Patient Comments: Pancreatitis - Causes

Question:

If known, please describe the cause of your case of pancreatitis. Submit Your Comment

Comment from: karylysa, 55-64 Female (Patient) Published: November 03

The surgeon who took my gallbladder out said he saw stones, although that's not documented in my medical record, so I'm constantly asked about drinking, which I don't. The surgeon saw no signs of cancer, so I'm banking on gallstones as the reason for my pancreatitis and hoping my pancreas heals now that the blockage has been cleared.

Comment from: Paul Owen (UK), 45-54 Male (Patient) Published: October 04

I have been diagnosed with chronic pancreatitis since 2013. I have all the symptoms; severe pain, actually vomiting, and diarrhea. I go through spells where I don’t feel I have an appetite. I have low fat levels in my blood, which doctors expected to be high, and drink no alcohol. In fact my symptoms have been described as idiopathic (meaning no trigger can be found). I was advised there is no cure, and if pain is very severe, then hospitalization. My Creon enzyme medicines and diet do help, but no cure.

Comment from: Wezlwoman, 55-64 Female (Patient) Published: April 13

I have pancreas divisum, a congenital defect in which the embryonic pancreatic ducts don't fuse when they should. I have a normally sized and located pancreatic duct and a vestigial duct which empties directly into the intestine. Unfortunately, the vestigial duct drains the majority of the pancreas. It's thought that the mismatch of the small duct size and the large volume it drains can cause pancreatitis. I've had pancreatitis multiple times. The small duct has been stented multiple times. Cholecystectomy seemed to have given me a four-year grace period on pancreatitis, but now it's back.

Comment from: emtchick84, 25-34 Female (Patient) Published: May 04

I had my gallbladder removed 14 years ago which was my 1st time being diagnosed with pancreatitis. Lucky me, it is diagnosed as idiopathic so no known cause and no way to stop the constant flare up. I have spent 2 weeks a month in the hospital several times, some months I have been in the hospital from the beginning to the end.

Comment from: RAYZ, 75 or over Male (Patient) Published: March 30

I was recently diagnosed with chronic pancreatitis at age 75. I have never been a heavy drinker. My doctor said it was the cause which puts me in an awkward position in denying it. I am now on Zenpep. I also have been on statins for decades and recently read they can cause pancreatitis in certain cases.

Comment from: Af Antar, 19-24 Male (Patient) Published: June 14

I have been admitted in the hospital 14 times and been given saline in my house many times. I have been suffering from pancreatitis since I was 4 years old, and I still suffer with this problem, and now I am 23. But I have no solution to this problem. My pancreatic stone size is 7 mm. I get sick every few days. It is very painful.

Comment from: febber, 55-64 Female (Patient) Published: May 22

I have just experienced pancreatitis. Pain started at about 10 am at work with pain at the top of my stomach (where it meets the breast bone) and in the middle of my back. I thought I had bad indigestion but I had a light breakfast and a few sips of coffee. It got gradually stronger and I thought I hope it's not a heart attack. I became very clammy, breaking into a sweat and felt very unwell. I had no nausea or vomiting, just strong pain. I've had gallstones for 30 years but no attack in at least 15 years. This was not feeling like a gall attack. My experience with gall attacks was acute intense pain (like 3rd stage labor that never ends) and vomiting. This was different. I took 2 paracetamol pills but it did not help. After a couple of hours a co-worker took me to hospital emergency where they gave me antacid which did not help. When the pain did not go they did and ECG which said my heart was ok. Then they took blood and gave me intravenous fluids. The pain went away. Blood tests showed I had pancreatitis. The doctor suggested I have my gallbladder removed that afternoon as the pancreatitis had settled and I was otherwise in good health to have the surgery. I am on day 3 post surgery and feeling ok. I am a bit sore in the belly button but not feeling too bad. Just reeling a bit from the turn of events.

