Patient Comments: Parkinson's Disease - Symptoms

Question:

At what age did Parkinson's symptoms first appear, and what are they? Submit Your Comment

Comment from: sarah, 65-74 Female (Patient) Published: August 28

I was diagnosed with Parkinson's disease a year ago at the age of 68. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now I accept I have Parkinson's.

Comment from: Annie, 45-54 Female (Patient) Published: August 21

Now that I understand the Parkinson's symptoms, I realize that they first began when I was around 45. I am now 49 and have been officially diagnosed. I began with a tremor in my right index finger and I was having a slowing of cognitive abilities. Soon after I began having balance issues and falling. Now the tremors are in the entire right arm and hand, and head tremors at all times. I am taking Requip currently and will be adding in Azilect this week. I am seeing improvement with the Requip so far.

Comment from: judy, 75 or over Female (Caregiver) Published: April 23

My sister has been on Sinemet for Parkinson's disease for 7 years. Now she is feeling weak, faint, has thick tongue, dry mouth, pressure in head, and shortness of breath. These episodes are becoming more frequent and closer together. If she urinates, symptoms improve. I wonder if anybody else experienced anything like this.

Comment from: guiena pig, 75 or over Male (Patient) Published: January 07

I got Parkinson's symptoms at the age of 86. I had tremor of left hand. I am currently using magnesium once daily. I suggest you try it, it is truly amazing!

Comment from: megan fox, 65-74 Male (Caregiver) Published: July 03

I was diagnosed with Parkinson's disease nearly 4 years ago, at age 51. I had a stooped posture, tremors, muscle stiffness, sleeplessness, and slow movement. I was placed on Sinemet for 7 months and then Sifrol and rotigotine were introduced which replaced the Sinemet but I had to stop due to side effects.

Comment from: Sylvia, 65-74 Female (Patient) Published: September 06

I am of age 66, and I have tremors at night during sleep. My hands shake some when I use my phone, during texting or playing games. I am wondering if these are symptoms of Parkinson's.

Comment from: Tony Van, 55-64 Male (Patient) Published: June 05

I was around 38 when my thumb started giving me problems. As time passed Parkinson's disease got where I couldn't write, then I got it in the other hand. I have problems walking. I take Mirapex. It is getting where I drool.

Comment from: maureen, 55-64 Female (Caregiver) Published: July 18

My husband was diagnosed with Parkinson's disease nearly 7 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also has a pulsating feeling in his body. He was placed on Sinemet for 8 months and then Sifrol was introduced which replaced the Sinemet. During this time span he was also diagnosed with dementia. He started having hallucinations, and lost touch with reality.

Comment from: jud, 55-64 Male (Patient) Published: February 26

I am a male aged 60 and diagnosed with Parkinson"s at 59. I had some symptoms for a few years before diagnosis; stiff achy right arm and ankle, right hand tremor when typing, tiredness, body shivers, falls due to tripping. I was always active, bicycle riding to/from work daily and putting in 2 to 3,000 miles on my bicycle per year. Azilect and almost daily exercise have reduced my symptoms so much that now I hardly notice them.

Comment from: Ahsan, 0-2 Male (Patient) Published: August 24

I am a 39-year-old man. My Parkinson's disease appeared at the age of 37. My symptoms, at the beginning, were fine tremors and rigidity with joint stiffness. I am taking entacapone with levodopa, carbidopa, and pramipexole. My Parkinson's disease is mostly under control.

Comment from: Lalita, 75 or over Female (Patient) Published: August 13

I am a 77-year-old lady. My Parkinson's disease appeared at the age of 55. My symptoms at the beginning were fine tremors and rigidity with joint stiffness. I am taking Entacapone with Levodopa, Carbidopa, and Pramipexole. My Parkinson's disease is partly under control.

QUESTION

Parkinson's disease is only seen in people of advanced age. See Answer
Comment from: joption, 55-64 Male (Patient) Published: November 19

I noticed a vibration in right foot and then right hand. After about 18 months a shake and/or tremor. Twelve months later, shaking. Still testing medicines, but 3 did not work. It may be Levodopa as last resort.

