Patient Comments: Meniere's Disease - Symptoms

Question:

Please describe your symptoms of Meniere's Disease. Submit Your Comment

Comment from: Kips mom, 55-64 Female (Patient) Published: November 05

I have chronic dizziness from Meniere's Disease, disabling at times. I have whooshing in the head and ear, muffled sensation in one ear, and generally feeling unwell.

Comment from: Tasnin, 35-44 Male (Patient) Published: May 07

I am 37 years old. I have a problem of vertigo with my ears. It starts suddenly with right ear fullness and constant ringing in right ear. I have sweating during the vertigo attack. My ENT doctor told me that I have Meniere’s disease.

Comment from: Jules, 55-64 Female (Patient) Published: November 14

I’ve had (spinning) Meniere’s disease beginning in my 50s and had an experimental treatment in Boston where they inject gentamicin in the affected ear. I had 3 injections that were not really painful and very quickly administered. That was about 20 years ago and aside from a slight bout every few years and muscle spasm (neck), I have not had a debilitating episode since the treatments. I have a slight case of muscle spasms when I overdo diet with caffeine or salt. I would recommend it to anyone!

Comment from: janijack, 55-64 (Patient) Published: August 01

I was just diagnosed with Meniere's disease. I believe that I have had it for many years but it was minor enough to ignore. I didn't have any other systems. Recently the dizzy spells have gotten very extreme to the point where when I have an attack it lasts weeks; some days worse than others. Now I am dizzy every day. I have a low salt diet already, I don't eat any cocoa or sweets, I don't smoke, and I don't consume caffeine. I am at trying to figure out what else I can do to control it.

Comment from: Moore peters , 35-44 Male (Patient) Published: February 21

I have had Meniere’s disease for many years. Like everyone else I have roaring in my ears, bad vertigo and nausea. The doctor prescribed me Xanax 2 mg which calms the inner ear down and meclizine 5 mg for the nausea. I also get the prednisone shots in the ear. However, I also have had 3 back surgeries along with a number of other problems. I go to a pain clinic.

Comment from: Vijay , 55-64 Male (Patient) Published: September 06

I had sudden dizziness, vomiting, loose motion with sweat, and after half an hour’s rest I am feeling ok. Wonder if this is Meniere’s disease.

Comment from: Lori, 45-54 Female (Patient) Published: March 20

I was 14 when Meniere's disease showed up. My teachers always asked if I was on drugs; not the case. My eyes, ears, nose and throat doctor told me of it before it had a name, and said it's something I will have to live with the rest of my life. I'm 52 now. Everything triggers it, just breathing! I'm scared to go on disability because I need my license, I'm raising grandchildren. I cannot be without vehicle, I've never had an attack behind the wheel; I get a warning trigger which gives me time to stop or lie down.

Comment from: okieboy, 45-54 Male (Patient) Published: February 22

I have had Meniere’s disease since I was 22; for 32 years. I have thrown up so long I have vomited stomach acid. The worst part is being helpless. I have had a stent in my right ear which helped for about ten years. Last year they told me I'm getting it in my left ear. I have lost most of my hearing, I have constant ringing, knocking, whistling, and roaring. I wear hearing aids but when it is bad they don't do much good. You have to be strong and not let it win. I hate it. I'm home from work now because of it; luckily my boss understands. Keep fighting.

Comment from: Pepper, 35-44 Female (Patient) Published: May 26

I have been diagnosed with Meniere's disease. At first I was very positive about the whole thing, but now my fear of food, my fear of salts, the nausea, and sleepiness are really starting to get to me. I eat something I feel nauseous. I know that I have to kick the caffeine that is the last thing to go on an ever growing list of things I enjoy and enjoy doing. I don't think people fully understand what all of it feels like unless they are going through it. If anyone has any additional tips I would love to have some. I recently started on Serc, and started to take B vitamins as well. It seems to be working but the sick feeling in my stomach is always there.

