Patient Comments: Multiple Myeloma - Diagnosis


Describe the tests and exams that led to a diagnosis of multiple myeloma. Submit Your Comment

Comment from: Irene, 45-54 Female (Patient) Published: November 05

Having a liver biopsy is horrible! It is pure torture! No sedative or pain medicines were given from when the first needle went in until the biopsy needle came out! Don't have it done without demanding medication proper to insertion of the needles with the so called numbing medicine that does not work for the initial biopsy.

Comment from: Lou G, 75 or over Male (Patient) Published: July 17

I was diagnosed with multiple myeloma (MM) in March 2011. A bone marrow biopsy confirmed the blood test. Since, I've had blood tests every 3 or 4 months, and biopsies in 2012 and 2013. But it is smoldering so my oncologist/hematologist said all we’ll do is keep monitoring it. As long as the protein marker he watches is stable he won't do a biopsy. If it changes enough to concern him he will do a biopsy. Then depending on the situation will decide if I need to start some type of treatment. Compared to some of the comments I've read, I'm fortunate as I'm 79 years old.

Comment from: bjslifeline, 55-64 Female (Patient) Published: October 05

I was diagnosed with multiple myeloma after an incidental finding of a tumor (plasmacytoma) in my oropharynx on 10/13. I had that removed and underwent 5.5 weeks of radiation. I was supposed to be cancer free for 10 years, however when my lab tests were done in 7/14, I was told I now had multiple myeloma. I then had 6 months of Revlimid and dexamethasone. Since then my numbers have been good. I have never had any symptoms and hope that I can get many more years before it rears its ugly head again. I work full time and hope to retire in 6 plus years so that I can travel.

Comment from: BO, 45-54 Male (Caregiver) Published: June 04

My husband had been working on our daughter"s truck, changing and rotating tires. He had a difficult time working some of the bolts loose. The next week, he began having lower back pain that became increasingly worse, to the point he was having difficulty walking. After a trip to urgent care where they did an x-ray and suggested that he see a chiropractor, he followed up with an orthopedist instead. After a month of unsuccessful treatment with a dose pack, unsuccessful physical therapy and increasing pain, they prepared to do an epidural steroid injection (ESI) with and MRI. That"s when they found the tumor on his T10 that was "highly suggestive" for multiple myeloma. He was hospitalized the next day and had the CT, bone scan, blood work and bone marrow biopsy for the definitive diagnosis.

Comment from: Hansd, 75 or over Male (Patient) Published: February 06

My doctor suspects multiple myeloma from blood tests done recently. For 4 days I had been tired when walking and then I fainted in the bathroom, was taken to emergency and received 3 bags of blood. This brought the hemoglobin level up from 55 to 91. Further tests are now being done (blood, urine and skeletal X-ray to determine what the further treatment should be. I am 90 years old and consider myself healthy (never had any major disease). For 30 years I have worked out at a fitness center and walk 2 times for 20 minutes each day. I am interested in knowing what further to expect.

Comment from: 27 years and countin, 55-64 Female (Caregiver) Published: August 15

My wife was finally diagnosed with multiple myeloma Christmas of 1989 after 12 to 18 months of bone pain and fatigue. It was actually a blessing as now we found what had been causing the problems and could tackle the cancer. Multiple lesions and multiple fractures and then more over the years. Numerous hospital stays of course. She has had bone marrow transplant and stem cell transplant (2) followed and she maintains a super positive attitude! She is on dexamethasone and thalidomide. She's under great care. Keep the faith folks!


What is multiple myeloma? See Answer