Patient Comments: Pancreas Divisum - Treatment

Question:

What kinds of treatment or surgery have you received for your pancreas divisum? Submit Your Comment

Comment from: Carol, 55-64 Female (Patient) Published: November 06

Pancreas divisum was diagnosed with an endoscopic ultrasound of the pancreas and an MRCP (specific MRI of pancreas). Treatment was an ERCP with sphincterotomy of major and minor papillary ducts with stent placement in each duct. I experienced acute pancreatitis 3 days after stents were placed. The stents were removed after 1 month due to further pain. Current treatment is Creon, low fat diet, small frequent meals, heating pad and pain management.

Comment from: JP, 55-64 (Patient) Published: August 21

After years of pancreatitis and removal of my gallbladder, it was discovered that I have pancreas divisum. No doctor seems to be in any hurry to do anything about it but I have been referred to a specialist and was given Creon as a pancreatic enzyme.

Comment from: Molly, 35-44 Female (Patient) Published: July 31

I was diagnosed with pancreas divisum when I was 17. It didn't show up in ultrasound or CAT scans, they had to do endoscopy to find it. They placed a stent to enlarge the drain in the pancreas but removed it after a couple weeks hoping that it would stay enlarged. It didn't and I ended up having surgery during which they removed my gall bladder and cut the drain hole larger. That worked and I now only have pain if I cause it with fatty food, alcohol or stress, it usually takes a day with all 3.

Comment from: Ms. Lieb, 65-74 Female (Patient) Published: February 02

After a bout of severe pain due to pancreatitis it was discovered that I had pancreatic divisum. Several months after the pancreatic episode, part of the pancreas necropsied and formed a large pancreatic pseudo cyst. I had several ERCP (endoscopic retrograde cholangio-pancreatography) procedures to remove diseased tissue and a feeding tube to allow my pancreas to heal. I was seriously ill for months but now I am happy to say I have no further problems. I am now a diabetic because my pancreas does not produce enough insulin but am thankful to be healthy otherwise.

Comment from: R J Keegan, 45-54 Female (Caregiver) Published: March 09

My daughter was diagnosed with pancreas divisum about 3 years ago. She since had 3 stents, which have not worked. She currently suffers constantly with so much pain that she is on oxycodone 24/7. The doctors now say she may have to live with it. She currently has to go in 3 times a week for fluids and she will be seeing a pain control person. She had a feeding tube through the nose and it caused too many problems. Now they want to put a permanent feeding tube in but this won't change the amount of pain she is in. It has also been suggested to remove the pancreas but knowing the life expectancy she has decided this is not a solution.

Comment from: TervLover, 55-64 Female (Patient) Published: December 12

I've been through agony for 12 years. These congenital anomalies come in threes or fours; pancreas divisum, choledochal cyst, esophagus disorder (atresia), renal failure of some kind, spine/vertebrae and cardiac problems. My first two were pancreas divisum and choledochal cyst. Next were esophagus disorder (atresia) and renal failure (of some type), bladder was never right. I never slept as a baby! I have had apnea all my life (not just sleep)!

Comment from: susa, 55-64 Male (Caregiver) Published: July 11

My husband has pancreatic divisum, he has been in for 3 stents, 1st one was a 5 cm, 2nd was a 7 cm; they both fell out causing more pain with than without the stents, as the body works hard and rejects them. The 3rd stent has kept him in hospital and it looks like it will have to be removed as it has been made wider instead of longer and has caused nothing but severe pain. He doesn't want another stent and we want to look at natural ways to control the attacks. One is juicing raw food diet or semi raw. It would be great to find some support groups and get ideas.

Comment from: dtrip28, 55-64 Female (Patient) Published: May 16

Wow, I feel like I am reading about myself in these comments. First attack was in October 2015. I had severe pain in my left side and diagnosed with pancreatitis. Hospital stay one week. My amylase and lipase were off the charts. Bowel rest and liquids helped. Back again in March 2017, I had horrific pain in my right side this time. Out came the gallbladder. This is when I found out it was pancreas divisum. Also, elevated liver levels. All became good and I got home. Three weeks later I had excruciating pain between my shoulder blades that came around the front right side. I was back in the emergency room (ER), horrible experience. Anyway, I was sent home. I was back again in the ER a week later, same pain only worse. All levels were high again. And, after last week's blood work they are still a little high. I am off to see the pancreatic specialist. Hope this works.

Comment from: Bilquis, 7-12 Female (Caregiver) Published: January 21

My daughter is suffering from pancreas divisum as per reports and doctor. And a year ago due to sudden stomach ache and vomiting we came to know that she has appendicitis and underwent operation as it was critical. After 3 months of the surgery the pain again started and then the doctor suggested the following tests, lipid profile, calcium, serum, antinuclear antibody, (ANA) and IgG4 subclasses, serum and MRCP. Today doctor prescribed supplements for a month and then a laparoscopy surgery.

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