Comment from: John, 55-64 Male (Patient) Published: March 21

My first attack of Meniere's disease was over 20 years ago. I had profuse sweating and dizziness, spinning, vomiting, loss of hearing and fullness. I was taken to an emergency clinic since the people with me thought it was a heart attack. I was referred to an ENT who diagnosed Meniere's syndrome in my left ear. Prior to this first attack I remember numerous occasions of hearing water running, which of course was not real. I had episodic tinnitus for years before that which would resolve themselves. After about a year it resolved with some hearing loss and occasional ear fullness. I really did well for about 10 years but it returned with a vengeance. I felt I had been hit on the left side of my head with a ball bat; ear roaring and all the other symptoms. Now it is back and never seems to go away; a constant ache for years now and now it is developing in the right ear. It is very hard to cope. I am taking diuretic, exercise and trying to enjoy life although it seems impossible most of the time. What a horrible disease.

QUESTION

What is hearing loss? See Answer
Comment from: Elaine, 45-54 Male (Caregiver) Published: January 28

My husband first got Meniere’s disease 25 years ago. He had dizziness, sickness, pressure, and hearing loss. It lasted 2 years and went away. It came back in 2011 with a vengeance; room spinning 24/7, constantly feeling sick, tinnitus in right ear, and loss of hearing. I have now been shown how to inject him with anti-sickness medication to help. He is now retired.

Comment from: Tater, 45-54 Female (Patient) Published: October 05

I have just been diagnosed with Meniere’s disease yesterday after only having symptoms for the past 2 weeks. It started quite suddenly at work. I had a fullness in my left ear and loud roaring, never any pain, and this has never gone away since. I have significant hearing loss as well. I have had 2 attacks of dizziness where I had to sit down and one day where I was nauseated but not spinning. I had a series of tests, and MRI to rule out tumor on the brain. After hearing that I did not have a tumor but have Meniere’s disease, I count myself fortunate if this is my lot in life. I know it will be a struggle but I am in for the long haul. Good luck, my Meniere’s friends!

Comment from: jean, 55-64 Female (Patient) Published: June 24

My symptom of Meniere's disease is that in my right ear, there is a sensation of a distorted hearing when in a noisy setting, small room with everyone taking, loud taking, hair drier, blender, etc. This sensation is in one ear. Now I am beginning to experience dizziness and occasional vertigo, even when turning in bed.

Comment from: Terri, 55-64 Female (Patient) Published: May 21

I have had Meniere’s disease for 5 years now. My symptoms include vertigo, nausea, fatigue, brain fog, hearing loss, and tinnitus. After years of going to an ENT, she referred me to another ENT who specializes in dizziness. He gave me some options, all of which included destroying my balance nerve to alleviate the vertigo. I didn't want to go this route. I got on line and read everything I could on the disease. I found a vitamin regimen that has kept me symptom free (except for the hearing loss and the tinnitus) for four months now.

Comment from: Unhappy, 55-64 Female (Patient) Published: April 06

My Meniere’s disease first started 31 years ago; left ear ringing, fullness, and vertigo. It lasted about 6 months and then after a vertigo attack and sleep, it was gone. Ten years later it came back while I was pregnant; only ear ringing and fullness. No vertigo until the night I had my son. I couldn't even lift my head to nurse him. Needless to say, it's 21 years later and although the vertigo is gone, I now have it in both ears. It sounds like a million crickets in my head. I've lost a lot of hearing in my left ear. What hearing I do have in that ear, is distorted.

Comment from: Sokun, 45-54 Female (Patient) Published: February 26

I have had this dizziness all my life, I can't do certain things like normal kids would do. But my parents never knew what was wrong with me. I recently was very sick for about two weeks and vomiting. I went to see a specialist and he diagnosed that I have this Meniere's disease.

Comment from: ahh, 35-44 Male (Patient) Published: January 30

I was diagnosed about 8 years ago with Meniere's disease. I have seen 6 different doctors, 3 specialists, countless tests, and Xanax, Klonopin, amitriptyline, to name a few drugs made it worse. I have been on so many diets I can’t count. I cut out sugar, caffeine, alcohol, pastas, bread, and sodium as much as possible and still have attacks. Migraines to where I black out or start seeing dots all over the place, light hurts so I need to be in an extremely dark room, my vertigo is so bad I would be bed ridden for 2 to 3 days, I wouldn’t sleep due to the tinnitus to where I had to hum myself to sleep. I wasn’t allowed to drive, by the age of 34. I was on special duty at work. I run into walls, trip over things, etc.

