Patient Comments: Gluten Intolerance - Experience

Question:

Please describe your experience with gluten intolerance. Submit Your Comment

Comment from: GFgirl, 35-44 Female (Patient) Published: January 14

After suffering with spastic colon since my early 20s, I've had digestive problems. It wasn't until I turned 40ish that those problems became nearly unbearable. Normal bowel movements for me were 1 every week or two. I have headaches 3 to 4 times a week, and knee and joint pain. Gastroenterologist biopsied for celiac, which came back negative as well as for Crohn's. He said I could try going gluten-free if I wanted. I did, and I mean, I don't allow any gluten or contamination. And within 2 days, I started to have bowel movements again. It has now been 3 months. I have no headaches, bowel movements every day and they're normal. No more knee or joint pain. Call it what you want, but I'll never go back to eating gluten again.

Comment from: Baglady, 65-74 Female (Patient) Published: December 31

I recently had a cardiac ablation for atrial fibrillation. Prior to the surgery I was on warfarin to thin the blood. Prior to surgery and after, we have had an awful time getting my blood thinner as I do not respond to warfarin. I have been tested for gluten sensitivity through blood tests years ago as well as a lactose intolerance. I am not religious in following either diet. I am beginning to suspect the gluten or lactose is inhibiting the effectiveness of the warfarin.

Comment from: Mary-Anne D., 45-54 Female (Patient) Published: July 15

I was born with celiac disease, but it went dormant when I was 11 or so. When I turned 45, I was in a high stress job that I was fired from. At that time, up to the firing and afterwards, I became increasingly dizzy at times, could not multi-task at work and had lost almost 20 lb. But I was also working out heavily. I also noticed my bones ached at the knees, lower legs and elbow joints. I was re-diagnosed with celiac disease at around 45 and 1/2, and once I was, I stopped eating gluten entirely, and gained the weight back to normal weight of 145 lb. within 3 months.

Comment from: Lindsay, 75 or over Male (Patient) Published: October 16

When I eat gluten it produces mucus in my lungs, I have emphysema or COPD. This is definitive and not imagining.

Comment from: Beatriz, 45-54 Female (Patient) Published: October 06

I have had 5 years looking for a response to all my pains and sufferings. I had several episodes of thyroiditis and I have hypothyroidism, but I also thought I was losing my mind and going short for dementia. I have severe anemia, ferritin on 5, which is nothing. My mom eats gluten free, and she suggested to try just to see. I have been doing for three months now, and there is a lot of difference in my life. For a fact I can say I recovered my brain, I can remember and don't have the pause I had trying to think of a term.

Comment from: James, 35-44 Male (Patient) Published: March 16

I think it odd that the study referenced in this article which found that low gluten diets have no impact beyond a placebo effect was sponsored by one of Australia's largest bread manufacturers.

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