Patient Comments: Orthostatic Hypotension - Effective Diagnosis

Question:

How was your orthostatic hypotension diagnosed? Submit Your Comment

Comment from: JCPENNEY, 75 or over Female (Patient) Published: June 16

My mornings became unbearable. Local primary care physician determined I had vertigo. My husband made appointment at the hospital and I was diagnosed with orthostatic hypotension (OH) quickly after series of tests. Table tilt test confirmed it but we went on with sweat test and blood volume tests to determine cause. I have been on beta blocker 30 years and have tachycardia but have cut amount in 1/2 but little effect on OH. Increased daily wearing of thigh high support hose, drinking 50 oz. water and some salt, and sleeping elevated help but symptoms are getting worse going on 2 1/2 years.

Comment from: Liz, Published: June 05

I had my colonoscopy 2 days ago and must say it was absolutely horrendous. Both the preparation and the procedure. I had to take 10 senna tablets at 4 o'clock the day before and then a sachet of Citramag at 5 o'clock. From about 8 o'clock until the next morning I was off and on the toilet. I had no sleep all night and barely made it to the toilet a couple of times. The day of my procedure I had to take another sachet of Citramag at 7 o'clock in the morning. I was still on and off the toilet up to the time I had to leave for the hospital (my appointment was 3.15 in the afternoon) and in the end I was also losing blood with the diarrhea. I also experienced bad stomach cramps. I was worried about even travelling to the hospital in case I needed the toilet again as I seemed to have lost all control over my bowel movements. I arrived at the hospital on time and was told I would be sedated and given pain relief for the procedure. Well, neither of them worked, I was wide awake and felt everything. The pain was excruciating and the doctor had to abandon the procedure in the end because I couldn't stand the pain any longer. Because the procedure wasn't completed I will now have to go back for a CT scan or will have to be anesthetized for them to do it again. I was so wide awake after sedation that I could have taken myself home. I have been unable to go to work for 2 days as I have been still suffering from diarrhea and terrible stomach cramps. Traumatizing experience! Wish I could have been one of those people who felt nothing and woke up after it was all over.

Comment from: acook, 19-24 Female (Patient) Published: June 14

I had stage 2 breast cancer, it was 3 tumors in right breast. I had surgery and lumpectomy, it wasn't bad. I had them removed and 4 lymph nodes taken, and they came back benign. The doctor got all the cancer. I will be starting radiation in a week and then the pill. Keep a strong attitude and you will be fine. Good luck, hope this helps someone.

Comment from: Marian, 55-64 Female (Patient) Published: July 19

I was having near syncope every day. The doctor kept on testing for several underlying diseases before diagnosing me with orthostatic hypotension.

Comment from: zaniyah, 13-18 Female (Caregiver) Published: July 30

I found out that I had orthostatic hypotension when I was 12 years old. Every time I stood up I would just feel really dizzy and my vision will go blurry. It really got worst when I was on my period (I know, gross). I was feeling really dizzy and it lasted for hours and I began to be really shaky and everything was just so blurry and I was in so much pain. I'm 13 now and I still have it.

Comment from: 13-18 Female (Patient) Published: May 02

I was diagnosed with orthostatic hypotension at the age of 15. At school, I suddenly just passed out in class. A few moments later, I came to and said I was fine. A few minutes later, I passed out again. As this continued, a classmate informed the teachers of this and they called the paramedics. They took my blood pressure and found that it was significantly low. I got to the hospital where -- after a few hours -- I felt fine. They told me to get dressed and once again, I fainted and fell. My mother who was there with me at the time caught me and yelled for a nurse. I was unconscious for a few hours. When I came to again, my mom and the doctor kept asking me questions to make sure I had not suffered any head damage of any kind. My mother told me that she watched the blood pressure monitor drop so low that at one point my blood pressure was about 50/30 or somewhere around there. This was, of course, quite shocking, as this is not normal for a healthy 15 year old.

Comment from: 25-34 Female (Patient) Published: October 26

I work in doctor’s surgery and hadn't been well for a while. I went all funny and had to go and lay in one of the nurses rooms. One of the GP's came in and started asking me questions, he took my blood pressure. I layed down, sat up and stood up and it dropped by 20 on one side and 10 on the other obviously signaling Orthostatic Hypotension. Since this episode I have had many more since and I am currently under investigation. Good thing I work where I do.

Comment from: sadie, 35-44 Female (Patient) Published: July 09

i was in my early 20's when diagnosed. i started having heart attack symptoms when i was rushed to emergency room. cardiologist said my heart shows signs of weakening from it being undiagnosed for years. they also said for some reason. my body dosent retain sodium like it should. so i can drink and drink. but if i dont keep my sodium intake up. pressure drops. heat and summer make it much worse. so i cant go outside and enjoy the weather. i have to stay inside with air conditioning.

SLIDESHOW

Low Blood Pressure (Hypotension): Symptoms, Signs, Causes See Slideshow
Comment from: kmfdmangel, 25-34 Female (Patient) Published: March 18

I was diagnosed with orthostatic hypotension this year after 15 years of the initial episode. Every doctor assumed it was a sign of diabetes. Because of this condition, I have been tested 2-3 times a year. It took a neurologist to believe it was something else. I failed a tilt table test, not even getting to a 10-minute mark. I am now seeing a cardiologist who is very familiar with the diagnosis and is working with me to keep both this syndrome and my hypotension in check. I’ve also been diagnosed with fibromyalgia and am looking into a possible prognosis of chronic fatigue syndrome, which orthostatic intolerance seems to follow quite closely.

Comment from: (Patient) Published: August 03

My son (then 11) had been sick with a virus. He couldn't seem to get feeling better. He would stand up and then lay back down. After several visits to our pediatrician and a few months had passed, I happened to mention that my son was huffing and puffing while walking through a store. He sent us to a cardiologist who diagnosed it in minutes. He stated all the symptoms and I said "Oh my gosh, I have had that since the 4th grade!” My son drank a gallon of water a day and within a few days, he was feeling fine again. I told my doctor about it and he ordered a tilt table test. Yep, I have it too. I really feel it when I have been sick or after a surgery where I lay down a lot. I get to a point that I don't know if I am sick or it’s the orthostatic intolerance, but I just feel sick. I now make sure to drink more fluids and I get to eat plenty of salt. Both my son and I have a lower energy level, that most people just don't understand, but I am thrilled that our solution is water and salt.

Comment from: 19-24 Female (Patient) Published: October 27

I was diagnosed at 17 after having mono and west Nile virus. Doctors and nurses had tested me multiple times by measuring my blood pressure and heart rate lying down, sitting, and standing but were always inconsistent with how long I would lie down or the circumstances. Once I went to the Mayo clinic they ordered a tilt table test as well as a stress test and found severe orthostatic tachycardia as well as several other autonomic dysfunctions (POTS).

Comment from: Mike, 55-64 Male (Patient) Published: August 23

I had my first episode when I was 18 years old. All my life I would get dizzy when I stood up too fast. Now at age 59 it seems to be getting worse. I wake up with tingling finger tips. At age about 45 I had a tilt table test that confirmed Orthostatic hypotension. If was after I got up too fast and didn't pay attention to the dizziness and passed out. I just had a MRI with added meds to work my heart and passed with ease. My doctor seems to not be too concerned.

Comment from: mazzy, 35-44 Female (Patient) Published: December 07

A tilt table test. After two years of investigations, fainting and dizzy spells. I was more relieved to find out it was not my imagination.

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