Comment from: kamal, 35-44 Female (Caregiver) Published: July 22

This is the story of successful recovery of a Meniere’s patient. She had episodes of vertigo from 13 to 14 years before, initially 1 to 2 episodes in 2 to 3 years. Frequency of episodes increased in March 2005. Vertigo with vomiting lasted for 20 minutes. With repeated head movement and bending gradually tinnitus appeared. Doctors suggested audiometric and other investigations. This situation remained unchanged for last 9 years. They concluded it as incurable Meniere’s disease. Initially the patient was on Vertin (betahistine) 8 mg to 24 mg 1 to 3 times daily, and Stugeron and Alprax occasionally; besides homeopathy and other treatments, none of which worked. This problem is due to the accumulation of fluid in inner ear. It was observed that during glycerol audiometry the problem was reduced. So to reduce the extra fluid osmotic diuretics were given. This reduced the problem to a great extent but its taste and feeling after the dose was not very agreeable. Therefore its herbal substitute was selected. One of best herbal diuretics is dandelion. It is available as homeopathic medicine. There has been no episode of vertigo since the first dose of diuretic was given.

SLIDESHOW

Ear Infection Symptoms, Causes, and Treatment See Slideshow
Comment from: wilmoth7, 55-64 Female (Patient) Published: April 11

I had some of the symptoms of Meniere’s disease when I was 52 (now 55); hearing loss in left ear, feeling of fullness. I kept trying ways to unclog it but nothing worked. One year I had 4 episodes of dizziness upon awakening in the morning and was nauseous and vomiting. I went back to sleep each time for a couple of hours and woke up just fine. It has been at least 2 years without dizziness. But my left ear progressively got worse with the hearing, the fullness and now it has had tinnitus, a low white type noise, I would call it, and now I get the pulsing sound with it. Sixty percent of hearing is lost in that ear. The other ear has some tinnitus but not very noticeable and the hearing is ok for my age. I was never diagnosed with Meniere"s by the doctor. He just called it hearing loss. One of the doctors who did a test on me said it could be Meniere"s and to cut back on salt. So maybe I have it and maybe I don"t, but it sure sounds similar to what I have been reading. The fact that it is in one ear and I had the vertigo spells and the fullness in the ear, which is the most annoying of all to me.

Comment from: Svbratty, 45-54 Female (Patient) Published: January 30

I have had Meniere’s disease for 3 years now. Several times I have been out for the count, with the vertigo and vomiting. I have hearing loss in my right ear. I also have a constant loud ringing in that same ear. I am on water pills, exercise regular and try to eat a low sodium diet. These things help to reduce or minimize the attacks. I refuse to let this disease win.

Comment from: gumby, 55-64 Male (Patient) Published: January 23

In my early 20s I had dizzy spells and later in life I have had dizzy spells and total loss of equilibrium to the point of vomiting, and more frequently also. I have no hearing loss with the Meniere’s disease, but very exceptional hearing.

Comment from: Jeff, 45-54 Male (Patient) Published: December 16

I'm fighting a bit of a quandary in that the vertigo/nausea is not part of my symptomology, at least not now. Two years ago I was snorkeling and the next day I developed acute vertigo attacks, primarily when getting out of bed or dipping my head and then bringing it back to vertical. After 2 weeks these subsided. I've always had a dysfunctional eustachian tube, and hearing issues that were dealt with by decongestants, nasal steroids (Flonase), and ear canal irrigation. However over the past 2 years, I've had progressive tinnitus at high tones, and as far as a year ago, my hearing was 'okay'. But since this spring, a low tinnitus kicked in, constant 'fullness' in my left ear, and conductive response dropped to zero in my left ear and an overall 20db drop in left ear response. MRI and blood tests were negative. But the ENT doctor at the time was not pursuing Meniere’s because there was no vertigo issue. After 6 months (I've moved), I met with a new ENT and the tests showed another 20db loss. I've started low sodium and diuretics, dropped caffeine, and reduced my alcohol to 3 drinks a week, but after 3 weeks, not much to report.

