Patient Comments: Mantle Cell Lymphoma (MCL) - Treatments

Question:

What treatments have you received for mantle cell lymphoma (MCL)? Submit Your Comment

Comment from: Lucky Larry, 65-74 Male (Patient) Published: April 12

I had 4 months of intense chemotherapy followed by an autologous stem cell transplant for mantle cell lymphoma.

Comment from: S. Spears, 45-54 Male (Patient) Published: April 10

I was originally supposed to have eight rounds of hyper CVAD chemotherapy but my cancer went into remission after my sixth treatment. Prayers, my wife, friends and family all helped me through this aggressive regimen. My oncology doctor and staff hands down saved my life!

Comment from: John , 55-64 Male (Caregiver) Published: December 18

My husband is 57 years old and was initially misdiagnosed with chronic lymphocytic leukemia (CLL) then a bone marrow biopsy revealed mantle cell lymphoma (MCL). He currently began his treatment receiving Rituxan and lenalidomide.

Comment from: Claudia, 45-54 Female (Patient) Published: September 19

I was diagnosed with mantle cell lymphoma (MCL) in September 2011 at the age of 47 and went through a 6 month treatment regime called the Nordic Protocol. This was R-CHOP with alternating high dose ARA-C (six cycles altogether) followed by an autologous stem cell transplant. I have been in remission for 6.5 years now. My MCL had another rare twist as I was cyclin D1 negative!

Comment from: Willie, 65-74 Male (Patient) Published: July 24

I was diagnosed in December 2016. This is 7/21/18. I am going through chemotherapy with Rituxan and bendamustine (BR). No problems at all and the BR treatment doesn’t cause hair loss. Although red blood stats are still low, they have risen with treatment. I don’t understand why they say my children don’t have to worry when MCL is caused by a (genetic) translocation of t(11-14), wish I could stop worrying.

Comment from: Paul Hoy, 55-64 Male (Patient) Published: July 10

I had R-CHOP chemotherapy for mantle cell lymphoma and additionally will be doing stem cell replacement.

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