Patient Comments: Landau-Kleffner Syndrome - Signs


What were the signs and symptoms associated with your child's Landau-Kleffner syndrome? Submit Your Comment

Comment from: Patti, 25-34 Female (Caregiver) Published: December 14

My daughter was diagnosed with Landau-Kleffner syndrome (LKS) at 3, back in 1992. She was progressing typically till suddenly she lost her ability to comprehend language. She was immediately diagnosed with LKS and started on steroid injections. Within days she regained speech, but they were too strong for long term and she lost it again. We tried again a few months later to no effect. Years later she regained some comprehension after puberty. She uses sign language and speaks a little, though sometimes it’s hard to understand.

Comment from: Joanna N, 13-18 Female (Caregiver) Published: September 04

My daughter is a twin and after 3 months we noticed that she was not progressing as quickly as her twin sister. At 12 months she was still crawling and not talking at all. At 18 months she started to walk with lots of assistance. She still was not speaking or showing any signs that she might start. After 2 she started making sounds and she would look at us as if we should know what she was talking about. We thought that she may have a hearing problem so we had her tested and she was fine. We would give her a 2 step direction such as go and get your shoes and bring them back to mummy. She would go and get her shoes and not return. This is where our journey began to search for what was wrong with our daughter till we found it was Landau-Kleffner syndrome.


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