Patient Comments: Mantle Cell Lymphoma (MCL) - Prognosis

Question:

What is your MCL prognosis? Submit Your Comment

Comment from: Nonamepleasegrateful, 75 or over Female (Caregiver) Published: February 05

My mother was diagnosed at age 84 with a type of NHL (non-Hodgkin's lymphoma), mantle cell lymphoma (MCL), blastoid variant. She had chemotherapy then. She is 96 and so far has not relapsed. Her oncologist has said she is one for the medical journals. I report this so that others know it’s possible, if unexplainable.

Comment from: Mark T , 55-64 Male (Patient) Published: October 14

I'm 17 years out and still alive and well. Would share more but this phone won't let me see the screen while typing. I was diagnosed with mantle cell lymphoma (MCL) stage 4 at the beginning. Don't let them tell you it's incurable. Hang on to you hope my friends!

Comment from: S. Spears, 45-54 Male (Patient) Published: April 10

I was diagnosed with stage IV MCL (mantle cell lymphoma) on 9/5/18. I met with my oncologist and we agreed that I would undergo aggressive hyper CVAD chemotherapy. The treatments began on 10/8/18. After my third cycle I had a PET scan on 1/3/19 and the cancer was more than 90 percent gone. I underwent one more cycle and after yet another PET scan, there was no sign of cancer. I will have to have Rituxan injections every two months for the next couple of years.

Comment from: Blessings, 75 or over Male (Patient) Published: June 19

I was diagnosed with IV phase MCL (mantle cell lymphoma) early in 2001. I was 63 at the time. I had a miraculous remission in 2004. Then another in 2009, and lately, at the end of 2017, for the third time. At 81 at the moment, the doctor (with a wry smile) hopes to keep me alive until I die of 'natural causes'. It seems unreal!

Comment from: Andyd987 , 65-74 Female (Patient) Published: April 25

My MCL (mantle cell lymphoma) prognosis is excellent. It is almost 14 years since diagnosis and initial treatment. I had allogeneic SCT (stem cell transplant) in 2006 causing acute GVHD (acute graft versus host disease) in 2007. No issues since.

Comment from: Shelby, 55-64 Female (Caregiver) Published: January 04

My husband was recently diagnosed with stage III non-Hodgkin's lymphoma - mantle cell lymphoma (MCL). They want to start him on chemotherapy right away. I have no idea what to do. He is with the cancer hospital but again we do not know too much about anything.

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