Patient Comments: Mastoiditis - Experience


Please share your experience with mastoiditis. Submit Your Comment

Comment from: Lucky, 65-74 Female (Patient) Published: September 19

In 1962 I was a 7-year-old with swelling behind my ear. I didn't tell anyone because I wanted to keep swimming. Mom saw it and our old family doctor arranged for me to go to the hospital. Mom didn't like the idea of surgery form my mastoiditis and asked for me to go to the Children's hospital, since they would try treatment before surgery. I was in isolation there for 9 days and came close to surgery, but the treatment started working. The doctor there was stumped that I wasn't having all of the normal symptoms, since it was advanced.

Comment from: Casey, 45-54 Female (Patient) Published: May 01

I was diagnosed with mastoiditis after landing in an urgent care facility with nearly debilitating pain and swelling in every joint in my body accompanied by alternating shaking chills and hot flashes, all the while I had no fever and no other symptoms of being sick. I had what I thought were two swollen lymph nodes behind my ear for about a week and thought I was just fighting an infection. One lump was the swollen mastoid and one was a swollen lymph node. Very scary. Very fast to overtake the body.

Comment from: Samantha, 45-54 Female (Patient) Published: March 20

At the age of 29 I had my first of six surgeries for mastoiditis. I've had hundreds of oral antibiotic prescriptions, and undergone intravenous medication five times for 6 weeks. Laughed at by employers, physicians, friends and family members, I was told I was crazy, a liar and lazy. It's honestly lonely terrifying and heartbreaking to be mocked for 25 plus years.

Comment from: Samantha. , 45-54 Female (Patient) Published: March 11

I recently found out I have P. acnes (Propionibacterium acnes) infection of the mastoid bone. The ear canal has been surgically closed for 2 years. The CDC Doctor doesn't think the mastoiditis will respond to intravenous antibiotics. I have been treated for MRSA and pseudomonas successfully. I wonder why a P. acnes infection is so difficult to eradicate.

Comment from: Jack Nimble, 45-54 Male (Patient) Published: October 16

I have had ear infection for 8 years now. It went into mastoids. I was called a liar by 16 doctors. Seventeen doctors put tubes in my ears. It did help but I still have insane swelling in my head. I spent 5 years in a bed while family and friends ignored me. Good luck finding help. This has ruined my life. Doctors with military background is your best bet.

Comment from: Anthony, 75 or over Male (Patient) Published: May 18

I was approximately 18 months old when I had mastoiditis and was rushed to the hospital where I received emergency mastoidectomy. Now I am 85 years old, and I still have a hearing impairment of my right ear. There has been no recurrence of the infection. I was in the Royal Navy for twelve years.

Comment from: Lizzieman11, 45-54 Female (Patient) Published: March 13

Wondering if you can still have mastoiditis without the mastoid bone. I had a sac decompression shunt surgery and the bone was removed.

Comment from: Mike, 25-34 Male (Patient) Published: June 19

I suffer from chronic mastoiditis for over 7 years now. I get pain from it in the whole area of my temporal bone and even in the temporal artery. I saw here that it can make a blood clot, I have done MRI and CT, and no clot was found in head or in chest. I am afraid if that stupid thing has given me a clot in my temporal artery, because it hurts so badly in that area and I have itches in that area also.

Comment from: Kathy , 55-64 Female (Patient) Published: August 16

I had bad ear infection all my life, I am 55 years old. I became so sick in my whole body I couldn’t walk, my muscles felt like they were drying up and I had pain beyond relief. Doctors upon doctors told me it was all in my head and nothing was wrong with me! I went for a hearing aid test and the doctor told me I had mastoiditis. I told him no kidding, years upon years I was so sick I wanted to die!


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