Comment from: Peter, 25-34 Male (Patient) Published: March 04

My Meniere’s started with vertigo and nausea that went away for a while, but about one to two months later, the tinnitus started again, and for the last four months has not stopped. It's mostly in the left ear but also a bit in the right and more or less at the same pitch, but it fluctuates just slightly. The ENT specialist said I just have to accept it. Coming to terms with it has been tough, but I think it's slowly getting easier to accept. Day-time is manageable, lately I've often forgotten it's there, but night-time can be rough at times. Melatonin usually helps me get to sleep a bit easier. The vertigo is not as severe as it was right at the beginning, but it is still unsettling, especially when out in public. I've found I've started getting some mood swings too, which I think are likely from pent up frustration with the tinnitus. But I'm trying to just enjoy life and take pleasure in some of the simple things that I would have taken for granted before or never appreciated as much. Walks outside, a game of golf, gardening … just the simple company of friends, video games, etc. I think a positive outlook goes a long way in being able to deal with this sometimes debilitating condition. I wish all fellow sufferers the best of luck in dealing with it.

Comment from: Suzy, 45-54 Female (Patient) Published: August 28

I've struggled with Meniere's disease for 15 years. Mine started when I began to take a birth control pill. By the time I realized that was the problem, it had done the damage. For women, avoid anything hormonal such as birth control, topical progesterone, etc. I use an herbal allergy medicine and it helps me a lot when I'm symptomatic. Something about pulling fluid from the middle ear may relieve fluid in the inner ear. I just started menopause, and it has been difficult. I notice over 15 years, the dizziness and nausea do get more manageable. When I first got it, I would lay on the floor for hours with the room swirling, now I almost never have it that bad.

Comment from: Natjoy, 45-54 Female (Patient) Published: July 30

I am reading the symptoms and wonder if I have Meniere’s disease. I have had symptoms for a few years. Sounds like ‘white noise' is always in my ears... louder when it's quiet. My right ear often aches and there is a feeling of pressure and sometimes pain, the worst symptom is when my hearing is altered and all I hear is myself speaking. If you put both fingers in your ear and talk that's what it sounds like. This happens intermittently and probably up to an hour or so but socially it causes huge anxiety as I can't judge how loud I'm talking. I hate this. This is the reason I am now seeing an ENT specialist as I can't cope with this one symptom.

Comment from: kpm, 55-64 Male (Patient) Published: November 18

I have Meniere's disease for 25 years or so. For many years when I initially was diagnosed I followed the low sodium diet and went through every known treatment to treat the debilitating vertigo. Nothing had any real effect. What changed my life and brought the vertigo under control is when my doctor prescribed Dyazide (brand only) and the use of a Meniett device. This device pulses air through the tube in my ear drum and helps flush moisture from the inner ear. I still have minor episodes, tinnitus, and severe hearing loss but I can live, work and ride my bike.

Comment from: young_meniere's, 25-34 Male (Patient) Published: March 04

I am 29 and have been suffering with Meniere's for 14 years. It has been beyond awful. Vertigo, hearing loss, tinnitus, feeling as if I always have the flu, sound sensitivity, the whole bit. There have been points in my life that were very difficult ... at times I considered quitting my job, quitting my family, and giving up on trying to live a productive life. I actually felt that bad! I've tried many things: the Meniette device, profusions, vitamins of all sorts, sound therapy, water pills, etc. Nothing seemed to help a ton. They say there is no cure. But lately, I've found success with my own treatment. I have been riding my bike to work 13 miles each way - I think it helps me use my good ear's balance system and keep it strong. I think that the cardio exercise helps keep my ear and body strong. I also eat as healthy as possible and get additional exercise at the gym. I still do the music therapy when I can (sound therapy international). I also take vitamins when I can - especially Bioflavonoid (for ringing ear) and vinpocetine (helps with dizziness). I haven't been on a water pill for quite some time and no other perscriptions. My theory is that if I make my body as strong as it can be, it will compensate for the Meniere's. Basically, I'm making a positive out of a negative. I have Meniere's, there's no cure for it, so I used it as strong motivation to change my life and live as a healthy productive adult. So far, it has worked. I feel great! I haven't been dizzy for quite some time and when I have had attacks, they've been minor and I can go on. I also have tried to ignore the ringing and dizziness. It's really all in my head...I'm not on a carnival ride or a concert even though it feels like it. Positive thoughts work! If you think about your pain and ear noise all day, it's right there with you. If you try to focus on other activities, it can go to the background. I feel so much better and I'm living life. I'm no doctor, but my advice to anyone is, get healthy, stay positive, treat your body well and fight Meniere's. Don't let it get you down! Fight it. It's just a tiny little enlarged sac in your ear. It won't kill you, don't let it get you down. Best wishes and good luck!

