie, 65-74 Female (Patient) Published: May 21

I have been recently diagnosed and the symptoms are in the low to medium pain level. I have fair days and debilitating days. I also have fibromyalgia going into my 20th year. I am 65 years old but feel older due to the Parkinsons.

Comment from: 55-64 Female (Patient) Published: May 01

I was diagnosed 2 years ago at age 63. Symptoms were tremor in right leg, loss of handwriting ability, and soft voice. I also have difficulty rising from a seated position and have balance issues. I started out taking only Azilect, then Mirapex, and last month Sinemet. Several months ago I started falling frequently, hence the reason for Sinemet.

Comment from: epsteinabe, 45-54 Male (Patient) Published: May 01

I was diagnosed in 2004 at the age of 38, but ever since the age of 24. I had varying symptoms of the disease, which at the time all of us did not know were of Parkinson's' disease, or else I would have taken treatment earlier.

Comment from: Janet, 75 or over Female (Patient) Published: May 23

I was diagnosed with mild Parkinson's Disease two years ago (2009). I went to a Neurologist because of tremors causing my ability to write to fail. I took Prolanolol for 2 years and have stopped Prolanolol as of the end of April. Now I am on Carbidopa/Levodopa Tablets 25mg./100 mg., brand name Sinemet, 3x/day. Getting acclimated to Sinemet has taken a little effort, with nausea at first, but I am adjusting and my tremors have decreased to my satisfaction. My PD is still at the mild stage.

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