Comment from: Elaine, 55-64 Female (Patient) Published: January 21

My symptoms started at the age of 33. My fingers on my left hand were stiff and were difficult to move. People noticed that my walk was not normal. I was often asked did I hurt. I noticed nothing different about my walk. It was difficult getting up from` a chair and getting out of a car. I was diagnosed a year later. I am now 59. With new medicine in recent years, I feel better now than I have felt since I was diagnosed. Having PD has changed my life drastically, but I am coping.

Comment from: 55-64 Male (Patient) Published: October 07

I was diagnosed five years ago at the age of 51. I had symptons for 3-4 years prior to that but did not know anything about Parkinsons. I first noticed a slight twitch in my left hand, finger and thumb, which became pill rolling. We attended a lot of sports events and I would lose my balance in the moving crowd. I then started seeing a neurologist. I started falling a lot when losing my balance and had a hard time walking normal. I finally froze up in the doorway at church. I told my Neuro and he said that he now knew that I had Parkinsons. Started me on drugs and I got better right away.

Comment from: RedSky, 55-64 Female (Patient) Published: August 06

I am a 55 year old female that just found out I have Parkinson's, but I have been having signs of it for years, tremors, depression, body weakness. ECT. I honestly don't think my doctor was reading the signs because of my gender and age. A few years ago I had my shoulder lock up on me and I was sent to a P.T since x-rays didn't show any physical damage. My shaking was getting worse and I began falling. Only when my speech became so bad that it brought concern to my dentist was Parkinson's even considered. He phoned my doctor with his concerns about my shaking and balance problems. By this time I was forgoing shots in the back of my neck for back and neck pain to which once again I was sent to a P.T (although x-rays showed no damage) I was told I had a few spurs which were most likely causing the pain. Here I was feeling like my whole body was falling apart and doctor could not find anything wrong, maybe in was all in my head? My doctor even seemed annoyed with me and things just kept progressing and I just kept it to myself, why bother going through testing and them finding nothing? Well, it was after my second P.T called my doctor about the weakness in my legs and arms, by this time I have developed a gait in my walk and I fell more frequently. Only then did my doctor send me to a specialist and it was found that I had Parkinson's, and that I had had it for awhile. I think because I was a woman that my signs and symptoms weren't taken seriously and therefor left untreated for so long.

Comment from: intrepid, 55-64 Female (Patient) Published: April 13

I am 56 years old and was diagnosed with Parkinson's disease after four years of decreasing mobility to the point of having family dress me. One of my first symptoms was the lost of my sense of smell. Experiencing the beautiful aroma of a rose is no longer something to look forward to.

Comment from: DGBridgers, 75 or over Female (Caregiver) Published: August 04

My husband, age 80, has just been diagnosed with Parkinsonism. It took a while and several doctors (2 were neurologists) to make the diagnosis. He has all the symptoms except the tremors. Looking back I can now understand what was happening to him over the last 2 years. He was falling (backwards) developed humped posture, slow movements. The last fall that fractured his hip was what brought out the PD question when he had to go to therapy and they indicated that his body was very rigid. He has been in skilled care facility since February and is now on Sinemet. He has been on it for 2 days and we are hopeful.

Comment from: stephen tisdale, 65-74 Male (Patient) Published: January 03

Parkinson's symptoms first appeared when I was 68.

Comment from: marlop, 75 or over Male (Caregiver) Published: December 13

My father has Parkinson's disease, his neck muscles stiffen up and he has a hard time breathing.

Comment from: Marge, 75 or over Female (Patient) Published: November 14

The symptoms first appeared when I was about 72 years old.

Comment from: sarahco, 13-18 Female (Patient) Published: August 20

My early symptoms started at age 16. I had tremors in hands and legs, and stiffness which made it impossible to move.

SLIDESHOW

Parkinson's Disease: Symptoms, Causes, Stages, Treatment See Slideshow
Comment from: photoman, 25-34 Male (Patient) Published: July 30

When I look back I am now noticing the signs of Parkinson's disease. For about a month suddenly the symptoms worsened. I am not official diagnosed but will be going to the neurologist in 3 days to get official tests done. I know in my heart it is Parkinson's. I just turned 28 and read that people in the older years develop Parkinson's. At the moment I am just trying to process this information because I just saw my doctor about an hour ago.