Comment from: peace be with you, 45-54 Female (Patient) Published: March 04

I have had Meniere’s disease for about two years now. My symptoms vary. I call them the good, the not-so-good, and the ugly. My good is when I just have a lot of noise in my ear. The not-so-good is when I am motion-sick but still able to what I need to do around the house. My ugly is spending anywhere from two to six hours on the floor in the bathroom spinning out of control, throwing up, and having sweats and chills. I no longer go anywhere by myself out of fear it will strike when I am out. But I don't let it get me down. I know that God is in control, and it is just something I have to deal with, hopefully with grace. I look at it as, “It could be worse. It could be fatal.” So I pray that God will give you all the peace and comfort you need as you go through this. It is not fun, but it is doable.

Comment from: Frank, 55-64 Male (Patient) Published: March 04

After ringing in the ears, some hearing loss, and a bout with vertigo, I went to see an ENT. He nailed it: Meniere’s syndrome. I cut back sodium intake to less than 1,000 mg a day, take water pills if I feel the need to, drink lots of good fluids, take vitamins, and carry some sedatives with me for a “just in case” scenario. I have only had four bouts with vertigo, but I always have a headache afterward. I have been able to “manage” this disease now with no vertigo (although I have some ringing still and occasional hearing loss) for more than five years.

Comment from: 35-44 Male (Patient) Published: January 16

I have suffered form Meniere’s for about 10 years. It started with fullness in the left ear and then, one morning, a whirling sensation. I was scared and had no idea what it was. I was transported by ambulance to the ER. They thought it was high blood pressure. A few weeks later, I checked with an ENT. He diagnosed it as Meniere’s. I am going in for surgery tomorrow because of the vertigo. I am at my wits end with the vertigo.

Comment from: msmistya, 25-34 Female (Patient) Published: January 16

I was diagnosed with Meniere's about five years ago. I have awful vertigo and ringing in my ears, but no nausea. My doctor prescribed meclizine, which helps. I started taking a multivitamin a few months back and have seen major improvements in the vertigo. I was dizzy daily before, now I still have the "sensation" but not the overwhelming, dropped-to-my-knees attacks like before. I don't know if taking the vitamins helped or if it's my imagination, but I can tell a difference when I don't take them. The vertigo gets worse.

Comment from: Nancy, 45-54 Female (Patient) Published: November 19

I had two Meniere's disease attacks about four years ago. I was extremely sick, could not open my eyes or eat, and was in bed for two days. When my hearing was checked, I already had 30% low-base hearing loss. I tried the water pills, and they just did not work that well. I reduced my sodium intake to around 1,000 mg a day (which is very bland food, but you get used to it). I have not had vertigo or an attack since. When I get a slight queasy feeling or tinnitus (I know I have had too much sodium that day), I will take a half of a motion sickness pill.

Comment from: WhatHelpedMe , 35-44 Female (Patient) Published: October 16

I would highly encourage everyone to insist that their physicians give them a trial of hydrochlorothiazide, which is a diuretic. I had roaring tinnitus, with fullness and pressure (no vertigo) in my right ear for months, and did all the tests, nothing was working to alleviate the roaring and thumping sound. I noticed that when storm fronts approached, there was a pattern of it worsening, and that I heard tones in two different pitches (example: if I called someone on my cellphone, the dial tone would be lower in my affected ear, and higher--normal--in my unaffected ear. These are all symptoms of atypical Meniere's, in other words, no vertigo, but all of the other fullness/pressure, roaring symptoms. After putting up with this for 6 months, I finally insisted on my doctor's trying to treat it as Meniere's, and sure enough, the very day I tried the hydrochlorothiazide water pill, the fullness was much relieved, the pitch difference would be gone for the day, and the roaring would be almost unnoticeable. Please try this and pass the word on to others, in case their doctor's tell them it's just incurable tinnitus. I have to take the pill for the rest of my life, but it is very much worth it. It also prevents further hearing loss. So it's important to have this treatment.

