Patient Comments: Lichen Planus - Diagnosis

Question:

What types of tests or exams led to a diagnosis of lichen planus? Submit Your Comment

Comment from: kanutten, 35-44 Female (Patient) Published: July 15

I was diagnosed with lichen planus by my obstetrician/gynecologist, first visually. Then she took a biopsy just to confirm, and 3 weeks later it was confirmed. As she also suspected that I would have this in my mouth, I also went to a dental specialist who diagnosed it in my mouth visually.

Comment from: Kelly H, 55-64 Female (Patient) Published: May 30

I have had lichen planus in my vaginal area for several years. Sometimes the itching is terrible. I only found out what it was when my gynecologist performed lab tests. Occasionally the sores break open and the fluid burns. My husband and I cannot have sex anymore because of the pain.

Comment from: SF Judi, 65-74 Female (Patient) Published: April 14

I was in my thirties and was visiting a friend who put me put me up for a night. I awoke in the middle of night screaming in pain and threw off my crocheted blanket. My right foot by the ankle felt like something big bit me! My foot swelled up big time. I thereafter had the itching and breakout. I had several dermatologists after that do a biopsy on the bite area, only to find nothing! When I got to retire, my first dermatologist told me I had lichen planus and showed me pictures in a medical manual. Since then, I am treated with a cortisone type cream when itching occurs (age 69). I always felt it was a spider bite that started it!

Comment from: vatrekker, 65-74 Male (Patient) Published: November 20

A punch and slice biopsy confirmed I have lichen planus chronicus. The dermatologist advised me it is an immune system skin disease. I have been using clobetasol for a year but does not seem to help. The doctor advised me that oral medication is the next step.

Comment from: Carolyn, 55-64 Female (Patient) Published: April 22

I have suffered with lichen planus now for more than three years. It first started with red gums and it was very difficult to eat. Then, I broke out with a rash on my legs. Later, it got really bad in my mouth and on my lips. I have had ear canal problems that have been very serious at times. I have terrible sinus problems and a terrible time with dry eyes and pus on the eye lids, especially at night. My throat swells to where I can barely swallow a small pill, and when I wake, my esophagus feels like there's a tight rubber band on it. It gets little better as the day goes on, but sometimes everything I try to swallow hurts when it goes down. I am on Pacquenil and small dose of prednisone. When it started going into my eye I was put on a high dose of prednisone and felt like a new person. But, it was too risky, so was cut to the minimal, which barely works. I was sent to a university medical center, where they came up with three plans. One was Quinacrine, but I was allergic to it. The second was cyclosporine, which tasted nasty. I don't even know what the third plan is. I have a few somewhat good days but most days are really bad. The doctors said I'm in the top 10 “worst cases” they have seen. I hope I wake one morning and it is totally gone. I just keep telling myself there is worse out there.

Comment from: dk, 55-64 Female (Patient) Published: August 19

My hairdresser first told me that I was developing a bald spot on my scalp. I went to one of those hair clubs to see if I could get treatment for hair loss. I was referred to a dermatologist who did a biopsy.

Comment from: Shortie27gurl, 25-34 Female (Patient) Published: July 30

I have had this condition since I turned 21. I am now 33. I have hoped that by now, a cure would have been found or a true treatment. I found that a tanning bed helps to reduce the appearance as my ankles, calves and shins are covered. My wrists and the tops of my hands are also. I always have people stop me if I wear shorts and ask me what is wrong with me. I just want to be normal again! Please find a cure soon!!

Comment from: suffering w/ bullus, 45-54 Female (Patient) Published: May 28

I have suffered for two years with I have suffered for two years with bullous lichen planus. I am allergic to Plaquenil. I am now on prednisone, which is new for me. I've had clobetasol propionate creams and antibacterial creams. I have the disease in my mouth and private parts, throat, arms, legs, and abdomen, along with bleeding ears. I have had two different types of skin biopsies. I am in terrible pain 24 hours, seven days a week. It keeps me from sleeping, and I am not on any pain or sleeping meds. I take OTC sleep aids probably way too much – practically every night.

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