Comment from: Umrish , 65-74 Female (Caregiver) Published: April 13

My mother is now 73 years old. About 10 years ago, she was diagnosed with Parkinson's disease. She is having stiffness and finding it difficult to walk. She tends to fall. Now, another problem that we are facing is that she is losing her memory day by day.

Comment from: DLPD, 65-74 Female (Patient) Published: February 24

I began to have a lack of energy and strength at about 53 years of age. Next came legs that would not do what I wanted them to, such as climb stairs. My balance was also a problem. I was first diagnosed with Parkinson's disease when I was 62. My main symptoms were muscle weakness and a tendency to fall. They continue to be my greatest problems along with lack of judgment, forgetfulness, and anxiety.

Comment from: PeruvianPatient, 55-64 Male (Patient) Published: February 24

I will be 61 years old next month and was diagnosed with Parkinson's disease 13 months ago. My main symptom was and still is rigidity or stiffness of my right-hand side. I also have some difficulty writing. The original diagnosis was confirmed three months later by a second neurologist. I am on one tablet of pramipexole (Sifrol), 0.25 mg three times a day. Four months ago my neurologist added Biperiden, 2 mg. Now, I take half a tablet of Biperiden three times a day. Since the original diagnosis, my stiffness has slowly increased.

Comment from: Pandy, 55-64 Female (Patient) Published: November 11

I was diagnosed with Parkinson's disease at the age of 37. My father had it, so I don't know if it's my luck or heredity. My first problem was fine motor skills, especially writing. After five years of waiting, I saw a neurologist who confirmed my fears. I was immediately started on Sinemet. All of this was 22 years ago. I will be 59 in a few days. I have had good luck with the Sinemet and other meds like Mirapex, but I am extremely tired now. I have also noticed cognitive decline, but that is also related to a now-removed brain tumor. I also have had type 1 diabetes for 30 years.

Comment from: misspunken, 25-34 Female (Patient) Published: August 19

I'm 25 and for the last few weeks I have noticed that my fingers and hands shake a lot and my fingers want to jerk and twitch. I lose track of my concentration. I can't remember things. My mom was my age when I first noticed her doing the same thing.

Comment from: Gloria, 75 or over Female (Caregiver) Published: August 19

My sister was diagnosed a week ago after several years of being told she had "restless leg syndrome.” She has very bad toe cramps, where here foot looks like a claw and is very painful. She also "freezes" on trying to stand from a sitting position. She speaks so quickly and "gabbles" that we are unable to decipher what she is saying. She is now very unsteady on her feet and has fallen several times; we are obviously very concerned about this as she lives alone. She is 84 years old. Her neurosurgeon has suggested that she should move into a "lodge" with 24 hour supervision.

Published: July 29

My Parkinson's first started at age 46. I was a paramedic and as it progressed and my gait was changing, I knew something was wrong, so I went to a neurologist. Very early on, my lips were quivering. The medications have helped, and I am able to function — just a little slower now.

Comment from: Clara, 65-74 Female (Caregiver) Published: February 11

My husband is 80 years and has been suffering from PD for the past 15 years. Lately he has started hallucinating and I don't know how to handle the situation. He cannot sleep and tried to find and catch the imaginary people who he thinks are real. Any advice will be welcome.

Comment from: R.R., 55-64 Female (Patient) Published: February 10

I am 57 and diagnosed in June 2009. I had a very long list of symptoms, some of which were. Keeping right arm close to my side while walking, tremors in right hand, numbed toes on right foot, drooling out right side of mouth, over all body aches and pain, trouble moving in bed, dry skin, hair falling out, urinary incontinence, fecal incontinence, slurred words, falling, speaking softly, tiredness, aggravation and irritation, weepy and crying a lot, loss of strength.