Comment from: Sgal, 35-44 Female (Patient) Published: March 27

I have chronic pancreatitis due to having an auto-immune disease but it started with my gallbladder. I'm not a drinker at all. In March 2012, I got very ill after eating a chicken sandwich. The gas pain was so bad I took everything we had in the house with no relief. That night we went to the emergency room (ER) where they told me I had the flu. Exactly a week later, I was back in the ER again with the same pain. After having an ultrasound they couldn't even make out my gallbladder because of inflammation. They stuck a tube in my right side to bring down the inflammation and wanted me to go home for 6 weeks. I insisted they do surgery which they did after 3 days and found 32 stones. My gallbladder and the stones were removed but a month later when I was still having pain, they did another scan and found psuedocysts and 4 more stones that backed up into my pancreas. I lost 60 lb. and spent a total of 32 weeks on and off in the hospital due to nutrition problems because of feeding tube issues which were changed multiple times and spent 5 days in the ICU from C. Difficile. The doctors weren't sure I was going to live. Every few months I end up in the hospital because of dehydration and psuedocysts. I don't find that the enzymes work well and pain medicines dull the pain but it never quite goes away. I do not wish this on anyone. I can't enjoy going out for dinner and most of my meals are protein shakes. Best of luck to those who have this disease.

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Comment from: Shadow, (Patient) Published: March 17

I spent two days with severe pain in my upper back and stomach. After several tests the doctor has finally diagnosed acute pancreatitis. They could not give me a reason that I would acquire this disease. After going home I googled all the medications that I take; high blood pressure and insulin. I am on Victoza insulin, and one of the more serious side effects of this insulin is pancreatitis. I am baffled that the doctors couldn't figure out that insulin caused this.

Comment from: Bevie'sgirl67, 65-74 Female (Caregiver) Published: September 23

My 70 year old mom is currently hospitalized for severe pancreatitis. She had her gallbladder removed years ago and is not and never has been a drinker. She is on a lengthy list of medications for other ailments so they think perhaps one of her medicines is causing this, her first attack. This woman has had more surgeries and procedures than I can count, but I can honestly say I've never seen anyone in as much pain as she is in now. My mom is also on gabapentin but they just recently lowered her dosage. Weird that lowering a dose can cause such a thing.

Comment from: BDavis, 19-24 Female (Patient) Published: September 19

I was diagnosed with acute pancreatitis due to a long exposure to antibiotics (3 months), most recently to levofloxacin.

Comment from: Jude, 55-64 Female (Patient) Published: September 17

I had necrotizing pancreatitis after an ERCP procedure to remove a gallstone. The doctor nicked my pancreas. I went home after the procedure, and a few hours later was in so much pain, I called an ambulance and went back to the hospital. Everything is blank until I woke up ten days later in ICU. I had the pancreas problem, as well as C. difficile. I spent 4 1/2 months in the hospital with tubes and antibiotics. Fifty percent of my pancreas died, so now I am at risk for diabetes. I had my gallbladder removed a month after my release from hospital, and still have pain.

Comment from: Skimmer, 45-54 Female (Patient) Published: September 04

I rarely drank alcohol and only had a couple of small gallstones. My chronic pancreatitis was triggered by an ERCP (endoscopic retrograde cholangio-pancreatography) during which several polyps were removed.

Comment from: butterfly, 55-64 Female (Patient) Published: March 04

I had acute pancreatitis due to medicine given to me for shingles. This medicine was called gabapentin. So I had shingles on the right side of my head and pancreatitis at the same time. I spent over a week in the hospital.

Comment from: Cher, 55-64 Female (Patient) Published: December 17

Cause was not determined. I do not drink nor did I have gallstones.

Comment from: zafar, 25-34 Male (Patient) Published: June 09

My pancreatitis is caused by 2 stones in my pancreas.

Comment from: suzannejb, 45-54 Female (Patient) Published: November 11

Abilify can cause pancreatitis (it's an official side effect). I am having symptoms (gas, etc.), and I also drink. I have not yet been diagnosed with pancreatitis, but should probably get checked.

Comment from: Coolbrezzzes, 55-64 Male (Patient) Published: January 06

I have had idiopathic pancreatitis several times. My concern is the attitude of some medical staff who continued to ask me about drinking which I don't.

Comment from: PBCer2008, 55-64 Female (Patient) Published: July 31

I was diagnosed 13 years ago with stage 2 primary biliary cirrhosis which is now stage 4. In 2008, I was rushed to the emergency room with acute pancreatitis. I am not a drinker or drug user. Apparently many people who suffer PBC develop this problem due to the inflammation in the bile duct connecting to the pancreas. I wanted people to know that this is also a reason people suffer from pancreatitis. I had to have an ERCP to stretch the duct opening, and I've been fine ever since.

QUESTION

Bowel regularity means a bowel movement every day. See Answer
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