Patient Comments: Gluten Intolerance - Symptoms


What symptoms do you experience with gluten intolerance? Submit Your Comment

Comment from: GFgirlie, 19-24 Female (Patient) Published: September 27

Before I started a gluten-free diet, I weighed about 100 lb., had painful gas, bloating, nausea, diarrhea, 'peculiar' headaches everyday (which impacted my cognitive function) that were untreatable by medications (I tried lots). I also had rashes on my forearms and thighs. I was negative for celiac. After going gluten-free, my symptoms resolved, plus I finally had a healthy weight. If I accidentally eat gluten, they return. I can't say what exactly causes my issues, but going gluten-free makes a huge impact.

Comment from: ann, 45-54 Female (Patient) Published: October 06

I find it very insulting firstly to say people’s illnesses are a placebo effect! I had no problems until after my third child in my late 20s. I had diarrhea and vomiting affecting my bowels and stomach, unrelated to pregnancy at 6 months term and these got worse over the years. I cannot eat wheat or oat cereals and a list of other foods such as corn, seeds, rice, barley or peppers. There is no mind over matter when I eat one of these foods and I then spend 3 to 5 hours stuck in a toilet with diarrhea, nobody wants to be like this! I also have Helicobacter pylori and this is likely to have caused this.

Comment from: kenny, 55-64 Male (Patient) Published: April 30

Gluten ingestion gives me a real sore back, panic attacks, lack of concentration, and blood sugar crashes. My sciatic nerves kill me. My feet kill me too. My brother died 2 weeks ago because of this. He loved his pizza and beer. He had morphine to kill the pain, and it got him. He was only 56. Our ancestral heritage is from northern Finland.

Comment from: Jennifer, 55-64 Female (Patient) Published: March 03

With gluten intolerance I have constipation, bloating, gas, and weakness. My nerves are on edge and I am irritable.

Comment from: Lmaher22, 55-64 Male (Patient) Published: March 02

I have had a gluten problem my whole life but only started treating it 25 years ago. Symptoms are constipation, hard stool, rashes particularly on tail bone and behind knees, bloating, gas, excessive ear wax, fatigue, nausea, stomach noise, skin and eye itching. Probably a few more that I'm not mentioning now. Gluten also seems to set off a whole host of yeast or fungal issues. Glad I could help.

Comment from: NCGS Teacher, 25-34 Female (Patient) Published: July 17

I get extremely tired and gassy with gluten intolerance.

Comment from: angelgal, 55-64 Female (Patient) Published: October 31

Since my late 20s weight gain became a big problem. My spastic colon or irritable bowel syndrome (IBS) started about that time as well. I was a young healthy woman until this happened. Since then weight became more uncontrollable no matter what I did. Then 2 years ago I started getting hives on my hands, arms and other parts of my body. I went to a dermatologist and she couldn't figure it out any more than my own primary doctor. It became where I used the pitch part of forks scratching and not feeling well and weight really hitting me fast. I was referred to my now allergist and he tested saying I don't have celiac, via blood testing, but am very likely gluten sensitive. I have suffered stomach aches, migraine, allergies, etc. Since he removed gluten and then dairy from my diet I've lost almost 100 pounds (from 272 to 210) from mid-July to present and migraines are rare rather than daily now. Dairy seemed to be playing a part in my daily nasal allergies and some of the migraines. I have less IBS problems now and preparing for an updated full colonoscopy for reference and to verify there are no problems.

Comment from: Mary-Anne D., 45-54 Female (Patient) Published: July 15

I have celiac disease when I eat gluten. I have no symptoms, but if I have eaten a relatively small amount of gluten, unknowingly, I usually will have black bowel movements the next day or two. Otherwise, no symptoms.

Comment from: TetonCowgirl, 55-64 Female (Patient) Published: December 26

No placebo effect here. With excessive wheat, I have excessive gas because of gluten intolerance.

Comment from: kimb, 45-54 Female (Patient) Published: November 05

My problems with gluten intolerance have been more with the upper gastrointestinal tract. I kept getting indigestion and gall bladder (removed 10 years ago) problems. I was on 2 different prescribed stomach medicines and nothing was helping. The doctors had tested and found nothing. I started gluten free at the suggestion of my doctor while the test for celiac was being processed. The difference was immediate. Within 3 days I was feeling much better. I am now off all stomach medicine except for a couple of antacids a day. I do believe that I might need to consider FODMAPS to stop the antacids, but I am still much better than I was. I am a little tired of doctors telling me that it is just a placebo effect when they have nothing else to offer. I am open to suggestions.


Gluten-Free Diet: Popular Gluten-Free Foods in Pictures See Slideshow
Comment from: Jessie, 55-64 Female (Patient) Published: September 15

I am hypothyroid and told to go on a gluten free diet as medication is more effective. I do not have bloating or diarrhea which I thought was normal and just lived with it. I feel so much better. When people around me get gastroenteritis and start vomiting I don't get affected. It is really nice not to have constant diarrhea. I have not had the coeliac test. Please note I look after my grandkids who sometimes get gastroenteritis, primary school aged children; their parents get sick, I don't. I believe that has something to do with the wheat/oat content in your system.


Bowel regularity means a bowel movement every day. See Answer