Comment from: Southerngirl, 65-74 Female (Patient) Published: October 05

I was diagnosed with Meniere’s disease 2 years ago.

Comment from: masoudh, 25-34 Male (Caregiver) Published: September 03

I have a heavy vertigo because of Meniere’s disease that I can't walk 2 steps! The world is circling around me!

Comment from: vparadise, 45-54 Female (Patient) Published: May 22

I have had Meniere"s disease since 2012, and then it went away, and came back in 2014 with different symptoms. I drove myself to the doctor, but soon thought that that was a bad idea, when I started entering other lanes.

Comment from: hiddenlove, 35-44 Female (Patient) Published: February 12

For several years I had vomit, nausea and ringing in my ear and never knew what it was until I found out I have Meniere’s disease.

Comment from: gabstardeluxe, 19-24 Female (Patient) Published: August 06

I had vertigo for about a year and two months before my dad died, I ignored my symptoms and it wasn't until about 8 months after he died I found out I was quite unwell. Renal failure runs in my family so I can't take diuretics. I am on stemital and serc for the Meniere's. I have had quite A few falls and I feel like I'm being thrown around on a roller coaster. The tinnitus is mainly in my right ear. I hate not being able to bend down and my house is atrocious. =(

Comment from: mammy donna, 45-54 Female (Patient) Published: March 16

I have had the symptoms for about 10 years but was actually diagnosed with Meniere’s disease about four years ago. I have all of the common symptoms, but in the last year, I have started having the sensation of loosing my stomach (like when you are on a roller coaster, and you go over the top or that big dip at the bottom). It is so realistic that I actually let out a loud moan. I have never read of a symptom like this. I have said many of times that it is a good thing that I am totally incapacitated during these attacks. There are times when I would rather be gone than to go through this feeling.

Comment from: Skye, 35-44 Female (Patient) Published: March 10

I have just been diagnosed with Meniere’s disease, although I have been suffering with symptoms for more than nine years. The first time I had an attack, I was so scared. I was too dizzy to see the numbers on the phone to call my husband. It felt as if I was going to be flung off the Earth! It made me vomit and walk into walls. I've had a few attacks like that since, but they don't seem to be quite as violent anymore, just more frequent. I don't have the ringing or hearing loss, and that is why it's taken the ENTs so long to diagnose it. It is quite debilitating. I feel tired and kind of spaced out at best and then the dizzy spells in between; especially when I look up, lie down, etc.

Comment from: widget, 45-54 Female (Patient) Published: January 16

I have been treated for Meniere's disease for three years now. My vertigo was so bad that on the onset I had to be taken to the hospital by ambulance. I could not get off the floor without assistance. Since then, I have learned to stick with a low-sodium diet and to stay on my diuretic.

Comment from: nener, 55-64 Female (Patient) Published: January 16

I have had Meniere’s disease for at least 20 years. I take triamterene/hcz 37.5/25, one in the morning and one in the evening. I was also told to keep my sodium at 2,000 mg or less and to eliminate caffeine and chocolate from my diet. One doctor suggested I take Lipogen, which is a B complex formula with vitamin C. I believe this helps also, and it is cheap to buy, but you may have to ask your pharmacy to order it for you. You can also take Lipoflavonoid instead of the Lipogen, but it is much more expensive.

Comment from: Geri, 75 or over Female (Patient) Published: November 13

I was diagnosed with Meniere's disease about eight years ago. I had vertigo only once. I take the water pills, and it seems to calm the noise. It is not as loud, and I have gotten used to it being there. I haven't noticed my balance changing. I have lost about 30% of my hearing. That just happened recently, like overnight. My ear specialist gave me prednisone in case there was an infection.

