Patient Comments: Parkinson's Disease - Treatments

Question:

What do you do to treat and manage your Parkinson's disease? Submit Your Comment

Comment from: kleed, 45-54 Male (Patient) Published: March 01

I have tried many different things trying to get rid of the plantar warts on my feet. Believe it or not, I found that apple cider vinegar does the trick. I got a foot file, and file the warts every day after I shower, then every few days I soak a cotton ball in apple cider vinegar and tape it onto the wart and leave it on for a few hours. The next day the warts are sore but they are already turning black and diminishing. Keep doing this for a few weeks and they should be gone for good! Vinegar is amazing stuff!

Comment from: paul, 75 or over Male (Patient) Published: September 23

I have had Parkinson's disease (PD) for about 5 years. I am doing well on Sinemet and Azilect. I have heard that some of our neuro transmitters i.e. serotonin and dopamine are manufactured in our gastrointestinal tract as well as in our brains. I also wonder why we need more and more of Sinemet to control our symptoms as time goes on? Also, Azilect is very expensive. I wonder if there is evidence that it helps as the disease progresses. It almost seems like PD is an autoimmune disease to dopamine.

Comment from: Cinnamon, 65-74 Male (Patient) Published: September 02

Since the Rush University Medical Centre cinnamon study report on the benefits for mice with Parkinson's disease (PD), I have taken cinnamon 1 tsp with quick oats in the morning and again at night around 9:30 pm. I weaned myself off Levocarb 100/25 and my PD symptoms have declined over a 2 week period. I have my fingers crossed that all symptoms will go away. The last symptom, an occasional tremor in my lower jaw at bedtime is almost gone. So far, I feel like a lucky mouse who joined the study at Rush University in Chicago. I am 69 and also do walking on a treadmill at 2 mph for 40 minutes every 2nd day. Read the Rush University press release June 20, 2014 and see what they found.

Comment from: Cathy, 45-54 Male (Caregiver) Published: May 17

I am very upset about new information about Prilosec. I use it every day for GEED and when I go off of it, I suffer pain. I have tried Nexium, but even though I can use it for a couple of days, Nexium makes me sick. I am afraid to go off Prilosec. One day I will try, but I will have to rely on Rolaids and Tums like I did long ago. It is very hard to fall asleep raised up high. I do use a couple of pillows. I watch my diet, because if I don't I get sick. I love tomato foods, but they don't love me. I can cheat once in a while. I think the trouble with Prilosec and other medications like it is you can get it over the counter. So instead of people watching what they eat, they just take a pill. If people just decide to go off Prilosec cold turkey, they will have a rebound of serious attacks. Everyone I know has GERD. I wonder if it is something in the food or in my eating patterns. I just don't know. Maybe we were not meant to eat non-foods.

Comment from: Tom, 45-54 Male (Patient) Published: October 31

I was diagnosed nearly 10 years ago, when I was 38. I am now almost 48 and my Parkinson's disease (PD) is still fairly well controlled. I have started to have some difficulties between doses and have had to watch that more carefully the last year or so. I am still living independently, and yes, from what my screen name suggests, I still play the violin, but I had to stop playing at the symphony level some years ago. I still play "fiddle" type music quite well and enjoy it a lot, although if I'm not careful with medications and preparation I can have a "melt-down" and have to take a break from playing for a half-hour while I calm down and medicines kick in. Rather embarrassing at a show, but it only happens every once in a while. Life is still good!

Comment from: Maggie, 75 or over Female (Patient) Published: April 22

I was diagnosed with Parkinson"s syndrome in June of last year. I had essential tremors since age 55. I have a stooped posture, right arm does not move. I also have a pulsating feeling in my body. My legs tingle and are cold. I am on Sinemet and primidone for the essential tremors.

Comment from: shlawa, 75 or over Male (Caregiver) Published: October 08

My husband was diagnosed at age 74 with Parkinson's disease. He was put on Senemet for 6 months and then Siferol was introduced and replaced the Senemet. During this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor's knowledge). He has improved dramatically.

Comment from: Peggy, 55-64 Female (Patient) Published: July 29

I am 56 year old who was diagnosed 4 months ago with Parkinson's. I have severe calf pain, muscle pain, slurred speech, frequent falls, loss of balance, difficulty in getting up from sitting position, I'm having a problem accepting my diagnosis, even though I've read every thing I can find to read. I've been put on Sinemet 3 times daily but it doesn't seem to be helping. I also have difficulty writing now. Getting in bed, turning over. Is the any other medicine that anyone else has tried that works?

QUESTION

Parkinson's disease is only seen in people of advanced age. See Answer
Comment from: 45-54 Male (Patient) Published: March 01

I have been diagnosed with Parkinson's disease since 2010, by the VA. I found that none of the current medications worked (side effects for me). I currently take pramipexole dihydrochloride three times daily. It's working well. I still have some tremors but dealing with it. Was on carbidopa levodopa but only lasted 90 minutes then wore off. I still use it when need to use hands etc. Down side of carbidopa is after reaching max dosage it will no longer give relief, per my doctor. I am 45 years old. No history in my family. I was determined to be service connected from Afghanistan and Iraq. Other veterans please pay attention and get checked.

Comment from: RidgeRunner, 55-64 Male (Patient) Published: February 19

Exercise and Azilect/Inderal was used to treat my Parkinson's. I was diagnosed at 61 years old. I had left side hand tremors, calf cramps leading to not walking - after a long shopping day, for example. I gradually started a physical therapy regimen with water exercises in their pool. I just graduated to yoga-type stretching of all muscle groups daily and isometric exercises. No weights, just pushing or pulling against resistance. Also a lot of leg exercises so I can get out of a chair easier. A good physical therapist can get you on the right path. It requires your dedication to help, what I feel, is the delay in onset of symptoms by "sweating" exercises - every day.

Comment from: MM, 65-74 Female (Patient) Published: January 31

I take Sinimet four times a day to control my symptoms, which inlcude falling, imbalance, gait problems, swallowing difficulties, and slurring of speech. I also exercise 7 days a week. I walk with my walker over a railroad overpass 6 times near my house, 4 times a week. I ride a recumbent bike four days a week, for 40 minutes each time, and I work out with weights five days a week. This has really helped me develop muscle strength so that if I get unbalanced, I will not always fall.

Comment from: shakerattleandroll, 55-64 Male (Patient) Published: September 30

Exercise with emphasis on stretching and exaggerated movements seems to help my Parkinson's. Medications include carbidopa/levidopa, and amantadine.

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