Patient Comments: Legionnaires' Disease - Causes


How did you or someone you know contract Legionnaires' disease? Please share your experience. Submit Your Comment

Comment from: NC Guy, 25-34 Male (Patient) Published: April 02

I got Legionnaires' disease in December 2019 from smoking out of a water pipe that I kept outside in my shed. The bacteria put me in the hospital for 2 weeks. I had hallucinations, fever, shortness of breath and insomnia, which seemed to get worse at night. I had to use oxygen for a month after I left hospital when I was sleeping. To this day, the illness still affects me with memory loss, shortness of breath and I am easily tired. What a terrible thing to catch!

Comment from: Ann, 55-64 Female (Patient) Published: November 11

I contacted Legionnaires disease in July of 2015. Never found out where I got it from but, two possibilities, one being a CPAP machine and the other was removing a light post in our yard. It was a very humid month and digging up the ground there was a lot of standing water which I filled back in after the post removal. I started feeling sick with a fever and chills which I thought was a virus. I don't remember much after day 1. On the fifth day I could hardly breathe and was taken to my doctor's.

Comment from: Lynn, 45-54 Male (Caregiver) Published: August 20

My husband caught Legionnaires' disease from water cooled air conditioning from a public bus. Because his immune system was already run down it made him more prone to catching it. His symptoms were diarrhea, shortness of breath, fever and coughing a lot, sometimes pink phlegm. It took too long to be diagnosed and receive treatment and because of this he has damaged lungs. He also has chronic fatigue syndrome which we believe is from the Legionnaires’.

Comment from: L. Faucett, 35-44 Female (Patient) Published: April 30

I had Legionnaires’ disease in 1987-88. The health department could not find the source. I came close to dying. At that time not much was known about it. They finally gave me 2 different drugs at high levels that got rid of it; erythromycin and rifampin. I have been trying to research what the after effects of these can have on the body over the years. There is a lot more to this but no time or space. I am answering your survey questions as if it was back then.

Comment from: Jim, 55-64 Male (Patient) Published: January 22

I contracted Legionnaires' disease back in October 2002. I was hospitalized for 9 days and administered dual antibiotics via IV. Initially, the doctors did not know exactly what was wrong with me and my symptoms worsened while hospitalized. I had all the classic pneumonia symptoms such as chest pain, shallow breathing, shortness of breath, extreme fatigue, cough, muscle pains, etc. To compound the situation, one of the antibiotics they gave me was Zosyn. I became even more increasingly ill and it turned out I was allergic to that medicine. Luckily my wife (then girlfriend) noticed that whenever they switched antibiotics and gave me Zosyn, I would regress and become violently ill. Of course when you are as sick as I was, you are unable to draw those conclusions. Thankfully, she did! Because it was unknown exactly what I was suffering from; any visitors that came to see me were required to wear masks, as well as hospital staff. They were unsure if it was contagious. Once the physicians determined I had Legionnaires’, and once they switched antibiotics I recovered fairly quickly. However, it was touch and go there for a couple of days (much of it I don't remember). I was literally on my death bed. Turns out, a shared wall with my neighbor was the culprit. They had a water leak on their side that dripped into the wall my bedroom shared. I was apparently breathing that mold for a while. Scary stuff!

Comment from: highgrove101, 35-44 Female (Patient) Published: July 08

I contracted Legionnaires’ pneumonia at Easter 2015. It is now July and I have been left with the most incredible pain from my neck all the way down my right arm. The pain is numbness, puffiness in the arm, and an extreme ache. I am now on medication to try and control the pain. It is working but my arm feels like a ton of lead sometimes and I feel a little off the air now because of the medication! The symptoms I have had with it are extreme fatigue, breathlessness, chronic muscle aches and pains, bad memory and just no energy. The doctor gave me doxycycline which seems to halve the level within the space of 21 days. It is an awful type of pneumonia and I thought I would share my experience as there is not a lot of information out there about it.

Comment from: raven52, 35-44 Female (Patient) Published: June 25

The steps from my backyard to the basement door were covered in fungus and algae. I decided to scrape it all off and clean it up and I ended up with Legionnaires' disease. I ended up in the hospital for three days with pneumonia. I needed lots of tests to arrive at the diagnosis. I was given intravenous antibiotics as well as a lot of fluids. I continued taking oral antibiotics at home. It took me a long time to recover.

Comment from: aux, 45-54 Male (Patient) Published: December 24

I had intense tiredness as well as lung pain, dry cough, appetite, light fever and generally while sleeping would soak anything I was wearing. Five weeks on I still have chest ache from the Legionnaires' disease and the lungs are easy irritated by dust.


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