Comment from: Better23, 19-24 Female (Patient) Published: November 13

I've had Meniere’s disease since I was 16. I went through many doctors to find out what it was. He stuck me on a diuretic, and I changed my diet to low-sodium. So far, I have few attacks. Fortunately, I have what my doctor called a "rare" case of it. I have no vomiting or ringing in the ears, but I have the vertigo and the nausea. My best advice is to stick with a low-salt diet and drink plenty of fluids! Oh, and see the ENT doctor!

Comment from: 45-54 Female Published: November 13

I found that water pills helped to lesson the severity of Meniere's disease but didn't take it away. I found that when I started to drink about three glasses of water a day, my attacks have completely gone away. My sister told me that she read somewhere that if you don’t drink enough water, your body will store it. That made sense to me. So I started to drink water every day.

Comment from: 45-54 Female (Patient) Published: November 13

I have suffered with Meniere's disease for more than 15 years. I have constant roaring and ringing. The past year has been the worst with dizziness and vertigo and sometimes severe nausea. I have been on hydrochlorothiazide for several years.

Comment from: klebrig, 45-54 Female (Patient) Published: September 10

I was at a point that I could not move my head without everything spinning, nausea, some problems with my sight (grayness around edges and some bright white flashing lights), ear ringing and fullness, and stability problems. I had fallen quite a few times. I had asked a doctor to check me for and inner ear infection. I had to go through surgery for Meniere's (the tube insertion and the 3 days of Cortizone profusion). It did help immensely, along with medication, but it is starting to get bad again, and the doctor told me that it might, he also said that it could have been caused from a very bad fall that I had. I have been living with this for about 5-6 years now.

Comment from: LisaAnn, 25-34 Female (Patient) Published: March 17

I’ve had vertigo 24/7 for 5 weeks now and just was told yesterday I have Meniere disease. I am getting a cat scan done today and hearing test. My ear feels like it’s plugged like being on an air plane. Being dizzy is the worst. I am just praying that it all stops soon.

Comment from: Ram, 25-34 Male (Patient) Published: January 16

I’m a 30-years-old male. According to my doctor, my Meniere’s disease has just started. He said it’s early Meniere’s. I get vertigo lasting two minutes every second week.

Comment from: Sheila, 45-54 Female (Patient) Published: October 16

I have had meniere disease for many years. I went to a meniere’s specialist. Like everyone else I have roaring in my ears, bad vertigo and nausea. The doctor prescribed me Xanax 2 mil which comes the inner ear down and meclizine 5 mg for the nausea. I also get the predinsone shots in the ear. However, I also have had 3 back surgeries along with a number of other problems. I go to a pain clinc. I receive a Lanacane IV Drip once every 3 weeks. I noticed with the Lanacane IV Drip, my meniere’s disease is more tolerable. I do not get the nausea as bad, the vertigo is not as bad and the roaring goes away. I noticed when I do not receive the Lanacane drip every 3 weeks my Meniere's disease gets worse.

Comment from: lomelindi, 45-54 Female (Patient) Published: September 10

I have all the symptoms except the vertigo. My symptoms have been fairly constant for 4 and a half months. Some days are slightly better than others, but I have symptoms every day. The fullness and tinnitus are better in the morning before I get out of bed, but return within minutes of arising. I have quite a bit of pain in my ears. Both of mine are affected, the left usually worse than the right. The tinnitus is consuming my life. On days when it is at its worst, I feel trapped in my own head with the roaring. I am a musician and the tinnitus is driving me crazy. I have three different sounds. A high pitched electronic sound, a mid pitched brassy sound, and a low pitch machinery sound. The pitches are dissonant.

Comment from: Suffering, 55-64 Female (Patient) Published: September 10

I had a mastoid operation just over 2 weeks ago. I had been suffering with an ear infection for a month which wasn’t responding to antibiotics. I had a CT scan which showed there was something wrong in the mastoid. Since then I am very off balance, dizzy and have ringing in my ear all the time.

Comment from: 25-34 Female (Patient) Published: August 19

I have the spinning when I lay down and turn my head in the bed or get up too quickly from bed. This is the only symptom I have, but my mother has this disease full blown. She has to wear hearing aids and gets nauseated and dizzy with ringing of the ear.

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