Patient Comments: Mantle Cell Lymphoma (MCL) - Experience

Question:

Please share your experience with mantle cell lymphoma (MCL). Submit Your Comment

Comment from: Dher490, 65-74 Male (Patient) Published: August 09

I was sick with 'flu' or so I thought. My doctor had some tests done on my blood and internal organs. He also sent me in for an ultra sound and after the ultra sound he suspected mantle cell lymphoma (MCL). Biopsies from lumps in my armpit confirmed that MCL was the problem. I'm waiting for chemotherapy now. I have the chemotherapy port installed and am going to do all I can to make it through this. I am 68 year old, otherwise in excellent health and have much more living to do with wife, family and all, grandkids and great grandkids included!

Comment from: mikeyjay36, 65-74 Male (Patient) Published: June 04

I was diagnosed with stage 2 mantle cell lymphoma (MCL) in December 2004, at the age of 56. After undergoing 6 rounds of R-CHOP and 3 years of maintenance Rituxan, plus 30 days of low-dose radiation, I have been in continuous remission since April 2005. That's more than 16 years ago. Don't let the statistics scare you. Cancer need not be a death sentence.

Comment from: Lucky Larry, 65-74 Male (Patient) Published: April 12

At age 60, after 4 months of chemotherapy and an autologous stem cell transplant for mantle cell lymphoma, I have been disease free for the past 11 years, thanks to the great staff at the hospital.

Comment from: Shylo, 55-64 Female (Caregiver) Published: April 05

My husband was diagnosed with mantle cell lymphoma 1 month ago. It presented with severe anemia and he was diagnosed after several blood transfusions and colonoscopy to look for internal bleeding but they found over 100 polyps in his colon. After biopsy mantle cell was diagnosed. Bone marrow biopsy revealed aplastic anemia. The lymphoma caused a rare autoimmune response that destroyed his red blood cell producing stem cells in the bone marrow. He cannot tolerate rituximab due to autoimmune response.

Comment from: Rao, 75 or over Male (Patient) Published: March 29

I was diagnosed with mantle cell lymphoma (MCL) stage 4, two months ago. Since then I have been undergoing chemotherapy. Three cycles of treatment completed. No new growth is noticed nor was there any spreading to other body parts.

Comment from: RonCarman, 45-54 Male (Patient) Published: July 24

I was diagnosed with mantle cell lymphoma (MCL) in November of 2005. I became aware that there was an issue, due to extreme pain in the lower portion of my left side ribs. At that point a CT scan and test results revealed MCL. The standard treatment at the time projected a 3 to 4 year survival even with the treatment. I asked what else was possible because I have 2 daughters to raise! After research I received hyper-CVAD with rituximab at a clinical trial. I am in remission now.

QUESTION

Cancer is the result of the uncontrolled growth of abnormal cells anywhere in the body. See Answer