Patient Comments: Occiptal Neuralgia Headache - Experience

Question:

Please share your experience with this type of headache. Submit Your Comment

Comment from: mom of son in pain, 13-18 Male (Caregiver) Published: April 24

My son experienced 24/7 severe headaches including bouts with temporary partial or complete blindness when headaches were the most intense. Doctors could not explain his symptoms and accused him of having psychological problems. School would not provide him with appropriate accommodations because of this. Condition got worse over time. After seeing 8 doctors who misdiagnosed him, we found a doctor who properly diagnosed him with occipital neuralgia. Nerve ablation cured his headaches.

Comment from: Winifred, 75 or over Female (Caregiver) Published: January 16

My wife has suffered for some months with headaches, and in September 2018 she had a steroid cum local anesthetic which made the pain worse. She has tried most pharmaceutical products but is left with paracetamol and Oramorph. She is 86 and cannot take much more, waiting for a neurological appointment.

Comment from: Gareth, 45-54 Male (Patient) Published: September 13

Unbelievable pain I had with my headache, and believe me like no other! I was unable to even rest my head on the pillow; I also had a raised lump where the pain was and it took at least a couple of weeks to go. I had sharp burning and stabbing pain as if a red hot needle was in there at the back of the head. Codeine was needed to keep the pain at bay.

Comment from: Angie, 25-34 Female (Patient) Published: July 27

I was hit in the head last year. After that I dealt with sever neck spasms for over a year. Being a mover I have pulled many muscles in my time and have gotten used to spasms and can usually ignore them. Nine months in I began having electricity like shocks to the back of my skull radiating up to the top of my scalp. It is now constant and I have shocks all over my body not just in my head. Doctors found I have a C5 bulging disc with mild arthritis, and think it may be ocular migraines.

Comment from: PamDen, 65-74 Female (Patient) Published: July 13

I had a few eye tests and drops and a cataract operation. The next day I had a stabbing pain in my head at the side near to the top, then it moved to the top of my head, now it has moved back to the side, and again top side. The bright lights they shone into my eyes for the test were very strong and the optician said I must try and keep my eyes open to complete the test but I found it very uncomfortable. Perhaps this has caused my sharp head pains. Now it is day 2 and it is still there, and paracetamol has no effect.

Comment from: Heather, 55-64 Female (Patient) Published: May 26

I've had migraine type headaches for years and have had Botox for the past few years and steroid injections into the occipital nerve several times that's proved helpful. Right now I'm trialing an occipital nerve stimulator since Monday, it is now Thursday and am so impressed with it I don't want it to finish despite having tape and a battery taped to me. If you have this kind of headaches and insurance give it a go you might be delighted with it.

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