Comment from: KAREN MORGAN, 55-64 Female (Caregiver) Published: January 25

I was diagnosed with PD 7 years ago. I first developed weakness in my right hand and would have tremors occasionally. I was having trouble writing, brushing my teeth, doing routine ADl's. I felt like I was doing thing in slow motion. I still only have tremors occasionally, it is usually positional. When I was driving I would tend to go off the road.

Comment from: Fisherwoman, 55-64 Female (Patient) Published: January 20

I am 55 and have been diagnosed with Parkinson's for about 3 years but symptoms for several years before. I had lots of tests to show what diseases I did not have. My Mother was diagnosed when she was in her early 30's and passed away after 22 years. I noticed the shuffling and arms going numb when I was driving. I have been seeing a Chiropractor and it has helped me stay a little more flexible than without. I have tried different medications and am changing some at this time; my Neurologist is open and supportive when looking at alternative medicines and procedures. I also have a VERY supportive Husband and family, they keep me active and pull me if I walk too slow.

Comment from: Johan, 55-64 Male (Patient) Published: January 06

I have been diagnosed 8 years ago and have since undergone DBS surgery early this year. I am very anxious about the results, no marked improvement noted, but I have to follow up with my neurosurgeon again. I also suffer from delayed ejaculation or lack thereof at times. A very difficult situation for my very patient wife! I need a response please, if possible.

Comment from: Jogger, 55-64 Male (Patient) Published: October 30

I am 62 years of age and was quickly diagnosed with Parkinson's 8 months ago. My only symptoms to date are shakiness (increasing) and general reduction of control and strength of the left hand. Lately, I experience a general tightness of the chest accompanied by periodic sudden feelings of shortness of breath. I also become quite dizzy when performing any athletic function (jogging). I have been quite active and hope to continue. I am on Levodopa/Carbidopa, 100/25.

Comment from: Theresa, 45-54 Female (Patient) Published: August 06

I was diagnosed with Parkinson's disease in my mid to late 40's. I had hand tremors for several years. Gradually becoming worse. I then noticed when I was tired the tremors were worse. I started falling for no apparent reason. I now have stiffness in my legs and need to walk with 2 canes or a walker. I am very slow getting around. I am now 54 years old. I am forgetful at times and have difficulty expressing myself. I have difficulty swallowing at times. I become tired easily.

Comment from: bigbux, 45-54 Female (Patient) Published: August 06

I remember my arms quit swinging and the tremor started when I was about 44 or 45. My son was one of the first to go to Iraq and I had also started a new more stressful job. I thought it was stress. I am a nurse and I spoke with a neurologist at the facility and he suggested an MRI and a neurologist in private practice. I went to the neuro and had the MRI. The neuro did not think I had it then. He thought it was benign orthostatic tremors. The symptoms got progressively worse, shuffling gait, poor balance, no arm swing, tremors. People would say you are shaking my reply would be , “that's what I do.” I went back to the neuro and have been diagnosed for about six months. I am now 50. Getting the meds tweaked. I feel good most of the time, have a good supportive family.

Comment from: elvira, 55-64 Female (Patient) Published: June 12

I have an essential tremor which delayed diagnosis but I was diagnosed at 54. I responded slowly to Madopar and it started wearing off within a year. Currently I am on Mysoline 250mg in 3 doses for the essential tremor. Madopar 200mgfour times a day. Sifrol 1mg three times a day. My worst problems are now mostly drug related. Insomnia (never had difficulty until Madopar. Reduced impulse control (I spend money much more and gamble more). I haven't stopped talking since I was started on Sifrol. I babble to everyone and if no animate object is around I talk to the walls/floor chair. It used to be quiet in my head. Mostly it's cheerful but I would really like to shut up!

Comment from: Susan, 65-74 Female (Patient) Published: August 19

Around age 60 I noticed that my handwriting was getting smaller and I was writing faster. I also noticed a small tremor in my right hand. The doctor went over my different symptoms and he suspected I'd either had a small stroke or the beginnings of parkinson 's disease. After finding a neurologist and some testing I was diagnosed with the beginning stages of parkinson's disease. That was 4 years ago. Things are under control and with medication, my progression is slow.

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