Patient Comments: Mantle Cell Lymphoma (MCL) - Experience

Question:

Please share your experience with mantle cell lymphoma (MCL). Submit Your Comment

Comment from: Lucky Larry, 65-74 Male (Patient) Published: April 12

At age 60, after 4 months of chemotherapy and an autologous stem cell transplant for mantle cell lymphoma, I have been disease free for the past 11 years, thanks to the great staff at the hospital.

Comment from: Shylo, 55-64 Female (Caregiver) Published: April 05

My husband was diagnosed with mantle cell lymphoma 1 month ago. It presented with severe anemia and he was diagnosed after several blood transfusions and colonoscopy to look for internal bleeding but they found over 100 polyps in his colon. After biopsy mantle cell was diagnosed. Bone marrow biopsy revealed aplastic anemia. The lymphoma caused a rare autoimmune response that destroyed his red blood cell producing stem cells in the bone marrow. He cannot tolerate rituximab due to autoimmune response.

Comment from: Rao, 75 or over Male (Patient) Published: March 29

I was diagnosed with mantle cell lymphoma (MCL) stage 4, two months ago. Since then I have been undergoing chemotherapy. Three cycles of treatment completed. No new growth is noticed nor was there any spreading to other body parts.

Comment from: RonCarman, 45-54 Male (Patient) Published: July 24

I was diagnosed with mantle cell lymphoma (MCL) in November of 2005. I became aware that there was an issue, due to extreme pain in the lower portion of my left side ribs. At that point a CT scan and test results revealed MCL. The standard treatment at the time projected a 3 to 4 year survival even with the treatment. I asked what else was possible because I have 2 daughters to raise! After research I received hyper-CVAD with rituximab at a clinical trial. I am in remission now.

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