Patient Comments: Occiptal Neuralgia Headache - Symptoms


What kind of symptoms did you experience with occipital neuralgia? Submit Your Comment

Comment from: Pain38yrs, 45-54 Female (Patient) Published: June 12

At 18 years of age I was hit on the back of my head. Sharp waves of pain started on 1 side, with eye pain. At age 32 I started having severe neck pain, shoulder pain, and headaches. By 34 both sides of my head had pressure, and severe neck and shoulder pain on both sides. I had steroid injections, nerve ablation, and seen 2 neurologists. At age 49 I have constant headaches, and neck and shoulder pain. The 3rd neurologist diagnosed me with occipital neuralgia. I have been on gabapentin, Klonopin, antidepressants, multiple relaxers, and now baclofen and steroid shots. The neurologist has gotten approval for Botox next appointment.

Comment from: Mom of son in pain, 13-18 Male (Caregiver) Published: April 24

My son had occipital neuralgia experienced severe 24/7 debilitating headaches, noise sensitivity, light sensitivity, pain behind his eyes and even worse pain if the spot where he hit his head was touched. On a good day he would rate his headaches at a 7 or 8. On bad days the worst pain ever. During the worst headaches he would experience partial blindness and his eye lid would droop, his speech was slurred and he would experience weakness in his arm and leg on the opposite side of his body.

Comment from: K Deeds, 55-64 (Patient) Published: April 10

Two years ago I was diagnosed with oromandibular dyskinesia. I didn't have insurance, so all I could was get CAPS insurance. They prescribed me Valium, pain pills, and depression pills. November I had a whiplash. My jaw locks down. And now April the 5th my head was hurting behind my left ear. Turning my head to left and lowering my head down to the left it hurts. It even hurts burping with the occipital neuralgia. I went to the hospital and got a shot of muscle relaxer and inflammation shot.

Comment from: Irina, 35-44 Female (Patient) Published: April 04

I am 36, I am having occipital neuralgia in the back of my head. It is an annoying pain, when I gently touch my head it hurts, and I can't put a scarf on. Last time, when I was 27, I did a 2 weeks’ medication treatment and I forgot about it for nearly 9 years. It's come back, and I am having the same treatment plus holidays for two weeks. Hope the pain will go for another 9 years.

Comment from: Mrs TLB, 45-54 Female (Patient) Published: December 20

I have suffered for over a year now, only just receiving an actual diagnosis of occipital neuralgia. I had to leave my full time job due to constant upper neck, back of the head and right eye pain. It became/has become quite debilitating with triggers being: driving, walking or standing for too long, sitting for too long, coughing and sneezing (very painful), etc. I have been put on a nerve pain medication but dislike the side effects and am hoping to receive some nerve block injections.

Comment from: Muktamao, 55-64 Male (Patient) Published: August 30

I experience intermittent pain on the left side of my neck on the back. Sleeping with a cervical collar and acupressure mat pressing against my neck has reduced my pain at night by 90 percent though I continue to take gabapentin every day for my occipital neuralgia.

Comment from: Dave, 45-54 Male (Patient) Published: August 28

My occipital neuralgia experience was over 5 years, looking for answers. I had severe headaches mostly at night in the front top head area above the eye. So no sleep, and no drugs helped, I was a mess. Any looking up, even laughing became hard because as you laugh you raise your head slightly, causing headache. I then finally discovered myself about the greater occipital nerve. Once I got to a doctor specializing in this area I started to begin the process of relieving the pain.

Comment from: cantermerri, 65-74 Female (Patient) Published: July 27

I was awakened in the middle of the night with electric shock type pain in the back of my head. Since then, every morning I suffer a severe headache for several hours. The pain usually gradually dissipates through the day, but I still feel tension in the back of my head and neck. My symptoms are exactly as described here for occipital neuralgia. My doctor tried to convince me that it is just maybe arthritis in my neck, and emotionally induced and it had nothing to do with a pinched nerve. He tried to convince me that a headache can't be caused by a pinched nerve in the neck. I disagree. However, the treatment he prescribed was same as recommended on this site. Up to this happening, I have often had the experience of my neck popping suddenly inducing great momentary pain.

Comment from: Lucyo Galus, 19-24 Male (Patient) Published: October 11

I've felt occipital neuralgia when I cough for extended periods of time ranging from 10 days upwards to 1 month.


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